Patient empowerment, patient participation and patient-centeredness in hospital care: A concept analysis based on a literature review

Castro, Eva Marie; Regenmortel, Tine Van; Vanhaecht, Kris; Sermeus, Walter; Hecke, Ann Van

doi:10.1016/j.pec.2016.07.026

Cited by 687 publications

(805 citation statements)

References 89 publications

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“…A number of studies have shown that user involvement has potential benefits in changing health-related behaviours, empowering citizens to take greater responsibility for their own health, controlling health costs, improving the quality of health care provision and increasing patients’ satisfaction and adherence to treatment (Angel & Frederiksen, 2015; Castro, Van Regenmortel, Vanhaecht, Sermeus, & Van Hecke, 2016; Phillips, Street, & Haesler, 2016; Williamson, 2014). Service user involvement encompasses involvement at an individual level, such as in decision-making regarding individual treatment, or at an organizational level in the development of health care services and policy (Rise & Steinsbekk, 2016; Snyder & Engström, 2016; Tritter, 2009).…”

Section: Introductionmentioning

confidence: 99%

Individual user involvement at Healthy Life Centres: a qualitative study exploring the perspective of health professionals

Sagsveen

Rise

Grønning

et al. 2018

International Journal of Qualitative Studies on Health and Well

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The aim of this study was to explore how professionals experience user involvement at an individual level and how they describe involving users at Healthy Life Centres. Four focus group interviews were conducted with a total of 23 professionals. Data were analysed using systematic text condensation. Four themes were identified: (1) Involving users through motivational interviewing; (2) Building a good and trustful relation; (3) Assessing and adjusting to the user’s needs and life situation; and(4) Strengthening the user’s ownership and participation in the lifestyle change process. Motivational interviewing was described by the professionals as a way to induce and ensure user involvement. However, seeing motivational interviewing and user involvement as the same concept might reduce user involvement from being a goal in itself and evolve into a means of achieving lifestyle changes. The professionals might be facing opposing discourses in their practice and a dilemma of promoting autonomy and involvement and at the same time promoting change in a predefined direction. Greater emphasis should thus be put on systematic reflection among professionals about what user involvement implies in the local Healthy Life Centre context and in each user’s situation. Abbreviations: HLC: Healthy Life Centre; MI: Motivational Interviewing; NCD: Non-communicable diseases; STC: Systematic Text Condensation. SDT: Self-determination theory

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Section: Introductionmentioning

confidence: 99%

Individual user involvement at Healthy Life Centres: a qualitative study exploring the perspective of health professionals

Sagsveen

Rise

Grønning

et al. 2018

International Journal of Qualitative Studies on Health and Well

View full text Add to dashboard Cite

show abstract

Section: Introductionmentioning

confidence: 99%

“…With its roots in community psychology, empowerment originally was defined as “the mechanism by which people, organizations, and communities gain mastery over their lives.”11 The topical nature and the extensive (mis)use of empowerment in health care has led to a lack of clarity in regard to its definition and measurement 12. For example, empowerment can be viewed as a process versus an outcome, and on an individual versus collective level 12, 13, 14. For the current study, we used the construct of psychological empowerment of Zimmerman15 that views empowerment as an outcome measure on the level of the individual patient: “psychological empowerment is a feeling of control, a critical awareness of one's environment and active engagement in it.”15 In accordance with a recent review on measuring and defining empowerment in patients with cancer,16 Zimmerman states that empowerment reflects a broad construct and comprehends intrapersonal, interactional, and behavioral components 15.…”

Section: Introductionmentioning

confidence: 99%

Empowerment in adolescents and young adults with cancer: Relationship with health‐related quality of life

