Patients' experiences of care and support at home after a family member's participation in an intervention during palliative care

Abstract

Our findings show how an intervention targeted at family members during palliative home care also benefits the patients.

A person-centred approach in nursing: Validity and reliability of the Carer Support Needs Assessment Tool

“…Well-targeted support for family caregivers may improve preparedness for caregiving and may decrease the number of negative consequences from caregiving (Henriksson et al, 2013a, Holm et al, 2016, Hudson et al, 2009. Adequate support can also help prevent a breakdown of the care situation at home (Sarmento et al, 2017) and can contribute to patients experiencing safer and better care (Norinder et al, 2017). When caregivers feel confident in their skills, their care can be adapted to family life, enhancing the sense of normality and the management of uncertainty (Sarmento et al, 2017).…”

Adaptation and evaluation of the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care

“…Every situation is unique and the responsibilities of care can range from providing companionship and undertaking household tasks, through assisting with personal care, to performing complex physical and medical tasks, as well as providing emotional and existential support and the coordination of care (Andershed & Ternestedt, ; Davies & Nolan, ; Stajduhar & Cohen, ; Thomas, Morris, & Harman, ). The care and support provided by family members can promote the well‐being and recovery of the ill person (Norinder, Goliath, & Alvariza, ; Topor et al., ).…”

Incerteza dos cuidadores familiares na doença de pacientes sob cuidados paliativos e fatores associados

“…In this sense, a negative association was found between uncertainty and family support and religious support. As other authors have described 27-28 , family and spirituality are sources of support in the process of coping with the disease and provide accompaniment, help, financial support, tranquility to the caregiver and the patient, as well as sense and meaning at the end of life. This result confirms another assumption of the theory of Uncertainty in Illness in the field of palliative care, in which the author of this theory proposes that the provided support social is an important aspect that influences the development of illness uncertainty.…”