Participation in age-related activities and influence of cultural factors–comments from youth and parents of children with postnatal post infectious hemiplegia in Stockholm, Sweden

Radell, Ulrika; Tillberg, Elsa; Mattsson, Eva; Åmark, Per

doi:10.1080/09638280701403999

Cited by 6 publications

(10 citation statements)

References 10 publications

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“…Participating in leisure activities provides an opportunity for enjoyment, making new friendships, and social cohesion among children (38,46). Immigrant families, especially those raising children with disabilities, may not have a developed social network in their host countries and are at risk of becoming socially isolated (12,47). Therefore, offering activities and supporting these families to participate in activities in the local community is important (47).…”

Section: Discussionmentioning

confidence: 99%

The missing link to sustainable participation in community-based physical activity after rehabilitation: a qualitative study about experiences of immigrant parents and their children with disabilities

Arfa¹,

Solvang²,

Berg³

et al. 2020

Preprint

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Background: Children with immigrant backgrounds and disabilities have lower rates of social participation compared with their nonimmigrant counterparts. However, rehabilitation programs offer an opportunity to promote a physically active lifestyle and increase home and community participation of children with physical disabilities. The purpose of this study was to explore immigrant families’ experiences of participation and associated challenges and/or facilitators in the local community after taking part in a participation-focused rehabilitation program in Norway. By generating knowledge about immigrant families’ experiences, this study suggests how to promote sustainable participation after rehabilitation among immigrant children with disabilities.Methods: The study used a qualitative approach with semi-structured interviews to explore the experiences of immigrant parents and their children with disabilities. The interviews were analyzed using an inductive thematic analytic approach.Results: Immigrant families’ experiences of participation in the local community after rehabilitation varied. Whereas some experienced improvements in their activity and participation habits, others expressed that they reverted to their old habits. Families’ experiences showed how facing several challenges in the local community affected participation patterns among the children. The costs and lack of information, necessary skills, and local activities were among the barriers they experienced. Families’ experiences revealed that local and rehabilitation professionals were not always aware of or prepared to address the challenges faced by families trying to become physically active. Parents expressed their needs for support and continuation of services after rehabilitation for moving towards an active lifestyle. Participation patterns among children highlighted the potential role of support contacts as facilitators for participation in physical activities among the families.Conclusions: The findings reveal that continuity of services from rehabilitation centers to local communities remains a challenge despite the health authorities’ ideal of providing sustainable and continuous services after rehabilitation. Establishing an efficient collaboration between local and rehabilitation professionals with identifying potential future challenges, adjusting the interventions, clarifying roles and responsibilities, and providing supportive follow-up services may be the missing link to sustainable community-based participation.

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Section: Discussionmentioning

confidence: 99%

The missing link to sustainable participation in community-based physical activity after rehabilitation: a qualitative study about experiences of immigrant parents and their children with disabilities

Arfa¹,

Solvang²,

Berg³

et al. 2020

Preprint

View full text Add to dashboard Cite

show abstract

“…Concernant le lieu de réalisation des recherches, il apparaît que 10 se sont déroulées aux États-Unis (Tableau 1) et presque autant émanent du Royaume-Uni (n=8). Une seule étude a été menée au Canada (Pondé et Rousseau, 2013) et une autre provient de la Suède (Radell et al, 2008). Parmi les 20 publications, trois textes d'opinion comportent une recension des écrits scientifiques et des recommandations ou une présentation théorique en lien avec le thème (Rhoades, Price et Barris Perigoe, 2004 ;Welterlin et LaRue, 2007 ;Cohen, 2013) (Tableau 1).…”

Section: éTendue Des Recherches Menéesunclassified

“…L'étude de Bateson (2013) concerne des familles venues de Somalie uniquement. Six autres travaux présentent des échantillons de populations venant d'origines diverses (Amérique latine ou du Nord, Asie, Afrique, Europe ou Moyen-Orient) (Rhoades, Price et Barris Perigoe, 2004 ;Welterlin et LaRue, 2007 ;Radell et al, 2008 ;Durà-Vilà et Hodes, 2009 ;Cohen, 2013 ;Pondé et Rousseau, 2013).…”