Kaal

Husson

Duivenboden³

et al. 2017

Cancer

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BACKGROUNDThe difficulties adolescents and young adults (AYAs) encounter during a cancer experience may result in a reduction in or absence of empowerment. The aims of the current study were to assess levels of empowerment and associated (demographic, clinical, or psychological) factors and examine the association between empowerment and health‐related quality of life (HRQOL) among AYA patients with cancer.METHODSPatients aged 18 to 35 years at time of cancer diagnosis and who were seen by 1 of the members of the specialized multidisciplinary AYA team of the Radboud University Medical Center were invited to complete questionnaires regarding empowerment; HRQOL; and sociodemographic, clinical, and psychological characteristics (autonomy, coping, unmet social support needs, and psychological distress).RESULTSA total of 83 AYA patients completed the questionnaires. The mean age of the participants at the time of diagnosis was 27.5 years. The vast majority had been treated with chemotherapy (86%), had a more advanced stage of disease, and had completed treatment at the time of participation (74%). The mean empowerment level was 154.1 (standard deviation, 17.8) with a range of 114 to 200. Multivariate analysis demonstrated that the autonomy subscales of self‐awareness (β = .35), capacity for managing new situations (β = .19), and social support (β = .35) were found to be positively associated with empowerment. Coping difficulties (β = ‐.19) were found to be negatively associated with empowerment. Empowerment was independently associated with physical (β = .31), psychological (β = .50), social (β = .39), religious (β = .33), and total HRQOL (β = .52; all P<.01).CONCLUSIONSLow levels of empowerment were associated with low levels of autonomy and social support, female sex, and coping difficulties among AYA patients with cancer. Recognizing these patients as candidates for empowerment interventions ultimately could help to improve HRQOL in late adolescence and young adulthood. Cancer 2017;123:4039‐47. © 2017 The Authors. Cancer published by Wiley Periodicals, Inc. on behalf of American Cancer Society. This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

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“…Integral to this development are the strategies employed by healthcare professionals to engage, support and empower patients to have a central role in improving health outcomes, quality of life, patient security and reduced costs in health services (Castro, Van Regenmortel, Vanhaecht, Sermeus, & Van Hecke, 2016; Coulter, 2011). Patient participation is one of the many concepts used to describe this trend.…”

Section: Introductionmentioning

confidence: 99%

“…Patient participation is one of the many concepts used to describe this trend. In this study, the term is understood as proposed by Castro et al (2016): “a patient’s right and opportunities to influence and engage in the decision making about his own care through a dialogue attuned to his preferences, potential and a combination of his experiential and the professional’s expert knowledge” (p. 1929). For patients, this prepares the ground for active participation in self-management of their condition (Coulter, 2011).…”

Section: Introductionmentioning

confidence: 99%

The experience of being a participant in one’s own care at discharge and at home, following a severe acute exacerbation in chronic obstructive pulmonary disease: a longitudinal study

Andersen

Thomsen

Poul

et al. 2017

International Journal of Qualitative Studies on Health and Well

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Purpose: In healthcare related to hospital discharge and follow-up, it is acknowledged that patient participation can strengthen self-management in patients with chronic obstructive pulmonary disease. However, the meaning of participation in care following a severe acute exacerbation is less described. Therefore, the aim of this part of a larger study was to explore patients’ experiences of participating in their care around discharge and in their subsequent day-to-day care at home. Method: The study was designed as a qualitative, longitudinal study. Data were collected by repeated participant observations and in-depth interviews with 15 patients within a period of 18 months post-discharge. A phenomenological-hermeneutic approach was used to interpret the data. Results: Before discharge, the patients struggled to regain a sense of control in their efforts to build up strength, and acquire sufficient clarity and confidence to face self-management at home. At home, the patients strived to comply with advice and encouragement in a struggle to stay motivated and confident, and to ask for help. Conclusions: With more knowledge about patients’ participation in care, healthcare professionals can encounter patients in ways that are sensitive to their specific care and support needs and, thereby, contribute to the promotion of patients’ health and well‐being.

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Patient empowerment, patient participation and patient-centeredness in hospital care: A concept analysis based on a literature review

Cited by 687 publications

References 89 publications

Individual user involvement at Healthy Life Centres: a qualitative study exploring the perspective of health professionals

Individual user involvement at Healthy Life Centres: a qualitative study exploring the perspective of health professionals

Empowerment in adolescents and young adults with cancer: Relationship with health‐related quality of life

The experience of being a participant in one’s own care at discharge and at home, following a severe acute exacerbation in chronic obstructive pulmonary disease: a longitudinal study

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