Participation in People Living With Spinal Cord Injury in Switzerland: Degree and Associated Factors

Gross-Hemmi, Mirja; Post, Marcel W M; Bienert, Stefanie; Chamberlain, Jonviea D; Scheel‐Sailer, Anke; Weiß, Annette; Brinkhof, Martin W. G.; Jordan, Xavier; Léger, Bertrand; Baumberger, Michael; Gmünder, Hans Peter; Curt, Armin; Schubert, Martin; Hund-Georgiadis, Margret; Hug, Kerstin; Troger, Thomas; Joggi, Daniel; Landolt, Hardy; Münzel, Nadja; Brach, Mirjam; Stucki, Gerold; Brinkhof, Martin W. G.; Thyrian, Christine

doi:10.1016/j.apmr.2019.03.018

Cited by 17 publications

(16 citation statements)

References 53 publications

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“…The high impact of the level of education shown by our data also fits in well with a high level of education that is clearly associated with a higher level of employment. Various studies have confirmed the high correlation of education to participation and working life [11].…”

Section: Discussionmentioning

confidence: 93%

“…Whether an existing lesion was complete or incomplete, however, did not have a statistically significant influence in our results, which is unexpected given the fact that research in other countries had shown the severity of SCI as a negative predictor. Also, other factors like older age, being female [11] and ethnicity [12] were shown to be an unchangeable negative predictor for a return to working life.…”

Section: Discussionmentioning

confidence: 98%

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Promoting factors and barriers to participation in working life for people with spinal cord injury

Sturm

Bökel

Korallus

et al. 2020

J Occup Med Toxicol

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Background It is still difficult for people with physical impairments to be and remain equally integrated into the labour market. For this reason, the question of occupational activity has explicitly been examined by the German Spinal Cord Injury Survey (GerSCI) in order to identify barriers and facilitators for labour market participation. Methods Cross-sectional explorative observational study. The GerSCI survey is the German part of the International Spinal Cord Injury Survey (InSCI). Using survey data from persons recruited at eight specialised SCI-centres in Germany. Participants: 1.479 persons with Spinal Cord Injury (SCI) aged 18 years and older. Results In a self-disclosure questionnaire, persons with SCI show themselves as a professionally well-educated and highly motivated group with most of them aiming at gainful employment and considering themselves fit for work. Many changeable and non-changeable factors have been found, which showed a high correlation with the return to work after acquired SCI. Conclusion Education and pain belong to the most critical factors and thereby possible approaches to increase the level of employment, which is essential and highly relevant not only for earning money but also for self-confidence and social integration. SCI has many dimensions in itself; support also should be multidimensional. Study results might help to improve participation.

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Section: Discussionmentioning

confidence: 93%

Section: Discussionmentioning

confidence: 98%

Promoting factors and barriers to participation in working life for people with spinal cord injury

Sturm

Bökel

Korallus

et al. 2020

J Occup Med Toxicol

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show abstract

“…Gender differences in the vulnerability to discrimination might explain the fact that women were more often singles than men, as women living with disabilities are particularly prone to negative attitudes regarding their sexuality and ability to meet role demands of motherhood (double discrimination) [ 5 , 29 ]. Different patterns in participation on other social activities between males and females may additionally explain gender differences in the partnership status, as findings from a Swiss SCI sample demonstrated that females generally reported lower participation frequency and greater restrictions than males [ 30 ], thus limiting women’s opportunities to meet potential partners. Our results that people with higher income, paid work, and less severe injuries were more often in a partnership confirm previous findings from disability studies [ 1 , 6 ].…”

Section: Discussionmentioning

confidence: 99%

“…Our results that people with higher income, paid work, and less severe injuries were more often in a partnership confirm previous findings from disability studies [ 1 , 6 ]. Having paid work and being less severely injured generally goes along with higher functional capacity, fewer participation restrictions [ 30 ], and less stigma in interactions with others, which is likely to increase the possibilities to meet people and be recognized as a potentially attractive partner. Unemployment has been linked to lower marriage rates and higher divorce rates in general population studies [ 31 , 32 ]; the increased psychosocial burden and financial restrictions resulting from unemployment can put a strain on partnerships.…”

Section: Discussionmentioning

confidence: 99%

Partnership Status and Living Situation in Persons Experiencing Physical Disability in 22 Countries: Are There Patterns According to Individual and Country-Level Characteristics?

