Parents of children with epilepsy: Characteristics associated with high and low levels of health literacy

Tschamper, Merete Kristin; Wahl, Astrid Klopstad; Hermansen, Åsmund; Jakobsen, Rita; Larsen, Marie Hamilton

doi:10.1016/j.yebeh.2022.108658

Cited by 6 publications

(2 citation statements)

References 44 publications

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“…A similar situation holds true for Turkish teachers [13]. As in other chronic diseases, it is expected that the family, the whole society, and the patient should be health-literate in managing epilepsy [7,[14][15][16].…”

Section: Introductionmentioning

confidence: 84%

Teachers’ Negative Attitudes and Limited Health Literacy Levels as Risks for Low Awareness of Epilepsy in Turkey

Yilmazel

2023

JPMPH

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Objectives: For students with epilepsy, schools are a critical environment for managing the disease properly. This study examined awareness of epilepsy, attitudes toward epilepsy, and health literacy among school teachers in Turkey.Methods: This study was conducted in a city in Turkey with 1408 public school teachers from June 2021 to September 2021.Results: The median scores of the scales were 5, 29, and 32 for epilepsy awareness, epilepsy attitudes, and health literacy, respectively. Epilepsy awareness was higher in women, and epilepsy attitudes were more positive in women than men (p<0.05). While epilepsy awareness was higher in primary school teachers, epilepsy attitudes were more positive in secondary school teachers (p<0.05). Epilepsy awareness was lower in secondary school teachers (odds ratio [OR], 1.27; p<0.05), those who did not have an individual with epilepsy in their family/social environment (OR, 1.57; p<0.001), those who did not have a student with epilepsy in their class (OR, 1.45; p<0.05), and in those who had not witnessed an epilepsy seizure (OR,1.19; p<0.05). Compared to those with positive attitudes regarding epilepsy, epilepsy awareness was 1.36 times lower in those with negative attitudes (p<0.001). Epilepsy awareness was 1.92 times lower in those with limited health literacy than those with adequate health literacy (p<0.001).Conclusions: In this study, low epilepsy awareness, negative epilepsy attitudes, and limited health literacy were common among teachers. The findings from this study suggest that panels, workshops, and health training on epilepsy should be organized for school teachers and included at regular intervals in certified first-aid practices.

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Section: Introductionmentioning

confidence: 84%

Teachers’ Negative Attitudes and Limited Health Literacy Levels as Risks for Low Awareness of Epilepsy in Turkey

Yilmazel

2023

JPMPH

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“…Os pais desempenham um papel crucial no desfecho clínico da epilepsia dos seus filhos através de fatores como nível de escolaridade, renda e alfabetização em saúde 14,15,16 . No caso dos cuidadores do estudo, o nível de escolaridade em mais de 50% era ou ensino fundamental ou nenhuma escolaridade.…”

Section: Discussionunclassified

Factors associated to the quality of life in children with epilepsy in a national hospital in Honduras

Zúniga Gutierrez,

Flores Romero,

Cáceres

et al. 2023

Mundo Saúde

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A epilepsia representa um problema de grande escala que afeta a esfera social dos pacientes que dela sofrem. O presente estudo tem como objetivo avaliar a qualidade de vida de pacientes pediátricos com epilepsia e identificar os fatores associados à sua menor qualidade de vida. Foi realizado um estudo transversal, descritivo e analítico em pacientes com diagnóstico clínico e eletroencefalográfico de epilepsia, atendidos no ambulatório do serviço de neuropediatria do Hospital Universitário. Foi aplicado um questionário subdividido em dados da criança, dados dos pais ou cuidador, tipo de epilepsia, tratamento e Escala de Qualidade de Vida para Crianças com Epilepsia (CAVE). As variáveis foram analisadas por meio de estatística descritiva e modelo de regressão múltipla para encontrar preditores de qualidade de vida. Dos 187 pacientes, 68 (36,4%) apresentaram boa qualidade de vida. Não foram observadas diferenças significativas por sexo em nenhum dos itens estudados, nem na pontuação geral do questionário. Ter menos necessidades básicas insatisfeitas (P=<0,0001) e não ter epilepsia refratária foram preditores de melhor qualidade de vida (P=<0,0001). A qualidade de vida relatada pelos pais foi em sua maioria boa ou razoável, ter um maior número de necessidades básicas insatisfeitas e ser classificado como tendo epilepsia de difícil manejo foram preditores de piora na qualidade de vida medida pelo questionário CAVE.

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Developing and maintaining health literacy: A continuous emotional, cognitive, and social process for parents of children with epilepsy—A qualitative study

Tschamper¹,

Larsen²,

Wahl³

et al. 2023

Epilepsy & Behavior

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Parents of children with epilepsy: Characteristics associated with high and low levels of health literacy

Cited by 6 publications

References 44 publications

Teachers’ Negative Attitudes and Limited Health Literacy Levels as Risks for Low Awareness of Epilepsy in Turkey

Teachers’ Negative Attitudes and Limited Health Literacy Levels as Risks for Low Awareness of Epilepsy in Turkey

Factors associated to the quality of life in children with epilepsy in a national hospital in Honduras

Developing and maintaining health literacy: A continuous emotional, cognitive, and social process for parents of children with epilepsy—A qualitative study

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