Patient expectations and preferences for follow-up after treatment for lung cancer: A pilot study

Krishnasamy, Meinir; Ugalde, Anna; Carey, Mariko; Duffy, Mary E.; Dryden, Tracey

doi:10.1016/j.ejon.2010.01.002

Cited by 9 publications

(29 citation statements)

References 17 publications

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“…These include a single point of contact to provide timely advice with regard to changing symptom profiles or severity that can help prevent unnecessary emergency department presentations 105,106 ; interventions that address anxiety, vulnerability, and uncertainty, 107 particularly when patients are away from regular hospital contact 108 ; service models that offer home-based and remote monitoring 100 ; early integration of palliative care, 109 timely provision of information to general practitioners 110 and importantly, models of service delivery that attend to the needs of informal caregivers to enable them to continue caring for and optimizing supportive care outcome of patients as well as contributing to better caregiver psychological outcomes into bereavement. 111 Nurse-led and shared care models of service delivery are acceptable to patients with LC 105 . Studies rigorously testing web-based or ehealth technologies to ensure equity of access to evidence-based services for patients with LC, irrespective of where they live, are urgently needed.…”

Section: Service Provision and Models Of Supportive Care In Patients mentioning

confidence: 99%

Supportive Care in Lung Cancer: Milestones Over the Past 40 Years

Molassiotis

Uyterlinde

Hollen

et al. 2015

Journal of Thoracic Oncology

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The evolution of supportive care in lung cancer (LC) is the focus of this article, which aims to present an overall picture of the developments in the field, highlight milestones over the past four decades, and provide directions for future research and practice. Although in the 1970s this study was minimal, from the 1980s onwards, there was an expansion of the range of topics covered in the literature, reflecting the importance of supportive care to clinical practice. These areas include the identification of supportive care needs in LC, symptoms and symptom management, psychosocial aspects and coping with LC (including support of caregivers), quality of life issues and the development and testing of patient-reported outcomes, the option of best supportive care versus treatment, smoking cessation before and after diagnosis of LC, and service delivery models. This article celebrates the evolution of supportive LC care over the past 40 years alongside recognizing that more work needs to be done in the future and new research foci need to be developed to meet the current needs of patients with LC. The role and the continuous efforts of the International Association of the Study of Lung Cancer, including the sixteenth World Conference on Lung Cancer in 2015 to meet this goal, will be crucial and strategic in the future.

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Section: Service Provision and Models Of Supportive Care In Patients mentioning

confidence: 99%

Supportive Care in Lung Cancer: Milestones Over the Past 40 Years

Molassiotis

Uyterlinde

Hollen

et al. 2015

Journal of Thoracic Oncology

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“…Nurse‐led clinics and advanced practice seems acceptable to patients with cancer (Krishnasamy et al., 2011). To address clinical demands, nurses, working in partnership with physicians, may select a group of patients that can be seen independently within a nurse‐led clinic or nurse‐led advanced practice setting, thus easing the pressure within medical clinics (Blakely & Cope, 2015).…”

Section: Introductionmentioning

confidence: 99%

Impact of advanced nursing practice through nurse‐led clinics in the care of cancer patients: A scoping review

2020

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Objective This scoping review aims at exploring the effectiveness of nurse‐led advanced practice for patients with cancer. Methods This review followed the PRISMA extension for scoping reviews. Randomised controlled trials on cancer nurse‐led clinics for patient outcomes, costs, service utilisation and other outcomes were included. Databases such as MEDLINE, CENTRAL, CINAHL, EMBASE and PsychINFO were searched based on MeSH terms. Thematic analysis was used to synthesise results of the included studies. Results Seventeen articles were included, published between 2001 and 2019. There were methodological shortcomings with a number of the studies reviewed. Five themes were identified including (1) rationale for developing nurse‐led clinics, (2) mode of delivery of nurse‐led clinics, (3) the content of nurse‐led clinics, (4) exploring patient outcomes and (5) satisfaction with nurse‐led clinics. Conclusions The results support the effectiveness of nurse‐led clinics in improving self‐reported responses such as distress levels, satisfaction, quality of life, depressive symptoms, concerns and vomiting among cancer patients. Following a sound protocol for both the study and the reporting is recommended, and future studies should focus more on costs and effectiveness of different models of care administered by advanced practice nurses. Effectiveness of nurse‐led clinics needs further evaluation with stronger trials and wider focus on nursing‐sensitive clinical outcomes and costs.

