Patterns and predictors of registration and participation at a supportive care program for prostate cancer survivors

Hedden, Lindsay; Pollock, Phil; Bryan, Stirling; Goldenberg, Larry; Higano, Celestia S.

doi:10.1007/s00520-019-04927-6

Cited by 6 publications

(29 citation statements)

References 43 publications

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“…However, of the men who did perceive barriers, these were related to a lack of information provision, particularly around treatment, self-management and patient navigation in the healthcare system. These findings are consistent with those published elsewhere 12,32 in that men may require multimodal interventions and active encouragement to overcome barriers and access additional support for rehabilitation related to sexual and emotional issues.…”

Section: Discussionsupporting

confidence: 91%

Experiences of Unmet Need and Access to Supportive Care for Men Receiving Androgen Deprivation Therapy for Prostate Cancer: A Bi-national Study

Paterson

Primeau

Howard

et al. 2020

Seminars in Oncology Nursing

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Objective: Men affected by incurable prostate cancer is expected to increase worldwide. Research is needed to enable men to share their experiences of unmet supportive care needs in current care delivery. We aimed to identify the most frequently reported domains of unmet supportive care needs, levels of anxiety, depression, distress, health-related quality of life, and to identify any perceived barriers to receiving supportive care.Data Sources: Men diagnosed with prostate cancer who had received a minimum of 6 months of ADT were recruited into a cross-sectional study. Participants completed standardised questionnaires, clinical and demographic data was also collected. Conclusion:272 patients were invited, and 102 participated. No statistically significant differences were found between participants scores from Australia and UK in relation to anxiety and depression, exercise, HRQoL or distress scores. Perceived barriers in service delivery related to information provision and difficulties in the navigation of complex care systems.Implications for Nursing Practice: Men affected by prostate cancer receiving ADT reported unmet supportive care needs, specifically related to sexual, informational and psychological aspects of care.Mapping future trajectories of needs and identifying men at high risk can significantly improve timely and tailored interventions.

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Section: Discussionsupporting

confidence: 91%

Experiences of Unmet Need and Access to Supportive Care for Men Receiving Androgen Deprivation Therapy for Prostate Cancer: A Bi-national Study

Paterson

Primeau

Howard

et al. 2020

Seminars in Oncology Nursing

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“…This systematic review synthesised findings from existing published studies on the barriers and facilitators to accessing and utilising post-treatment psychosocial support by Black men after treatment for CaP. Some findings from this review resonate with evidence from studies on Caucasian men where practical issues [ 39 ], privacy concerns and lack of awareness of services [ 40 ] were likewise reported as barriers to men’s attendance at CaP support programmes. However, the current review has identified additional factors which are relevant to Black CaP survivors and which challenge assumptions that this population do not access external psychosocial support services predominantly because of an ingrained aversion towards public disclosure of their illness [ 4 , 5 ].…”

Section: Discussionmentioning

confidence: 63%

Barriers and facilitators to accessing and utilising post-treatment psychosocial support by Black men treated for prostate cancer—a systematic review and qualitative synthesis

Bamidele

Alexis

Ogunsanya

et al. 2022

Support Care Cancer

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Purpose To synthesise findings from published studies on barriers and facilitators to Black men accessing and utilising post-treatment psychosocial support after prostate cancer (CaP) treatment. Methods Searches of Medline, Embase, PsycInfo, Cochrane Database of Systematic Reviews and Central, CINAHL plus and Scopus were undertaken from inception to May 2021. English language studies involving Black men aged ≥18 and reporting experiences of, or suggestions for, psychosocial support after CaP treatment were included. Low or moderate quality studies were excluded. Searches identified 4,453 articles and following deduplication, 2,325 were screened for eligibility. Two independent reviewers carried out screening, quality appraisal and data extraction. Data were analysed using thematic synthesis. Results Ten qualitative studies involving 139 Black men were included. Data analysis identified four analytical constructs: experience of psychosocial support for dealing with treatment side effects (including impact on self-esteem and fear of recurrence); barriers to use of psychosocial support (such as perceptions of masculinity and stigma around sexual dysfunction); facilitators to use of psychosocial support (including the influence of others and self-motivation); and practical solutions for designing and delivering post-treatment psychosocial support (the need for trusted healthcare and cultural channels). Conclusions Few intervention studies have focused on behaviours among Black CaP survivors, with existing research predominantly involving Caucasian men. There is a need for a collaborative approach to CaP care that recognises not only medical expertise but also the autonomy of Black men as experts of their illness experience, and the influence of cultural and social networks.

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“…In British Columbia, a Prostate Cancer Supportive Care (PCSC) Program exists within the Vancouver Coastal Health program offerings to support the needs of men with prostate cancer. 55,56 The PCSC Program uses a multidisciplinary team to deliver educational modules and clinical services, focusing on areas such as sexual functioning, mental health, managing ADT side effects, exercise, nutrition and urinary incontinence. 55 people influence, and are influenced by, their environment, particularly related to the interactions between behaviour, personal factors and environmental influences.…”

Section: Pcsc Program Exercisementioning

confidence: 99%

“…In British Columbia, the PCSC Program includes an exercise module that provides an exercise counselling clinic and exercise education that is delivered using a defined protocol (Exercise Clinic version 2.0 protocol). 55,56 The primary aim of our study was to test the feasibility of delivery of the Exercise Clinic version 2.0 protocol in a real-world clinical setting.…”

Section: Chapter 6: Conclusionmentioning

confidence: 99%

“…In Vancouver, British Columbia, the Prostate Cancer Supportive Care (PCSC) Program is a multidisciplinary program that is available at no cost to individuals with prostate cancer. 55,56 Offering both educational and clinical services through six unique modules, the PCSC Program is delivered by an expert clinical team including a nurse practitioner, physical therapist, registered dietitian, clinical exercise physiologist and clinical counsellor and is designed to support men and their families at all stages of prostate cancer. Module 3E, Exercise Support, was introduced in 2014 and has evolved over time.…”

Section: Chapter 1: Introductionmentioning

confidence: 99%

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Exercise Counselling To Promote Exercise Behaviour Change In Individuals With Prostate Cancer

Weller

Higano

Faulkner

et al. 2020

Medicine &Amp; Science in Sports &Amp; Exercise

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The following individuals certify that they have read, and recommend to the Faculty of Graduate and Postdoctoral Studies for acceptance, a thesis/dissertation entitled: Exercise counselling to promote exercise behaviour change in individuals with prostate cancer submitted by Sarah Krystal Weller in partial fulfillment of the requirements for the degree of Master of Science in Rehabilitation Sciences

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Patterns and predictors of registration and participation at a supportive care program for prostate cancer survivors

Cited by 6 publications

References 43 publications

Experiences of Unmet Need and Access to Supportive Care for Men Receiving Androgen Deprivation Therapy for Prostate Cancer: A Bi-national Study

Experiences of Unmet Need and Access to Supportive Care for Men Receiving Androgen Deprivation Therapy for Prostate Cancer: A Bi-national Study

Barriers and facilitators to accessing and utilising post-treatment psychosocial support by Black men treated for prostate cancer—a systematic review and qualitative synthesis

Exercise Counselling To Promote Exercise Behaviour Change In Individuals With Prostate Cancer

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