Fekete

Arora

Reinhardt

et al. 2020

IJERPH

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Persons experiencing disabilities often face difficulties to establish and maintain intimate partnerships and the decision whether to live alone or with others is often not their own to make. This study investigates whether individual and country-level characteristics predict the partnership status and the living situation of persons with spinal cord injury (SCI) from 22 countries. We used data from 12,591 participants of the International SCI Community Survey (InSCI) and regressed partnership status and living situation on individual (sociodemographic and injury characteristics) and country-level characteristics (Human Development Index, HDI) using multilevel models. Females, younger persons, those with lower income, without paid work, more severe injuries, and longer time since injury were more often single. Males, older persons, those with higher income, paid work, less severe injuries, and those from countries with higher HDI more often lived alone. This study provides initial evidence for the claim that the partnership status and the living situation of people with SCI are influenced by sociodemographic and socioeconomic factors and are not merely a matter of choice, in particular for those with severe injuries.

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“…Epidemiologische Daten zu Entstehungsursachen, Lebenserwartung und Todesursachen liegen von einer monozentrischen Analyse (n = 190) vor [3,4]. Die Schweizer Paraplegiker Forschung (SPF) hat mit der Swiss Spinal Cord Injury Cohort Study 2016 u. a. Themen wie Partizipation, Umweltbarrieren, Erwerbstätigkeit und Bedarfe in der Hilfsmittelversorgung von Personen mit Querschnittlähmung in der Schweiz untersucht [5][6][7][8][9]. Mit einer Responserate von 49,3 % wurden Daten von 1549 Personen mit Querschnittlähmung in der Schweiz ausgewertet.…”

Section: Introductionunclassified

Querschnittlähmung in Deutschland – eine Befragung zur Lebens- und Versorgungssituation von Menschen mit Querschnittlähmung

Bökel¹,

Egen²,

Gütenbrunner³

et al. 2020

Rehabilitation (Stuttg)

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Zusammenfassung Ziel Im Rahmen eines global angelegten Projekts (InSCI) zum Vergleich der Lebens- und Versorgungssituation querschnittgelähmter Menschen in 21 Ländern, wurde in Deutschland eine umfassende schriftliche Datenerhebung (GerSCI) initiiert und durchgeführt. Ziel war die Erhebung belastbarer Daten als Legitimationsgrundlage gesundheitspolitischer Entscheidungen im Sinne des Learning Health Systems. Methodik Die nationale Erhebung war als prospektive Querschnittstudie angelegt. Zum Einsatz kam ein teilstandardisierter Fragebogen der sowohl schriftlich als auch online ausgefüllt werden konnte, Die Rekrutierung der Teilnehmenden erfolgte über die Krankenhausinformationssysteme von acht Spezialzentren für querschnittgelähmte Menschen. Ergebnisse Die Studienpopulation (N=1479) war im Durchschnitt 55,3 Jahre alt (SD: 14,6) und zu 72,9% männlichen Geschlechts. Die Zeit seit Lähmungseintritt betrug im Mittel 13,9 Jahre. Die Ursache der Querschnittlähmung war zu zwei Dritteln traumatisch. Das Lähmungsmuster war in 51,2% eine Paraplegie. Das am häufigsten genannte querschnittlähmungsspezifische gesundheitliche Problem war die Störung der Sexualität. Medizinische Behandlungen zu dieser Problematik wurden nur selten in Anspruch genommen. Schwerwiegende Umweltbarrieren waren die unzureichende Zugänglichkeit von Privathaushalten und öffentlichen Orten. Von den befragten Personen im erwerbsfähigen Alter waren 42,5% berufstätig und damit ca. 10% weniger als bspw. in der Schweiz. Als die 2 belastendsten Situationen im Alltag wurden das Führen intimer Beziehungen und die Nutzung öffentlicher Verkehrsmittel angegeben. Diskussion Die gesundheitlichen Probleme der betroffenen Personen sowie deren medizinische Versorgung, die Umweltbarrieren als auch die Erwerbstätigkeit und Schwierigkeiten bei Aktivitäten des täglichen Lebens werden an politische Entscheidungsträger und weitere Akteure herangetragen, um Lösungen zu erarbeiten.

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Participation in People Living With Spinal Cord Injury in Switzerland: Degree and Associated Factors

Cited by 17 publications

References 53 publications

Promoting factors and barriers to participation in working life for people with spinal cord injury

Promoting factors and barriers to participation in working life for people with spinal cord injury

Partnership Status and Living Situation in Persons Experiencing Physical Disability in 22 Countries: Are There Patterns According to Individual and Country-Level Characteristics?

Querschnittlähmung in Deutschland – eine Befragung zur Lebens- und Versorgungssituation von Menschen mit Querschnittlähmung

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