Patient-reported outcome measures (PROMs) in routine care palliative radiotherapy

Schuler, Thilo; Hruby, George; Eade, Thomas

doi:10.1016/j.radonc.2020.06.002

Cited by 2 publications

(2 citation statements)

References 9 publications

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“…This study highlights the logistics/communication issues which can arise with administration of ePROMs post‐RT where patients are no longer seeing healthcare professionals for guidance. Consistent with previous findings, 53 this study demonstrated that in the early stages of implementation, refinement of the ePROM process may be necessary through frequent service evaluation to ensure that the needs of the targeted population are being met.…”

Section: Discussionsupporting

confidence: 87%

“…While the feasibility of incorporating ePROMs after cancer treatment has recently been explored in other studies, 38 , 53 , 54 , 55 few publications have explored the use of ePROMs with patients post‐RT for breast cancer. Larger multicentre studies are needed to fully understand the potential benefits of ePROMs post‐RT for breast RT and other RT treatment sites.…”

Section: Discussionmentioning

confidence: 99%

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Patients' experiences of engaging with electronic Patient Reported Outcome Measures (PROMs) after the completion of radiation therapy for breast cancer: a pilot service evaluation

Hughes

Flood

2023

J of Medical Radiation Sci

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IntroductionOver 60 % of people who develop breast cancer will receive radiation therapy (RT) as part of their treatment. Side effects of RT may include inflammation, erythema, desquamation and fatigue. Electronic Patient Reported Outcomes Measures (ePROMs) enable patients to report side effects prior to their scheduled post‐RT appointment. This pilot service evaluation aims to explore patients' perceptions regarding the value of the ePROM system, ease of its use and barriers to using the system, after breast irradiation.MethodsFrom July–November 2021, evaluation surveys were posted to 100 people who had received RT to their breast to explore their experience of using the ePROM. Ethical approval was obtained through Ulster University and the Western Health and Social Care Trust (WHSCT), Northern Ireland.ResultsFifty‐two people responded to the survey, of which 27 respondents indicated that they had accessed the ePROM. Despite few participants experiencing significant side effects, the majority of participants recommended the ePROM indicating that it was an important source of support. Those who experienced significant side effects found the system to be prompt and effective. Barriers to accessing the ePROM included technical issues with the link, concerns about confidentiality and forgetting to access the link. Access to the ePROM increased with higher education levels.ConclusionsThis pilot service evaluation demonstrated that ePROMs are valued by patients and can provide rapid real‐time access to support, offering individual care and reassurance. For patients with longer RT schedules (>10 fractions), the introduction of ePROMs during RT was viewed favourably by participants. All patients may benefit from the option of receiving ePROMs post‐RT.

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Section: Discussionsupporting

confidence: 87%