Patterns of Transition Experience for Parents Going Home from Hospital with their Infant after First Stage Surgery for Complex Congenital Heart Disease

Gaskin, Kerry

doi:10.1016/j.pedn.2017.11.013

Cited by 21 publications

(39 citation statements)

References 28 publications

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“…Parents of eight infants (eight mothers, four fathers) from Groups A (n=4) and B (n=4) took part in the interviews and were asked about the CHAT. Other interview findings are presented elsewhere 21. The data set reported here included 22 interviews, lasting from 9.49 to 59.29 min, totaling 486.44 hours.…”

Section: Resultsmentioning

confidence: 99%

Acceptability of a parental early warning tool for parents of infants with complex congenital heart disease: a qualitative feasibility study

2018

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Section: Resultsmentioning

confidence: 99%

Acceptability of a parental early warning tool for parents of infants with complex congenital heart disease: a qualitative feasibility study

2018

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“…Afaf Meleis's transition theory guided the formation of our research question and study aim and informed the direction of our interview questions (Table 1). Meleis describes transitions as times of increased vulnerability and risk (Meleis, 2015) and her theory has been used to assess anxiety, depression, and confidence in parents of SVCHD children after the second palliative cardiac surgery (Gaskin, 2018). Meleis et al (2000) is a non‐sequential model of transition that describes transitions using three domains with concepts, including the nature of transitions (e.g., types, patterns, and properties); conditions of transitions (e.g., person and environment characteristics in which transitions take place); and patterns of transition response (e.g., process indicators and outcome indicators of transitions; Meleis, 2015).…”

Section: Introductionmentioning

confidence: 99%

Defining a new normal: A qualitative exploration of the parent experience during the single ventricle congenital heart disease interstage period

Elliott

Erickson

Russell

et al. 2021

Journal of Advanced Nursing

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Aim To explore parents’ experience of transition in the period between the palliative cardiac surgeries (i.e., the interstage period) of an infant with single ventricle congenital heart disease. Design We conducted an exploratory naturalistic inquiry using a qualitative descriptive approach. Methods A purposive sample of 11 parents of children with single ventricle disease was selected among families that participated in an interstage‐period parental home monitoring program during the past 2 years. Interviews and field observations were conducted September–October 2019, and data were analyzed for themes. Analysis of data was inductive, although study questions and the interpretation of results were informed by Meleis’ transition theory. Results Parents described the experience of transition in interstage as a striving for normality, a theme that was clustered in subthemes of home, self, and infant. Conclusion Parents' experiences of striving for normality indicated a need for more targeted efforts to address parents’ psychosocial needs during the highly stressful interstage transition. Impact This research underscored the complexity of parents’ psychosocial support needs on returning home after their child's first palliative surgery. The findings also suggest need for examination of the transition following the second palliative heart surgery, when the home monitoring program is withdrawn. Understanding parent needs will help guide healthcare teams in developing ways to support parents as they adjust to home, self, and child.

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“…Several recent UK studies have highlighted the stress of parenting these vulnerable infants at home during their first year of life. Better parental discharge preparation, ensuring parents 5 have the right knowledge and know where to access information in order to respond to a deteriorating infant at home is necessary (Gaskin, Barron & Daniels 2016;Tregay et al 2015;Crowe et al 2016;Gaskin 2017). Furthermore, nurses have a responsibility to adequately prepare parents (Jones et al 2009;Titler and Pettit 1995;Weiss et al 2008), before their first transition from hospital to home.…”

Section: Parental Stressmentioning

confidence: 99%

Care of infants, children and adults with congenital heart disease

Gaskin

Kennedy

2019

Nursing Standard

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available online: https://journals.rcni.com/nursing-standard/evidence-andpractice/care-of-infants-children-and-adults-with-congenital-heart-disease-ns.2019.e11405/full. A note on versions:The version presented here may differ from the published version or, version of record, if you wish to cite this item you are advised to consult the publisher's version. Please see the 'permanent WRaP URL' above for details on accessing the published version and note that access may require a subscription.For more information, please contact wrapteam@worc.ac.uk 1 Key issues in the care of children, young people and adults with Congenital Heart Disease AbstractThere have been significant advances in surgical, medical and nursing care for infants and children requiring cardiac surgery for Congenital Heart Disease (CHD) over the last three decades. This means that the number of adults known to have moderate and complex CHD is now in fact greater than the number of children with CHD. This article considers key issues for nurses in relation to the implications of (childhood) healthcare experiences for children and adults with CHD, and an understanding of the biopsychosocial impact of CHD on the individual and their families. It identifies the key issues and standards of care required in the UK (and world-wide) in the care of this unique group of patients.

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Patterns of Transition Experience for Parents Going Home from Hospital with their Infant after First Stage Surgery for Complex Congenital Heart Disease

Abstract: Transition from hospital to home was complex and multi-faceted, with unanticipated physical and emotional transitions superimposed upon those that were expected.

Cited by 21 publications

References 28 publications

Acceptability of a parental early warning tool for parents of infants with complex congenital heart disease: a qualitative feasibility study

Acceptability of a parental early warning tool for parents of infants with complex congenital heart disease: a qualitative feasibility study

Defining a new normal: A qualitative exploration of the parent experience during the single ventricle congenital heart disease interstage period

Care of infants, children and adults with congenital heart disease

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