Patients’ perceptions as an indicator of quality of care, in Greek patients with inflammatory bowel disease

Pallis, Athanasios; Κωσταγιόλας, Πέτρος; Mouzas, Ioannis; Niakas, Dimitris

doi:10.1111/j.1471-6712.2007.00594.x

Cited by 13 publications

(12 citation statements)

References 29 publications

(38 reference statements)

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“…, Pallis et al . , Masachs et al . ) revealed that persons with IBD reported suboptimal care in areas such as accommodation, accessibility and information, as well as psychological and physical well‐being.…”

Section: Introductionmentioning

confidence: 99%

Health care as perceived by persons with inflammatory bowel disease – a focus group study

Lesnovska

Frisman

Hjortswang

et al. 2017

Journal of Clinical Nursing

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Aims and objectives The aim of this study was to explore the perceptions of health care among persons living with inflammatory bowel disease. Background The quality of care plays an important role in the life of persons with a chronic disease. To define what persons with inflammatory bowel disease perceive as high‐quality care, greater focus must be placed on the individual's own perspective of living with the condition. Design A qualitative exploratory study was conducted based on focus groups. Methods Five focus groups were conducted with adult persons living with inflammatory bowel disease, 14 men and 12 women aged 19–76 years. The interviews were performed between January–June 2014. Results The perceptions of health care from the perspective of persons living with inflammatory bowel disease were summarised in two categories: ‘professional attitudes of healthcare staff’ and ‘structure of the healthcare organisation’. Persons with inflammatory bowel disease want to be encountered with respect, experience trust and obtain information at the right time. They also expect shared decision‐making, communication and to encounter competent healthcare professionals. Furthermore, the expectations on and perceptions of the structure of the healthcare organisation comprise access to care, accommodation, continuity of care, as well as the pros and cons of specialised care. Conclusion The findings show the importance of establishing a respectful and trusting relationship, facilitating healthcare staff and persons with inflammatory bowel disease to work as a team in fulfilling individual care needs – but there is room for improvement in terms of quality of care. Relevance to clinical practice A person‐centred approach, which places the individual and her/his family at the centre, considering them experts on their own health and enabling them to collaborate with healthcare staff, seems important to reach a high‐quality healthcare organisation for patients with Inflammatory bowel disease.

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Section: Introductionmentioning

confidence: 99%

Health care as perceived by persons with inflammatory bowel disease – a focus group study

Lesnovska

Frisman

Hjortswang

et al. 2017

Journal of Clinical Nursing

View full text Add to dashboard Cite

show abstract

“…The role of the patient is important also in the evaluation of the quality of health care and nursing. From this perspective, there are evaluations using satisfaction instruments, analysing patients' experiences during the caring process, combining patients' experiences with their expectations and asking patients to describe good nursing care . Furthermore, analyses about factors connected with the quality of nursing care have produced inconsistent results; these have to do, for example, with staffing levels, skill mix and nurse autonomy, and nurses' time pressure .…”

Section: Introductionmentioning

confidence: 99%

Knowledge received by hospital patients—a factor connected with the patient‐centred quality of nursing care

Leino‐Kilpi

Gröndahl

Pekonen

et al. 2014

Int J of Nursing Practice

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The main purpose of this study was to evaluate and analyse the connection between the level of quality of nursing care and knowledge received by patients (N = 266, n = 226), response rate was 85%. The data were collected using two structured instruments: one measuring the quality of nursing care experienced by patients (The Good Nursing Care Scale, GNCS) and one measuring the received knowledge of hospital patients (RKHP). The data were collected at one (out of five) Finnish university hospitals, in all medical wards during 5 weeks in 2009. A clear association between the level of the quality of nursing care and the level of received knowledge was found: on the total level of instruments, correlation was strong (r = 0.705). Support of empowerment (GNCS) had statistically significant strong correlation between biophysiological knowledge (RKHP), (r = 0.718), and experiential knowledge (r = 0.633), (P ≤ 0.01). Furthermore, there was a strong correlation between nursing activities and biophysiological knowledge (r = 0.637). Higher age, sufficient advance information and better self-perceived health status were associated both with the level of the quality of nursing care and level of received knowledge. In the future, a special attention should be paid to the sufficient information for patients before their hospital stays.

