Parents with intellectual disability and mental health conditions: Early intervention providers’ perceptions

Edwards, Nicole Megan; Lieberman-Betz, Rebecca G.; Wiegand, Sarah

doi:10.3109/13668250.2022.2112530

Cited by 2 publications

(1 citation statement)

References 33 publications

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“…Participants all agreed on the need for increased and enhanced training for service providers, which early intervention providers themselves have recently identified as a gap [30]. Ideas Lab participants acknowledged that providers often work in contexts that complicate their efforts.…”

Section: Discussionmentioning

confidence: 99%

Mothers with Intellectual/Developmental Disabilities and Behavioral Health Conditions and Community Experts Provide Recommendations for Treatment/Services, Systems, and Research

Nicholson

Mazel

Faughnan

et al. 2023

IJERPH

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Mothers with intellectual and developmental disabilities (IDD) are vulnerable to perinatal complications and adverse outcomes. Their vulnerabilities may also be exacerbated by co-occurring behavioral health (BH) conditions. Their wellbeing may be compromised by a lack of tailored treatments or by treatments and services that are inaccessible, irrelevant, and/or ineffective. A five-session virtual Ideas Lab workshop series was implemented to bring together diverse community experts (n = 30), including mothers with IDD/BH, to discuss the experiences of mothers and set priorities for treatment/services, systems, and research. Participants completed background and evaluation surveys and brainstormed, grouped, and ranked items of importance, which fell into two broad categories: (1) cross-cutting themes drawn from lived experience with recommendations applicable to all substantive domains (i.e., accessibility, diversity, adverse experiences and trauma, and trust) and (2) substantive themes with specific recommendations for treatment/services and systems (i.e., services and supports, peer support, provider practices and training, and systems navigation/transformation). Research recommendations were generated in all discussions and emerged in relation to all themes, underscoring the importance of including mother-driven questions and priorities in research agendas and strengthening researcher training and skills to engage mothers with IDD/BH and other community members actively, and in meaningful ways.

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Section: Discussionmentioning

confidence: 99%

Mothers with Intellectual/Developmental Disabilities and Behavioral Health Conditions and Community Experts Provide Recommendations for Treatment/Services, Systems, and Research

Nicholson

Mazel

Faughnan

et al. 2023

IJERPH

View full text Add to dashboard Cite

show abstract

A Systematic Review of Which Families Are Represented in ECSE Literature

Adams,

O’Grady,

Chudzik

et al. 2024

Topics in Early Childhood Special Education

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In this systematic literature review, we examined which caregivers were represented within caregiver-focused studies in three, top-tier early childhood special education journals, Infants & Young Children, Journal of Early Intervention, and Topics in Early Childhood Special Education. The purpose of this review was to highlight where the field can shift toward a more representative and inclusive body of research-based literature and guidance for practitioners. We reviewed 115 articles. The results indicate that most studies (1) were conducted with White mothers with high-school diplomas or GEDs, (2) included an English-only or English-dominant approach with caregiver participants, and (3) had limited income data and context of the included incomes, thus informing the field that there is a need to interpret studies from a lens of who was included as well as conduct research with a more inclusive, intentional lens when seeking participants. We share specific directions for future research.

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Parents with intellectual disability and mental health conditions: Early intervention providers’ perceptions

Cited by 2 publications

References 33 publications

Mothers with Intellectual/Developmental Disabilities and Behavioral Health Conditions and Community Experts Provide Recommendations for Treatment/Services, Systems, and Research

Mothers with Intellectual/Developmental Disabilities and Behavioral Health Conditions and Community Experts Provide Recommendations for Treatment/Services, Systems, and Research

A Systematic Review of Which Families Are Represented in ECSE Literature

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