Patients’ constructions of disability in metastatic spinal cord compression

Eva, Gail; Paley, John; Miller, Martha; Wee, Bee

doi:10.1177/0269216308099959

Cited by 26 publications

(17 citation statements)

References 39 publications

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“…21 and use rehabilitation resources more efficiently than their care in non-specialist settings. Admitting people with SCDys due to tumors into SRUs where they have not previously been managed will necessitate changes in practice for the rehabilitation teams and this process will take time and support from senior staff to effectively implement.…”

Section: Patient Supportmentioning

confidence: 99%

“…5,10,[12][13][14][15][16][17] It is acknowledged that the rehabilitation of patients with tumor presents unique challenges, 18 and this applies especially for those with tumor as the cause of SCDys. 10,16,[19][20][21] Despite the high proportion of people with tumor causing SCDys there has been relatively little written about these patients in terms of the ideal setting for their rehabilitation or recommendations for rehabilitation teams caring for them. 10,16,19,20,22 The objectives of this project were: 1) to provide a brief review of the epidemiology, clinical features and outcomes for patients with SCDys due to tumor, 2) to survey participants attending a workshop on the rehabilitation of people with SCDys due to tumor about the admission practices of their SRU regarding these people and the services available for their rehabilitation, and 3) based on evidence from the literature and our expert opinion, propose practical considerations for staff working in SRU when managing people with SCDys due to tumor.…”

Section: Introductionmentioning

confidence: 99%

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Rehabilitation of people with spinal cord damage due to tumor: literature review, international survey and practical recommendations for optimizing their rehabilitation

New

Marshall²,

Stubblefield

et al. 2016

The Journal of Spinal Cord Medicine

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9Spinal Rehabilitation (SpiRe) laboratory, IRCCS Fondazione S. Lucia, Rome, Italy Background/Objectives: People with spinal cord dysfunction (SCDys) due to tumor (benign and malignant) pose enormous rehabilitation challenges. Objectives were: conduct literature search regarding epidemiology, clinical features and outcomes for SCDys due to tumor following rehabilitation, the ideal setting for rehabilitation and practical considerations for rehabilitation; and propose framework and practical considerations for managing people with SCDys due to tumor in spinal rehabilitation units (SRUs). Design: Survey of rehabilitation health care professionals, consensus opinion from experts and literature search. Setting: Workshop at International Spinal Cord Society and American Spinal Injury Association combined annual meeting, May 16, 2015, Montréal, Canada. Participants: Workshop attendees and experts in the rehabilitation of people with SCDys due to tumor. Outcomes Measures: Reports of services offered to people with SCDys due to tumor, including whether those with benign and malignant tumors are admitted into rehabilitation, any admission criteria used and the rational for declining admission. Results: Most respondents (n = 33, 83%) reported that people with benign tumors were routinely admitted for rehabilitation but only 18 (45%) reported that people with malignant tumors were routinely admitted. A range of criteria and reasons for declining admission were given. Evidence from the literature and the opinion of experts support the admission of people with SCDys due to tumor into specialist SRUs. Conclusions: A framework and practical considerations for managing people with SCDys due to tumor in SRUs are proposed. Patients with tumor causing SCDys should be given greater access to specialist SRU in order to achieve the best outcomes.

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Section: Patient Supportmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Rehabilitation of people with spinal cord damage due to tumor: literature review, international survey and practical recommendations for optimizing their rehabilitation

New

Marshall²,

Stubblefield

et al. 2016

The Journal of Spinal Cord Medicine

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“…Evidence from expert committee reports or opinions or clinical experience of respected authorities, or both With a diagnosis of spinal tumor, patients face a difficult adjustment due to denial of their disability, understanding new boundaries, concern about dependence on others, and learning to live within a new normality [61] . QOL is an important consideration for all cancer patients, and is a major focus of the rehabilitation plan of care.…”

