Purpose : In this qualitative interview study we investigated the experiences of family members to cancer patients. Our objective was to explore and to differentiate their needs from the needs of cancer patients. Methods : Five focus groups and six individual narrative interviews with 17 family members to cancer patients in Sweden were conducted and compared with 19 cancer patient interviews. Our analysis was inspired by classic grounded theory. Results : Family members to cancer patients expressed own morbidity connected to high stress levels and difficulties in recognizing own stress due to ongoing comparisons with the cancer patient. Family members were trapped in a momentary terror-like situation where they became their sick relative’s safety net. A percieved inability to improve their loved one’s well being contributed to a feeling of guilt. The longing for it all to end was encumbered with shame since the end included possible death. Conclusions : By recognizing cancer as a disease striking both body and relationships, family members are given precedence over their own struggles, differentiated from the patient’s experiences. We define differences in needs between cancer patients and family members. Family members to cancer patients may be supported in developing balancing strategies towards less stress, increased safety and moments of contentment.
Purpose: The technocratic and medicalized model of healthcare is rarely optimal for patients. By connecting two different studies we explore the possibilities of increasing quality of life in cancer care. Methods: The first study captures survival strategies in a historically isolated Arctic village in Norway resulting in Momentary contentment theory, which emerged from analysing four years of participant observation and interview data. The second study conceptualizes everyday life of cancer patients based on in-depth interviews with 19 cancer patients; this was conceptualized as Navigating a new life situation. Both studies used classic grounded theory methodology. The connection between the studies is based on a health design approach. Results: We found a fit between cancer patients challenging life conditions and harsh everyday life in an Arctic village. Death, treatments and dependence have become natural parts of life where the importance of creating spaces-of-moments and a Sense of Safety is imminent to well-being. While the cancer patients are in a new life situation, the Arctic people show a natural ability to handle uncertainties. Conclusion: By innovation theories connected to design thinking, Momentary contentment theory modified to fit cancer care would eventually be a way to improve cancer patients’ quality of life.
Migrants as a group are recognised as being at risk of receiving low retirement pensions. Income over a lifetime is the principle for calculating pension rights. We have interviewed a group of migrants about their retirement preparations. Our results show that there are obstacles that obstruct migrants from entering the Swedish labour market, which will greatly influence future pension rights. There are various lock-in effects that isolate migrants from the labour market and thus affect their present and future financial situation. Examples are labour market policy activities and that the minimum level pensions have mobility restrictions. These trajectories are set in perspective to Nancy Fraser's reasoning on justice in a transnational setting and Yeheskel Hasenfeld's reflections on people processing. An important implication from our findings is the need to explore ways to include a group that is currently excluded from the labour market, hence adequate retirement income protection.
Bland vita, svarta och grå "svanar" i det reformerade svenska pensionssystemet Lars Harrysson & Erika Werner sammandrag: Det reformerade allmänna svenska pensionssystemet har hyllats av många, inte minst av dem som deltagit i själva utarbetandet av systemet, men hur upp levs några av de mer grundläggande antagandena bakom reformen av dem det avser att ge ekonomiskt skydd åt på ålderdomen? Genom ett omfattande djupintervjumaterial visar Lars Harrysson och Erika Werner att det finns såväl stöd som brist på det samma för dessa antaganden. Bland annat på frågorna om viljan och förmågan att välja själv bland pensionsfonder, och om en adekvat pension kan förväntas, ges övervägande ett ganska svagt stöd, men det finns också tydliga undantag. Mycket talar för att lovsången till pen sionssystemet bör tystna, åtminstone till hur utformningen av systemet ser ut i dag, inte till reformen i sig. Den var nödvändig.
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