Patients’ and physicians’ descriptions of occurrence and diagnosis of endometriosis: a qualitative study from Iran

Riazi, Hedyeh; Tehranian, Najmeh; Ziaei, Saeideh; Mohammadi, Eesa; Hajizadeh, Ebrahim; Montazeri, Ali

doi:10.1186/1472-6874-14-103

Cited by 30 publications

(56 citation statements)

References 39 publications

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“…Since biomedicine can not improve the intense pain, many women are unable to handle daily affairs of life and daily activities during their menstrual period, especially when their pain is most severe. These disruptions lead to feelings of fatigue, sadness, fear, hopelessness, powerlessness, alienation and depression [3,12]. The feelings are accompanied by a condition that is chronic, of an uncertain etiology, or fail to improve [12].…”

Section: Disability and Isolationmentioning

confidence: 99%

“…Ultrasonography, CA125, family history, and laparoscopy are usually employed to determine the diagnosis. Family history has been considered as a key factor leading to the diagnosis of endometriosis by the physician [3]. However, laparoscopy remains the gold standard for the diagnosis of endometriosis.…”

Section: Simplified and Reductive Diagnosismentioning

confidence: 99%

“…Among the words which women used to describe their pain, terms such as the alienating intractability of the pain, rein habiting pain, engulfing pain; the pain occurs before and during menstrual periods, during and after sexual activity, often during and after bowel movements [13]. Pain also causes various problems in different parts of the body, such as abdominal pain, headache, lower back pain, anal pain, mastalgia and lower limb pain [3].…”

Section: Disability and Isolationmentioning

confidence: 99%

“…Published studies have shown significant gaps between the descriptions of the symptoms of endometriosis provided by women and gynaecologists [3,8,9].To identify the notions behind the discrepancies between the descriptions of women with endometriosis and healthcare professionals, we review the published literatures concerning the effects and symptoms related to endometriosis, to provide insights regarding the current discourses on endometriosis as well as a deeper reflection on the clinical practice.…”

Section: Introductionmentioning

confidence: 99%

“…Given that the physical manifestations of endometriosis cause women to suffer from potential impacts on fertility, intimate relationships, and social psychological distress [1][2][3],endometriosis has been described to cause disruptions in daily life [1,4].…”

Section: Introductionmentioning

confidence: 99%

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Protean Symptoms and Reductive Diagnosis

Wu¹,

Lee²,

Chiang³

2016

Int J Gynecol Clin Pract

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Endometriosis is a common, but difficult to diagnose and manage, condition for women of reproductive age. Published studies have shown that healthcare providers and women comprehend endometriosis from different perspectives. To identify the notions behind the discrepancies between the descriptions of women with endometriosis and healthcare professionals, we explored the reported impacts and manifestations described for endometriosis. Two branches regarding the impact of endometriosis on women were categorized as follows: disability and isolation, as well as pain and intimacy. In contrast, the features of the symptoms were characterized as protean and diffusing symptoms that were simplified to obtain reductive diagnosis, and anchor versus relief. To promote healthcare for women with endometriosis, researchers must embrace a broader and more holistic approach to the investigation of emic knowledge of women with endometriosis.

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Section: Disability and Isolationmentioning

confidence: 99%

Section: Simplified and Reductive Diagnosismentioning

confidence: 99%

Section: Disability and Isolationmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Protean Symptoms and Reductive Diagnosis

Wu¹,

Lee²,

Chiang³

2016

Int J Gynecol Clin Pract

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Exploring the impact of endometriosis on women’s lives: A qualitative study in Iran

et al. 2020

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Aim Considering the wide impact of endometriosis on various aspects of health, this study aimed to explore the impact of endometriosis on Iranian women's lives. Design The present study used a qualitative approach and conventional content analysis. Methods Twenty patients suffering from endometriosis referring to Imam Khomeini Hospital in Tehran took part in this study. The sampling was done purposefully until data saturation. After deep semi‐structured interviews, the content analysis of the interviews was done according to the steps proposed by Zhang and Wildemuth. Results The mean age of the participants was 34.53 (SD: 5.81) years (range: 23–43) with duration of illness of 6.30 ± 5.86 years. Their educational level varied from high school to university, and most of them were employed. Analysis of the data from participants' experiences led to the formation of 5 categories under the titles "Physical suffering, instability of marital life, mental disorder, disruption in social life and self‐care" and 11 subcategories. Conclusion The findings of the present study showed that endometriosis can adversely affect women's lives including physical, sexual, psychological and social problems. Although in some cases patients adopt different strategies for self‐care, the need for more support is felt.

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Seeking adaptation from uncertainty: Coping strategies of South Korean women with endometriosis

Yoon

Park

2021

Research in Nursing & Health

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Women with endometriosis may experience uncertainty owing to the characteristics of the disease, including vague symptom patterns, delayed diagnosis, and long-term management with no cure. However, women use various coping strategies to adapt to the uncertainty caused by their endometriosis. This descriptive qualitative study explored the coping experiences of women with endometriosis to reduce their uncertainty about the disease and to achieve successful adaptation to their lives with endometriosis. By using convenience and purposive sampling methods, qualitative data were collected from 14 women in South Korea (mean age = 37.7 years, age range = 27-54 years), who were diagnosed with endometriosis through laparoscopy or open surgery. All interview data were thematically analyzed. Four themes were identified as adaptive coping experiences: (1) gaining self-control over the ambiguous disease; (2) regaining the daily routines destroyed by the disease; (3) being emotionally supported and expressing oneself when feeling unsupported by society; and (4) taking an active role in one's treatment plan by being self-directed. Patients' sense of self-control and self-directedness regarding the disease and the treatment process were important to adapt to life with endometriosis. In addition, regaining stable daily routines as well as being emotionally supported were critical for decreasing their uncertainty. This paper has widespread implications, including the need for training or a continuing education program for health professionals to enhance their competencies when caring for women with endometriosis and the need for social efforts to increase awareness of the disease.

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Patients’ and physicians’ descriptions of occurrence and diagnosis of endometriosis: a qualitative study from Iran

Cited by 30 publications

References 39 publications

Protean Symptoms and Reductive Diagnosis

Protean Symptoms and Reductive Diagnosis

Exploring the impact of endometriosis on women’s lives: A qualitative study in Iran

Seeking adaptation from uncertainty: Coping strategies of South Korean women with endometriosis

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