Patient Feedback on Research Studies: How to Interpret Feedback from the ‘Aware’ Patient?

Gleason, Kelly; Han, Hae Ra

doi:10.1007/s40271-020-00469-w

Cited by 2 publications

(4 citation statements)

References 6 publications

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“…Moreover, our findings indicate that patients may face difficulties raising relational discontinuity with their providers. Accordingly, the role of providers may be to actively seek patient feedback, put the subject of relational continuity explicitly on the agenda with patients and develop more positive and sustainable relationships with their patients [ 46 , 47 ].…”

Section: Discussionmentioning

confidence: 99%

Dealing with Discontinuity in Cancer Care Trajectories: Patients’ Solutions

Vermond

Habhoubi

Groot

et al. 2021

Patient

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Introduction Patients with cancer require specialized care from different care providers, challenging continuity of care in terms of information, relationships, and/or management. The recognition of discontinuity of care has led to different initiatives by the healthcare system over the years. Yet, making use of the theory on boundary objects and brokers, this research explores the active role of patients themselves in resolving discontinuity along their care trajectories. Methods Semi-structured interviews were conducted with 33 patients to unravel the discontinuities that they experience and their attempts to resolve these. Interview data were analyzed using directed-content analysis informed by concepts from boundary crossing literature (i.e., data were searched for potential boundary objects and brokers). Results To re-establish continuity of care, patients actively use the objects and people provided by the healthcare system when these meet their needs. Patients also introduce own objects and people into the care trajectory. As such, information and management discontinuity can typically be resolved. Relational continuity appears to be more difficult to resolve, in some cases leaving patients to take drastic measures, such as changing care providers. Discussion The use of boundary crossing theory in improving care from a patient perspective is relatively novel. When patients and providers together address the objects and people that support establishing continuity of care, a continuous care process may be encouraged. We advocate an integrated approach, rather than provider or healthcare system initiatives exclusively, to patient care and continuity.Debbie Vermond and Souad el Habhoubi were shared first authorship.

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Section: Discussionmentioning

confidence: 99%

Dealing with Discontinuity in Cancer Care Trajectories: Patients’ Solutions

Vermond

Habhoubi

Groot

et al. 2021

Patient

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“…Yet, our findings indicate that patients may face difficulties to raise relational discontinuity towards their providers. Accordingly, the role of providers may be to actively seek patient feedback, put the subject of relational continuity explicitly on the agenda with patients and develop more positive and sustainable relationships with their patients 46,47 .…”

Section: Discussionmentioning

confidence: 99%

“…One way to utilize CHAT is to identify structural tensions (contradictions) within and between different activity systems (e.g. from healthcare professionals and patients), as there is emerging evidence that it is by overcoming contradictions that development occurs [45][46][47] .…”

Section: Methodological Concepts To Analyse Collaboration: Sna and Chatmentioning

confidence: 99%

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Towards learning healthcare systems

Vermond¹

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The complex balance between scientific evidence, clinical expertise and the patient’s experience makes healthcare systems prone to inefficiency and fragmentation. This sparks the interest into a care system that aligns the input from researchers providing scientific evidence, healthcare professionals building their clinical expertise on that, and patients experiencing outcomes: a Learning Healthcare System (LHS). Yet, to build such a system requires insight into the role of, and interplay between, researchers, healthcare professionals and patients. In the first part of this thesis, we zoom in on the role of researchers. Using a Social Network Analysis (SNA) perspective, we explore with whom they collaborate, how, and why. The second part of this thesis focuses on the role of healthcare professionals and patients. We assess how the process of collaboration between them unfolds from a Cultural Historical Activity Theory (CHAT) perspective. We conclude that combining different units of analysis (researchers, healthcare professionals and patients) and theoretical frameworks (e.g. SNA and CHAT) is necessary to understand and develop a complex system as the LHS. We should increasingly think in, design and invest in healthcare networks and research communities – and, essentially, include herein the patient perspective as one on which developments and changes are based.

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Patient Feedback on Research Studies: How to Interpret Feedback from the ‘Aware’ Patient?

Cited by 2 publications

References 6 publications

Dealing with Discontinuity in Cancer Care Trajectories: Patients’ Solutions

Dealing with Discontinuity in Cancer Care Trajectories: Patients’ Solutions

Towards learning healthcare systems

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