Immigrant Children With Special Health Care Needs: A Review

McKay, Susan

doi:10.1016/j.cppeds.2019.01.004

Cited by 15 publications

(11 citation statements)

References 19 publications

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“…A recent review of 17 international articles revealed increased barriers to care for immigrant families of children with special healthcare needs, partly due to the difficulty in navigating a challenging and changing healthcare system [8]. A qualitative study in Canada also showed that immigrant parents of children with disabilities not only faced the same barriers as majority families but also encountered additional challenges [9].…”

Section: Introductionmentioning

confidence: 99%

“…McKay [8] noted a lack of data about best practices with regard to immigrant children with special healthcare needs. According to Fellin et al [11], formal procedures are absent for developing approaches and treatment plans based on interactions between professionals and immigrant families who have children with disabilities, despite their importance for the support of those families.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Disabled and immigrant, a double minority challenge: a qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway

Arfa

Solvang

Berg

et al. 2020

BMC Health Serv Res

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Background: Immigrants and their Norwegian-born children make up approximately 18% of the total population in Norway. While several studies have been conducted on immigrants' utilization of healthcare services, immigrant families are systematically underrepresented in international studies of children with disabilities. By focusing on experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway, this study generated knowledge of how accessible and tailored the services were from their point of view. Methods: This study took a qualitative approach, using semi-structured interviews to explore the experiences of immigrant parents of children with disabilities from non-Western countries. The interviews were transcribed, coded, and analyzed via an inductive thematic analytic approach. Results: The findings show how the "immigrant experience" influenced the way the parents looked at, experienced, and even praised the services. The parents appreciated the follow-up services provided by the pediatric rehabilitation centers, which they experienced as predictable and well-organized. While navigating the services, they experienced several challenges, including the need for information, support, and timely help. They felt exhausted because of years of struggle in the healthcare system to access the help and services they needed. They expressed how this struggle had affected their own health. The feeling of being treated differently from the majority was another challenge they experienced while navigating the services. The findings also show how parents' experiences of communication with healthcare providers were influenced not only by their own language and communication skills but also by the healthcare providers' intercultural communication skills and dominant organizational culture. Conclusions: The parents' experiences show that there is still a gap between the public ideal of equal healthcare services and the reality of the everyday lives of immigrant families of children with disabilities. By exploring immigrant parents' experiences, this study highlights the importance of mobilization at both the individual and systemic levels to fill the current gap and provide tailored and accessible services to the entire population.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Disabled and immigrant, a double minority challenge: a qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway

Arfa

Solvang

Berg

et al. 2020

BMC Health Serv Res

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“…Oft hafa þaer takmarkað félagslegt bakland og búa við tungumálahindranir og vanþekkingu á þjónustukerfunum sem aetlað er að styðja þaer. Einnig hefur verið bent á að þessi sömu þjónustukerfi hafi ekki naegilega innsýn í þarfir innflytjendafjölskyldna og taki þar af leiðandi ekki mið af þeim (Berg, 2012;Kittelsaa, 2012;Lindsay, Tétrault, Desmaris, King og Piérart, 2014;McKay, 2019). Ólík menning, fjölskylduhefðir og reynsla af opinberri þjónustu geta jafnframt ráðið miklu um það hvernig innflytjendafjölskyldur upplifa aðstaeður sínar og þörf fyrir stuðning (Berg, 2015;Fellin, King, Esses, Lindsay og Klassen, 2013;Khanlou, Haque, Sheehan og Jones, 2015;Lindsay, King, Klassen, Esses og Stachel, 2012).…”

Section: Innflytjendafjölskyldur Með Fötluð Börn: Reynsla Foreldraunclassified

“…Þjónustukerfin bjóða til daemis alls ekki alltaf upp á upplýsingar um borgaraleg réttindi eða þjónustu á tungumáli sem fjölskyldurnar skilja (Berg, 2012;Fellin o.fl., 2013;Khanlou o.fl., 2015;Kittelsaa, 2012;Lindsay o.fl., 2012;Söderström, 2014). Að auki eru hin flóknu kerfi sem aetlað er að styðja börnin og fjölskyldur þeirra mörgum mjög framandi og því skortir innflytjendur iðulega þekkingu á því hvaða stuðningur stendur þeim til boða (McKay, 2019). Til að fá tiltekna þjónustu þarf oft að fylla út flókin plögg sem ekki eru til á móðurmáli innflytjenda.…”