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“…The existing knowledge about IBD and quality of care is based on studies measuring quality of care with predefined questions (86,88). Results from the QUOTE-IBD studies showed that the lowest importance scores were observed for autonomy, costs and accessibility.…”

Section: Assessing Quality Of Carementioning

confidence: 99%

“…Results from the QUOTE-IBD studies showed that the lowest importance scores were observed for autonomy, costs and accessibility. The three most important aspects of quality of care for IBD patients were competence, accommodation and courtesy (86,88). In the Portuguese version of the QUOTE-IBD, it was concluded that there is no golden standard for the assessment of quality of care from the perspective of those living with IBD.…”

Section: Assessing Quality Of Carementioning

confidence: 99%

“…Some studies have been performed on the aspect of quality of care among patients with IBD showing that patients gave relatively poor marks to parts, such as being provided with information and the psychological as well as physical approach (85)(86)(87). The existing knowledge about IBD and quality of care is based on studies measuring quality of care with predefined questions (86,88).…”

Section: Assessing Quality Of Carementioning

confidence: 99%

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Life situation among persons living with inflammatory bowel disease.

Lesnovska¹

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Living with inflammatory bowel disease (IBD) affects physical, psychological and social dimensions, limiting the ability to engage in daily activities. Persons with IBD may need frequent and lifelong contacts with the healthcare (HC), highlighting the importance of quality care. High quality HC for persons with IBD involves a partnership between the HC professionals and the person living with the disease. Information is essential, the more a person knows about their disease, the more concordant and satisfied with their treatment they are likely to be. The overall aim of this thesis was to describe the knowledge need, life situation and perception of HC among persons living with IBD, in order to develop a questionnaire to evaluate the quality of HC. This thesis is based on three studies that are presented in four papers. Qualitative methods were used to describe aspects of life situation in relation to the disease, whereas quantitative method was used to develop a questionnaire measuring quality of care. Study I and II have an inductive qualitative design. In study I, qualitative interviews with 30 people were performed to describe the knowledge need and experience of critical incidents in daily life while living with IBD. The interviews in study I were analyzed using content analysis (results presented in Paper I) and critical incident technique (results presented in Paper II). In study II, the perceptions of HC among persons living with IBD was explored in five focus group interviews and two individual interviews, in total n=26. Study III aimed to develop and evaluate a questionnaire, measuring quality of care among persons with IBD, including 318 persons with IBD and 8 professionals. The knowledge need among persons with IBD focused on managing symptoms and course of the disease and learning to assimilate the information in order to manage everyday life. Losing bowel control was of great concern for most of the informants in the study. Many of the informants said that “the bowel ruled their life” and that it influenced them to a great extent in their daily lives. The perception of HC among persons with IBD meant being met with respect and mutual trust, receiving information at the right time, shared decision-making, competence and communication, access to care, accommodation, continuity of care and the pros and cons of specialized care. The quality of care questionnaire QoC-IBD was constructed in five dimensions, building on the results from Study I and II. The dimensions were trust and respect, decision-making, information, continuity of care and access to care consisting of 21 questions in total. QoC-IBD is a short, self-administrated questionnaire that measures experiences of healthcare among persons with IBD with promising validity and reliability. To improve quality of care, HC is recommended to consider individual care needs and take the person’s daily life and social context into account. The QoC-IBD questionnaire measures the subjective experience of quality of care. Further testing in clinical practice...

show abstract

Patients’ perceptions as an indicator of quality of care, in Greek patients with inflammatory bowel disease

Cited by 13 publications

References 29 publications

Health care as perceived by persons with inflammatory bowel disease – a focus group study

Health care as perceived by persons with inflammatory bowel disease – a focus group study

Knowledge received by hospital patients—a factor connected with the patient‐centred quality of nursing care

Life situation among persons living with inflammatory bowel disease.

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