Participatory Exploration of Factors Influencing the Health of People With Intellectual Disabilities in an Urban District: A Photovoice Study

Allweiss, Theresa; Perowanowitsch, Merlin; Burtscher, Reinhard; Wright, Michael T.

doi:10.17501/icoph.2017.3228

Cited by 2 publications

(5 citation statements)

References 13 publications

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“…This could have reduced the support and a possible influence by external persons when taking photos [ 51 ]. Joint “neighborhood walks” through a district of Berlin would probably have been helpful as a first step to take pictures and try out the cameras [ 66 ]. In this study, the co-researchers not only had hemiparesis, which made it difficult for them to handle the cameras or smartphones, but they were also on the road with a motorized assistive device, which is controlled by the active hand.…”

Section: Discussionmentioning

confidence: 99%

“…TB explained her project idea and answered questions and concerns that potential participants might have had. Custom-made information sheets on participatory research and photovoice were used to clarify potential concerns, inspired by a photovoice study with people with intellectual disabilities [ 66 ]. Upon written informed consent, a brief questionnaire on demographic data (e.g., living and working situation) and mobility (e.g., assistive device use inside and outside the home) was filled out together.…”

Section: Methodsmentioning

confidence: 99%

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“Back into Life—With a Power Wheelchair”: Learning from People with Severe Stroke through a Participatory Photovoice Study in a Metropolitan Area in Germany

Böttger

Dennhardt

Knape³

et al. 2022

IJERPH

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Severe stroke leads to permanent changes in everyday life. Many stroke survivors depend on support in community mobility (CM). This leads to restrictions and limited social participation. A power wheelchair (PWC) can enable independent CM and reduce such restrictions. This participatory study focused on how people with severe stroke experience their CM in a PWC in Berlin/Germany and what changes they want to initiate. A research team of five severe stroke survivors and two occupational therapists examined the question using photovoice. Stroke survivors took photos of their environment, presented, discussed, and analyzed them at group meetings to identify themes, and disseminated their findings at exhibitions and congresses. The photos emphasize the significance of and unique relationship to the PWC for the self-determined expression of personal freedom. As a complex, individualized construct, CM requires an accessible environment and diverse planning strategies by PWC users to arrive at their destination and overcome suddenly occurring obstacles. Desired changes stress CM independent of external help, increased social esteem, and active involvement in the provision of assistive devices. Voices of severe stroke survivors need to be heard more in healthcare and research to ensure the possibility of equal social participation.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

“Back into Life—With a Power Wheelchair”: Learning from People with Severe Stroke through a Participatory Photovoice Study in a Metropolitan Area in Germany

Böttger

Dennhardt

Knape³

et al. 2022

IJERPH

View full text Add to dashboard Cite

show abstract

“…People with profound intellectual and multiple disabilities (PIMD) are considered to be particularly vulnerable, especially regarding their physical and mental health [ 1 ]. However, since they typically do not communicate verbally, their health-related needs, demands and questions often remain unheard—also in health literacy research.…”

Section: Introductionmentioning

confidence: 99%

“…In addition, health impairments are often compounded: “Studies, mainly from high income countries in Europe, North America, and Australia, indicate that in comparison to the general population people with ID are more likely to suffer from poor physical (…) and mental health (…), and that their life expectancy tends to be lower (…).” [ 1 ] What is described here for people with intellectual disability (ID) applies equally to people with PIMD. It can be assumed that these potential health challenges are much more profound, because people in this group are confronted with multiple medical conditions due to frequently occurring neurological and physical-motor impairments as well as other impairments that are usually syndrome-specific.…”

Section: Introductionmentioning

confidence: 99%

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Recognising Basic Health Literacy Capabilities: An Explorative Study on the Relevance of Health-Related Information in the Support of People with Profound Intellectual and Multiple Disabilities

Dins

Keeley

2022

IJERPH

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Background: People with profound intellectual disabilities represent a vulnerable and heterogeneous population whose health-related needs and questions often remain unheard. One reason for this is that they are usually unable to participate in verbal communication. However, there is also a lack of suitable approaches to communicate health-related information to them according to their capabilities. The research presented in this paper addresses this gap. Methods: Following grounded theory methodology, we used a multimethod approach. Based on a theoretical analysis, a Delphi study (n = 14) was conducted as a starting point to map the research field. In a second step, these findings were incorporated into an online survey targeting disability care professionals (n = 111). Three field studies supplemented the data, encompassing a variety of ethnographic methods. Results: People with PIMD have basic health-related capabilities that can improve their health literacy. Nevertheless, their support environments have to take over many health literacy-related requirements by proxy or substitution. One of the most important tasks is to engage health information in an individualised way. Conclusions: The findings underline the importance of focusing on more basic capabilities and intersubjective approaches in health literacy research and practice, especially regarding new perspectives on the inclusion of previously marginalised populations (such as people with PIMD).

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Participatory Exploration of Factors Influencing the Health of People With Intellectual Disabilities in an Urban District: A Photovoice Study

Cited by 2 publications

References 13 publications

“Back into Life—With a Power Wheelchair”: Learning from People with Severe Stroke through a Participatory Photovoice Study in a Metropolitan Area in Germany

“Back into Life—With a Power Wheelchair”: Learning from People with Severe Stroke through a Participatory Photovoice Study in a Metropolitan Area in Germany

Recognising Basic Health Literacy Capabilities: An Explorative Study on the Relevance of Health-Related Information in the Support of People with Profound Intellectual and Multiple Disabilities

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