Section: IVmentioning

confidence: 99%

Neoplasm of the spinal cord: Implications for clinical care to improve symptom management and functionality

Raj¹,

Edeker²

2013

Clinical Nursing Studies

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Individuals suffering from spinal cord neoplasm have shown improved survival however long term plans of care designed to improve functionality, quality of life, and symptom control are not well defined. Many practitioners may not be aware of nursing and rehabilitation interventions that can improve quality of life (QOL) and functionality in this patient population. The purpose of this review is to provide an overview of the primary sources of spinal cord tumors, understand general medical interventions, define treatment options that may improve symptom management, and explain how treatment options and physical rehabilitation can improve functionality and quality of life. An extensive literature review was performed using multiple databases, including pubmed.gov and Ovid, as well as individual journal and textbook articles. Several studies were examined, and it was found that patients experienced improvement in functionality, mood, quality of life, and survival after participation in rehabilitation programs. However, plans of care must factor account for prognosis and medical co-morbidities for maximal improvement in outcomes.

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“…Positive illusions were documented by Taylor and her colleagues in adults living with breast cancer, acquired immune deficiency syndrome (AIDS) and heart disease (e.g., Helgeson & Taylor, 1993;Taylor & Armor, 1996;Taylor et al, 1984;Taylor, Kemeny, Reed, Bower, & Gruenewald, 2000;Updegraff, Taylor, Kemeny, & Wyatt, 2002), and have subsequently been documented in adults living with other stressful conditions, including disease, injury, sexual abuse, and war (Eva, Paley, Miller, & Wee, 2009;Himelein & McElrath, 1996;Johnson, 2004;Kenen, Arden-Jones, & Eeles, 2004). These illusions are also theorized to protect against threats to the individual's usual positive self-assessment and sense of control, and promote active and effective coping (Taylor & Armor, 1996).…”

Section: Positive Illusions In Adultsmentioning

confidence: 99%

“…Extensive research on the effect of positive illusions on the well-being in individuals suffering from chronic disorders such as cancer, heart disease, spinal injury, and obesity has followed this early research (e.g., Eva, Paley, Miller, & Wee, 2009;Helgeson & Taylor, 1993;Kenen, Arden-Jones, & Eeles, 2004;Linde, Jeffery, Finch, Ng, & Rothman, 2004). In these circumstances, perceiving oneself as being competent and in control-even if illusory-may allow the individual to overcome threats to the person's psychological wellbeing, and allow them to motivate themselves to persevere in the face of adversity.…”

Section: Positive Illusions In Adults With Disabilities Positive Illmentioning

confidence: 99%

Positive Illusions in Adolescents: The Relationship Between Academic Self-Enhancement and Depressive Symptomatology

Noble

Heath

Toste

2011

Child Psychiatry Hum Dev

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Positive illusions are systematically inflated self-perceptions of competence, and are frequently seen in areas of great difficulty. Although these illusions have been extensively documented in children and adults, the developmental trajectory remains unclear. This study investigated the relationship between positive illusions and depressive symptomatology and school stress in a sample of 78 typically developing adolescents. Adolescents who were achieving slightly below average in math significantly overestimated their performance, but adolescents did not overestimate their performance in spelling. Positive illusions in math, but not in spelling, were negatively related to depressive symptomatology. This relationship was mediated by school stress caused by parental control.Implications for positive illusion theory and development are discussed.

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Patients’ constructions of disability in metastatic spinal cord compression

Cited by 26 publications

References 39 publications

Rehabilitation of people with spinal cord damage due to tumor: literature review, international survey and practical recommendations for optimizing their rehabilitation

Rehabilitation of people with spinal cord damage due to tumor: literature review, international survey and practical recommendations for optimizing their rehabilitation

Neoplasm of the spinal cord: Implications for clinical care to improve symptom management and functionality

Positive Illusions in Adolescents: The Relationship Between Academic Self-Enhancement and Depressive Symptomatology

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