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“…Ten studies (Gonzalez & Jacobsen, 2012;Kenny et al, 2008;Krishnasamy, Ugalde, Carey, Duffy, & Dryden, 2011;Liao et al, 2011;Mulcare et al, 2011;Okuyama et al, 2008 (Liao et al, 2011;Sanders et al, 2010;Ugalde et al, 2012), depressive symptoms (Gonzalez & Jacobsen, 2012) and psychosocial distress (Steinberg et al, 2009) than in people diagnosed with other cancers. Patients with high unmet needs have also reported poorer physical functioning, greater symptom burden, lower levels of satisfaction with health care and higher levels of intrusive thoughts about lung cancer (Sanders et al, 2010).…”

Section: Gap 6: Psychosocial Needs Are Unmetmentioning

confidence: 99%

“…Patients with high unmet needs have also reported poorer physical functioning, greater symptom burden, lower levels of satisfaction with health care and higher levels of intrusive thoughts about lung cancer (Sanders et al, 2010). Australian data show that lung cancer patients need more information about their disease (Mulcare et al, 2011), including quality of life outcomes after surgery (Kenny et al, 2008) and follow-up (Krishnasamy et al, 2011), while Japanese lung cancer patients express hesitation to report emotional distress to their treating clinician (Okuyama et al, 2008). A systematic review of non-invasive interventions in lung cancer has shown that nursing interventions to manage symptoms and psychological distress as well as breathlessness are effective but are not routinely implemented into practice (Rueda et al, 2011).…”

Section: Gap 6: Psychosocial Needs Are Unmetmentioning

confidence: 99%

“…Kenny et al, 2008;Krishnasamy, Ugalde, Carey, Duffy, & Dryden, 2011;Liao et al, 2011;Mulcare et al, 2011;Okuyama et al, 2008;Rueda, Solà, & Pascual, & Subirana, 2011;Sanders, Bantum, Owen, Thornton, & Stanton, 2010;Steinberg et al, 2009;Ugalde, Aranda, Krishnasamy, Ball, & Schofield, 2012) addressed this gap. Australian and UK guidelines address the psychosocial treatment of depression, anxiety, fatigue and pain, and quality of life in lung cancer patients (Cancer Council Australia Lung Cancer Guidelines Working Party, 2012; National Collaborating Centre for Cancer, 2011).…”

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Evidence-practice gaps in lung cancer: A scoping review

et al. 2016

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Lung cancer is a significant international health problem. Aligning clinical practice with evidence-based guideline recommendations has the potential to improve patient outcomes. This scoping review describes evidence-practice gaps across the diagnostic and management care pathway for lung cancer. We conducted searches of online databases Medline, PsychInfo, Cinahl and the Cochrane Library to identify studies published between 2008 and 2012. Of 614 articles screened, 65 met inclusion criteria. We identified seven evidence-practice gaps: (1) delays in timely diagnosis and referral; (2) curative and (3) palliative treatments are under-utilised; (4) older age and co-morbidities influence the use of treatments; (5) the benefits of multidisciplinary team review are not available to all lung cancer patients; (6) psychosocial needs are unmet; and (7) early referral to palliative care services is under-utilised. The scoping review highlighted three key messages: (1) there are significant challenges in the timely diagnosis and referral of lung cancer; (2) curative and palliative treatments, psychosocial support and palliative care are under-utilised in lung cancer management; and (3) variations in treatment utilisation appear to be associated with non-disease factors such as patient characteristics, provider practices and the organisation of health care services. Future research should focus on designing interventions to overcome variations in care.

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Patient expectations and preferences for follow-up after treatment for lung cancer: A pilot study

Cited by 9 publications

References 17 publications

Supportive Care in Lung Cancer: Milestones Over the Past 40 Years

Supportive Care in Lung Cancer: Milestones Over the Past 40 Years

Impact of advanced nursing practice through nurse‐led clinics in the care of cancer patients: A scoping review

Evidence-practice gaps in lung cancer: A scoping review

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