Parents’ refusal of medical treatment based on religious and/or cultural beliefs: The law, ethical principles, and clinical implications

Linnard-Palmer, Luanne; Kools, Susan

doi:10.1016/j.pedn.2004.05.014

Cited by 22 publications

(7 citation statements)

References 11 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Treatment refusal is an ‘overt refusal of a patient or his/her legal surrogate, from diagnostic, therapeutic, surgical or other health care procedures, recommended by the patient's physician.’ Patients may refuse their treatment by; not starting a procedure, discontinuing or accepting only some parts of the procedure …”

Section: Introductionmentioning

confidence: 99%

Perceived Quality of Informed Refusal Process: A Cross‐Sectional Study from Iranian Patients' Perspectives

Farzandipour¹,

Sheikhtaheri²,

Jabali³

2014

Developing World Bioethics

View full text Add to dashboard Cite

Patients have the right to refuse their treatment; however, this refusal should be informed. We evaluated the quality of the informed refusal process in Iranian hospitals from patients' viewpoints. To this end, we developed a questionnaire that covered four key aspects of the informed refusal process including; information disclosure, voluntariness, comprehension, and provider-patient relationship. A total of 284 patients who refused their treatment from 12 teaching hospitals in the Isfahan Province, Iran, were recruited and surveyed to produce a convenience sample. Patients' perceptions about the informed refusal process were scored and the mean scores of the four components were calculated. The findings showed that the practice of information disclosure (9.6 ± 6.4 out of 22 points) was perceived to be moderate, however, comprehension (2.3 ± 1.4 out of 4 points), voluntariness (8.7 ± 1.5 out of 12 points) and provider-patient relationship (10.2 ± 5.2 out of 16 points) were perceived to be relatively good. We found that patients, who refused their care before any treatment had commenced, reported a lower quality of information disclosure and voluntariness. Patients informed by nurses and those who had not had a previous related admission, reported lower scores for comprehension and relationship. In conclusion, the process of obtaining informed refusal was relatively satisfactory except for levels of information disclosure. To improve current practices, Iranian patients need to be better informed about; different treatment options, consequences of treatment refusal, costs of not continuing treatment and follow-ups after refusal. Developing more informative refusal forms is needed.

show abstract

Section: Introductionmentioning

confidence: 99%

Perceived Quality of Informed Refusal Process: A Cross‐Sectional Study from Iranian Patients' Perspectives

Farzandipour¹,

Sheikhtaheri²,

Jabali³

2014

Developing World Bioethics

View full text Add to dashboard Cite

show abstract

“…Medical care is considered one of the most basic of all human needs, and yet parents may elect to apply religious or cultural beliefs in place of ‘traditional’ medical care for their children. As memberships of religious groups that have beliefs concerning prayer and health care for children are increasing, the topic is of importance for paediatric health professionals (Linnard‐Palmer and Kools 2004). Professionals may need encouragement to engage with families around their spiritual practices to prevent further rejection of conventional medical care.…”

Section: Discussionmentioning

confidence: 99%

Faith healing in paediatrics: what do we know about its relevance to clinical practice?

Baverstock¹,

Finlay²

2011

Child

View full text Add to dashboard Cite

show abstract

“…If any doubt remains as to the autonomy of the decision, the physician can argue on the principle of Non-Malfeasance to contest a non-independent decision of the patient that would be harmful. It is to note that Witness patients are not the only religious opposition to a medical treatment [35,36].…”

Section: Ethical Aspectmentioning

confidence: 99%

Jehovah's Witnesses and transfusion: where do we stand in Europe?

Loix

Henin

Descamps

et al. 2020

ISBT Science Series

View full text Add to dashboard Cite

Transfusion refusal expressed by Jehovah's Witnesses has always been questioning for medical community. However, abundant literature exists treating about how to manage difficult medical bleeding situations in Jehovah's witnesses, there is a few information available on the legal and ethical aspects of transfusion refusal. Since 1994, Europe has putted a spotlight on patient's right. The question of patient's autonomy and consent have taken a predominant place in care. In order to summarize the actual situation in Europe, this work intends to draw a global view on legal, ethical and medical aspects of transfusion refusal expressed by Jehovah witnesses.

show abstract

Parents’ refusal of medical treatment based on religious and/or cultural beliefs: The law, ethical principles, and clinical implications

Cited by 22 publications

References 11 publications

Perceived Quality of Informed Refusal Process: A Cross‐Sectional Study from Iranian Patients' Perspectives

Perceived Quality of Informed Refusal Process: A Cross‐Sectional Study from Iranian Patients' Perspectives

Faith healing in paediatrics: what do we know about its relevance to clinical practice?

Jehovah's Witnesses and transfusion: where do we stand in Europe?

Contact Info

Product

Resources

About