Section: Innflytjendafjölskyldur Og Fötluð Börnunclassified

Innflytjendafjölskyldur með fötluð börn: Reynsla foreldra

Egilson¹,

Skaptadóttir²,

Ottósdóttir³

2020

TUUOM

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Tilgangur rannsóknarinnar var að kanna hvernig innflytjendafjölskyldur sem eigafötluð börn takast á við daglegt líf hér á landi, samskipti þeirra við nærsamfélagið ogþjónustukerfin sem ætlað er að styðja fjölskyldur fatlaðra barna. Rannsóknarsniðiðvar eigindlegt og byggðist á viðtölum við foreldra og þátttökuathugunum á heimilumþeirra. Tólf innflytjendafjölskyldur tóku þátt í rannsókninni. Þær höfðu dvalið áÍslandi allt frá 18 mánuðum til 20 ára og áttu samtals 16 fötluð börn. Reynsla fólksinsvar margþætt og breytileg en staða margra fjölskyldna var erfið, þær stóðu einar oghöfðu lítið stuðningsnet. Þótt samanburðurinn við upprunalandið væri hugsanlegahagstæður gat reynst erfitt að takast á við og samþætta viðfangsefni daglegs lífs.Óvissa í húsnæðismálum, atvinnumálum og fjármálum mótaði líf margra. Tungumálakunnátta,tryggur fjárhagur, öruggt húsnæði og viðeigandi stuðningur réðmestu um það hvernig fjölskyldunum farnaðist í nýju landi. Mikilvægt er að hugaað samskiptum og upplýsingagjöf í þjónustu við innflytjendafjölskyldur með fötluðbörn og hafa menningarhæfni að leiðarljósi.

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“…The World Health Organization (WHO) (2017) recognizes that historically people with disabilities have been marginalized. When disability status is combined with other identity markers such as refugee status or ethnicity, there is an increased risk of vulnerability [King et al, 2011;McKay, 2019; United Nations High Commissioner for Refugees (UNHCR), 2021a]. Others have acknowledged that refugees with disabilities are among the most isolated and socially excluded, experience heightened risks of violence, exploitation and abuse and are the most marginalized of all displaced populations [United Nations High Refugee Commission, found that persons with disabilities in refugee and displaced persons programs experienced a lack of participation in community decision-making, stigma and discrimination of children and young persons with disabilities by their nondisabled peers, violence against persons with disabilities, including gender-based violence, lack of access to disability-specific health care and unmet basic needs among families of persons with multiple impairments.…”

Section: Introductionmentioning

confidence: 99%

A narrative inquiry into experiences of Syrian refugee families with children living with disabilities

Beka,

Caine,

Clandinin

et al. 2023

IJMHSC

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Purpose Children who are refugees and who live with disabilities are among the most at-risk groups for marginalization due to compounded disadvantages from the intersection of risk factors such as refugee status and disability status. Despite their high risk, there is no systematic data collected on this group and scant literature on the topic contributing to a feeling of invisibility. The purpose of this study is to better understand the experiences of Syrian refugee families with children living with disabilities. Design/methodology/approach The authors conducted a narrative inquiry into the experiences of two Syrian refugee families with children living with disabilities. Narrative inquiry is a way to understand experience as a storied phenomenon. Findings In attending to the families’ stories of their experiences across time, place and social contexts, two narrative threads resonated across their experiences including waiting and a struggle for agency as well as disruption and continuity. Research limitations/implications Narrative inquiry does not produce generalizable results but, rather, gives insight into the unique experiences of individuals. Originality/value To understand the complexities of the experience of a refugee family with a child living with disabilities, attending to their lived and told stories is essential.

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Immigrant Children With Special Health Care Needs: A Review

Cited by 15 publications

References 19 publications

Disabled and immigrant, a double minority challenge: a qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway

Disabled and immigrant, a double minority challenge: a qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway

Innflytjendafjölskyldur með fötluð börn: Reynsla foreldra

A narrative inquiry into experiences of Syrian refugee families with children living with disabilities

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