Section: éTendue Des Recherches Menéesunclassified

“…Selon la perception de quelques parents, la gestion des besoins spéciaux de leur enfant relève de la compétence parentale de sorte qu'ils n'acceptent aucune aide extérieure Heer et al, 2012 ;Kaur-Bola et Randhawa, 2012). Le soutien est alors appréhendé de manière négative, soit parce que son utilisation entraîne un sentiment de stigmatisation ressenti par les parents (Bailey et al, 1999 ;Alvarado, 2004 ;Won, Krajicek et Lee, 2004 ;Welterlin et LaRue, 2007 ;Durà-Vilà et Hodes, 2009 ;Heer et al, 2012 ;Pondé et Rousseau, 2013), soit parce que l'aide offerte ne correspond pas à leurs attentes (Alvarado, 2004 ;Radell et al, 2008 ;Durà-Vilà et Hodes, 2009 ;Croot et al, 2012). Selon Heer et ses collaborateurs (2012), en renonçant à recevoir du soutien pour eux-mêmes, les parents chercheraient à obtenir davantage de services pour leur enfant.…”

Section: Types De Mesures De Soutienunclassified

“…Ils contribuent notamment à leur donner un espace d'expression et d'échange sur leur situation particulière (Bailey et al, 1999 ;Alvarado, 2004 ;Kramer-Roy, 2012 ;Cohen, 2013). Il arrive toutefois que ces groupes soient inaccessibles à des parents pour une raison linguistique ou parce qu'ils craignent les jugements d'autrui (Won, Krajicek et Lee, 2004 ;Radell et al, 2008).…”

Section: Facteurs Modulant Le Recours Aux Mesures De Soutienunclassified

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Les mesures de soutien privilégiées par les parents immigrants d’un enfant mineur qui présente des besoins spéciaux : une étude de la portée

Bétrisey

Tétreault

Piérart³

et al. 2015

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Dans un contexte migratoire, de nombreux défis se présentent aux parents d’un enfant ayant des besoins spéciaux. En première ligne, ils nécessitent un accès à des ressources de soutien afin de poursuivre une prise en charge optimale de l’enfant. Dans le but d’établir un état des lieux actualisé des connaissances préalables sur le recours aux services d’aide, une étude de la portée a été menée. À partir des bases de données interrogées, 20 écrits scientifiques ont été sélectionnés pour déterminer les types de services utilisés, les composantes qui modulent ce recours et l’évolution des attentes en mesures d’aide. Le soutien informationnel se révèle le plus présent dans les études. Parmi les facteurs modulant l’utilisation des ressources de soutien, les composantes communicationnelles et culturelles se distinguent par le nombre d’écrits dans lesquels elles ressortent. L’évolution du recours dans le temps reste peu documentée dans les études retenues. Le choix des parents concernant les modalités de soutien devrait être exploré davantage.In the context of immigration, there are numerous challenges facing families living with a child with special needs. First, they require access to support services in order to provide continued adequate care to the child. In order to establish an update of the background knowledge on the use of support measures, a scoping review was carried out. Twenty scientific studies were selected from database queries to determine the types of services used, the components modulating this use and the evolution of needs in assistance measures. Informational support is found to be the most present in the studies. Among the factors defining the use of support services, communication and cultural components are distinguished by the number of studies in which they stand out. According to the selected studies, there is little documentation on the evolution of assistance uptake through time. Parents’ choice of support modalities should be explored further

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Immigrant Children With Special Health Care Needs: A Review

McKay

2019

Current Problems in Pediatric and Adolescent Health Care

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Participation in age-related activities and influence of cultural factors–comments from youth and parents of children with postnatal post infectious hemiplegia in Stockholm, Sweden

Cited by 6 publications

References 10 publications

The missing link to sustainable participation in community-based physical activity after rehabilitation: a qualitative study about experiences of immigrant parents and their children with disabilities

The missing link to sustainable participation in community-based physical activity after rehabilitation: a qualitative study about experiences of immigrant parents and their children with disabilities

Les mesures de soutien privilégiées par les parents immigrants d’un enfant mineur qui présente des besoins spéciaux : une étude de la portée

Immigrant Children With Special Health Care Needs: A Review

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