Patient-led innovation in healthcare: The value of the ‘user’ perspective

McNichol, Elaine

doi:10.1179/2047971912y.0000000020

Cited by 18 publications

(13 citation statements)

References 11 publications

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“…Inclusion of a patient voice is met by involving patients starting at the very beginning of the innovation design process. True patient inclusion in innovation requires “strong leadership to challenge traditional thinking and practices; a robust commitment to collaboration and partnership working; and a willingness to invest time in establishing a culture and infrastructure which values and promotes the patient perspective” (McNichol, 2012, p. 221).…”

Section: Theoretical Frame Of Referencesmentioning

confidence: 99%

Exploring health navigating design: momentary contentment in a cancer context

Sandén

Harrysson

Thulesius

et al. 2017

International Journal of Qualitative Studies on Health and Well

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Purpose: The technocratic and medicalized model of healthcare is rarely optimal for patients. By connecting two different studies we explore the possibilities of increasing quality of life in cancer care. Methods: The first study captures survival strategies in a historically isolated Arctic village in Norway resulting in Momentary contentment theory, which emerged from analysing four years of participant observation and interview data. The second study conceptualizes everyday life of cancer patients based on in-depth interviews with 19 cancer patients; this was conceptualized as Navigating a new life situation. Both studies used classic grounded theory methodology. The connection between the studies is based on a health design approach. Results: We found a fit between cancer patients challenging life conditions and harsh everyday life in an Arctic village. Death, treatments and dependence have become natural parts of life where the importance of creating spaces-of-moments and a Sense of Safety is imminent to well-being. While the cancer patients are in a new life situation, the Arctic people show a natural ability to handle uncertainties. Conclusion: By innovation theories connected to design thinking, Momentary contentment theory modified to fit cancer care would eventually be a way to improve cancer patients’ quality of life.

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Section: Theoretical Frame Of Referencesmentioning

confidence: 99%

Exploring health navigating design: momentary contentment in a cancer context

Sandén

Harrysson

Thulesius

et al. 2017

International Journal of Qualitative Studies on Health and Well

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show abstract

“…In healthcare, user feedback is commonly sought for the evaluation of systems. However, McNichol (2012) asserted that research agendas or system functions are usually defined without patient input. Such late involvement of patients restricts their contribution to the design, since changing directions at later stages is not usually possible (McNichol 2012).…”

Section: User-centred Design In Healthcare and Exploration Of Patient Needsmentioning

confidence: 99%

“…However, McNichol (2012) asserted that research agendas or system functions are usually defined without patient input. Such late involvement of patients restricts their contribution to the design, since changing directions at later stages is not usually possible (McNichol 2012). The identification of unmet patient needs in healthcare has often been carried out using questionnaires targeted at patients, carers and experts (Moody 2015).…”

Section: User-centred Design In Healthcare and Exploration Of Patient Needsmentioning

confidence: 99%

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Uncovering self-management needs to better design for people living with lymphoedema

et al. 2019

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This paper reports on the application of design-based tools used to uncover the needs of people living with a chronic condition. It was built on increasing rhetoric calling for greater involvement of patients in the creation of appropriate support mechanisms, and presents a means to achieve this using design approaches and tools. The paper presents the development and use of scenariobased design probes to facilitate participation of People Living with Lymphoedema (PLWL) early in the design process. Lymphoedema is a chronic condition requiring a cumbersome everyday management routine. Selfmanagement support is necessary to increase quality of life, and decrease complications and hospitalisation. However, consistent practice of selfmanagement among PLWL is low and the need to improve support is recognised. This research explored how PLWL's transitions towards becoming experts of their condition might be supported. Literature describing the lymphoedema experience was systematically investigated from a behavioural perspective to develop scenario-based probes. These probes provided rich insights by facilitating the envisioning of alternative futures to self-management support with interview participants with lymphoedema. To inform the design of better support for chronic conditions, the stages and components of behaviour change for lymphoedema self-management, and the associated support needs are presented.

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“…The health sector can beneficiate from it, once it helps in the identification of new opportunities to improve the service already existing (ELBERSE et al, 2012). McNichol (2012) states that the innovation that has its origin in the demands of the patients and it is validated and influenced by them has more chances of being successfully implanted in the health sector, suggesting the use of DT as a facilitator in the process of innovation, making the participation of many workers possible, and also suggesting the combination of this approach with others already existing to facilitate the divergent thought.…”

Section: The Design Thinking Applied To the Health Sectormentioning

confidence: 99%

Design thinking applied to the health sector: A case study in a Brazilian hospital

Luisa¹,

Santos²,

Luisa³

et al. 2014

PMD

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Being innovative is an important feature for companies that wish to be competitive and survive in the marketplace. However, there are different paths that could lead to innovation and different approaches that emerge with the intention to help companies innovate. Design Thinking is one of these approaches. It proposes an innovation process centered on the user that can be applied to a wide array of contexts. This study aims to describe the application of Design Thinking in the health sector, report the experience gained, and analyze the results. Initially, the literature on the subject was reviewed, including the main models of Design Thinking in Brazil and other countries. The approach was applied to the hemodialysis unit of a hospital in Belo Horizonte, Brazil. The main goal was to innovate and improve the experience of patients in their first week of hemodialysis sessions. Finally, the results were analyzed, a contrast between what was planned and what was actually done was studied, and a comparison between the literature and the practice was established. The study issue is fairly recent and there were not many cases for comparison. In this particular project, it was not possible to prove that the approach improved the experience of hospital patients.

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Patient-led innovation in healthcare: The value of the ‘user’ perspective

Cited by 18 publications

References 11 publications

Exploring health navigating design: momentary contentment in a cancer context

Exploring health navigating design: momentary contentment in a cancer context

Uncovering self-management needs to better design for people living with lymphoedema

Design thinking applied to the health sector: A case study in a Brazilian hospital

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