Patients' Perspective of Dystonia Symptoms during the SARS‐CoV‐2 Pandemic

Delgado, Celia; Pareés, Isabel; Kurtis, Mónica

doi:10.1002/mds.28645

Cited by 6 publications

(5 citation statements)

References 5 publications

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“…A study on the overall effect of the pandemic on patients with pre‐existing dystonia found that the majority of patients noted worsening of symptoms (65%) [79], approximately one third of patients reported stable symptoms, and <5% noted improvement of dystonia. Forty‐two percent of patients felt that dystonia management had, at some point, been inadequate to their clinical need.…”

Section: Resultsmentioning

confidence: 99%

Relationship between COVID‐19 and movement disorders: A narrative review

Schneider

Hennig

Martino

2021

Euro J of Neurology

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Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2, 2019-nCoV) emerged in December 2019 and spread into a worldwide pandemic. More than 260 million people worldwide have been verifiably infected with Sars-CoV-2 (as of December 2021), with more than 5.2 million deaths. The number of human coronavirus disease 2019 (COVID-19) cases continues to rise as countries roll out their vaccine programs. There is a broad range of clinical presentations of COVID-19, including neurological manifestations [1]. It is estimated that 10%-30% of COVID-19 patients develop neurological symptoms in the acute phase, which may be the presenting sign. Neurological manifestations of COVID-19 include cerebrovascular disorders, including ischemic stroke and macro/microhemorrhages, encephalopathies and (meningo-)encephalitis, para-/postinfectious immune-mediated complications such as Guillain-Barré syndrome, movement disorders, and neuropsychiatric complications [2-4]. In parallel to the

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Section: Resultsmentioning

confidence: 99%

Relationship between COVID‐19 and movement disorders: A narrative review

Schneider

Hennig

Martino

2021

Euro J of Neurology

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“…Similarly, the pandemic has negatively affected individuals living with other movement disorders. Reports describe worsening of motor and non-motor symptoms among those with multiple system atrophy [15] and those with dystonia [16,17]. In a study of individuals with Tourette's syndrome and chronic tic disorders, there was an overall reduction in tic severity but increase in psychiatric symptoms [18].…”

Section: Impact Of the Pandemic On Individuals With Movement Disordersmentioning

confidence: 99%

Moving Forward from the COVID-19 Pandemic: Needed Changes in Movement Disorders Care and Research

Valdovinos

Modica

Schneider

2022

Curr Neurol Neurosci Rep

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Purpose of Review The COVID-19 pandemic has dramatically affected the health and well-being of individuals with movement disorders. This manuscript reviews these effects, discusses pandemic-related changes in clinical care and research, and suggests improvements to care and research models. Recent Findings During the on-going COVID-19 pandemic, individuals with movement disorders have experienced worsening of symptoms, likely due to decreased access to care, loss of social connection, and decreased physical activity. Through telemedicine, care has moved out of the clinic and into the home. Clinical research has also been significantly disrupted, and there has been a shift to decentralized approaches. The pandemic has highlighted disparities in access to care and representation in research. Summary We must now translate these experiences into better care and research models with a focus on equitable integration of telemedicine, better support of patients and caregivers, the development of meaningful digital endpoints, and optimization of decentralized research designs.

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“…Studies from different countries have demonstrated that individuals with PD experienced worsening motor and nonmotor symptoms during the pandemic [ 8 , 9 , 10 , 11 , 12 , 13 ]. Similarly, the pandemic has negatively affected individuals with other movement disorders such as multiple system atrophy, dystonia, and tic disorders [ 14 , 15 , 16 ]. Overall, telemedicine applied to PD patients increased from 9.7% prior to the pandemic to 63.5% during the pandemic [ 17 ].…”

Section: Changes In Care In Response Due To the Covid-19 Pandemicmentioning

confidence: 99%

Telemedicine in the Management of Parkinson’s Disease: Achievements, Challenges, and Future Perspectives

Cubo

Delgado-López

2022

Brain Sciences

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Background: As the global population grows, there is an increasing demand for neurologic consultation that prompts new ways to reach more patients. Telemedicine can provide an accessible, cost-effective, and high-quality healthcare services. Objectives: In this article, we highlight recent developments, achievements, and challenges regarding outcomes, clinical care, tele-education, teletreatment, teleresearch, and cybersecurity for telemedicine applied to Parkinson´s disease (PD) and other neurological conditions. Results: A growing body of evidence supports the feasibility and effectiveness of telemedicine tools for PD and other movement disorders. Outcome variables regarding satisfaction and efficacy in clinical care and specific issues about education, research, and treatment are reviewed. Additionally, a specific legal framework for teleconsultation has been developed in some centers worldwide. Yet, the implementation of telemedicine is conditioned by the limitations inherent to remote neurological examination, the variable computer usage literacy among patients, and the availability of a reliable internet connection. At present, telemedicine can be considered an additional tool in the clinical management of PD patients. Conclusions: There is an increasing use of remote clinical practice regarding the management of PD and other neurological conditions. Telemedicine is a new and promising tool aimed at special settings and subpopulations.

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Patients' Perspective of Dystonia Symptoms during the SARS‐CoV‐2 Pandemic

Abstract: This study was approved by the Ruber International Hospital Ethics Committee. All the data obtained were anonymous. We confirm that we have read the journal's position on issues involved in ethical publication and affirm that this work is consistent with those guidelines.

Cited by 6 publications

References 5 publications

Relationship between COVID‐19 and movement disorders: A narrative review

Relationship between COVID‐19 and movement disorders: A narrative review

Moving Forward from the COVID-19 Pandemic: Needed Changes in Movement Disorders Care and Research

Telemedicine in the Management of Parkinson’s Disease: Achievements, Challenges, and Future Perspectives

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