Developing and maintaining health literacy: A continuous emotional, cognitive, and social process for parents of children with epilepsy—A qualitative study

Tschamper, Merete Kristin; Larsen, Marie Hamilton; Wahl, Astrid Klopstad; Jakobsen, Rita

doi:10.1016/j.yebeh.2023.109222

Cited by 3 publications

(1 citation statement)

References 48 publications

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“…The “information literacy” hence appears within a complex and socially constructed world of parenting, and Walker (2012) found in a qualitative study that connectivity to others, trust (in people and information), weighing (and reflection) of information, and picture (and picturing) of oneself reciprocally interact. A recent qualitative study by Tschamper et al (2023) on how parents handle health information concerning their child points in a similar direction. Health literacy development is a continuous process; emotionally, cognitively, and socially.…”

Section: Introductionmentioning

confidence: 89%

A meta-Ethnography on Parents’ Experiences of the Internet As a Source of Health Information

Strand,

Westergren

2024

Global Qualitative Nursing Research

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The Internet is increasingly being used as a health information resource. This meta-ethnography aimed to synthesize the literature on how parents of children aged below 5 years’ experienced using the Internet for health information purposes. We employed an interpretive meta-synthesis approach—meta-ethnography—according to Noblit & Hare’s seven phases. A total of 22 articles met the inclusion criteria, representing four continents and with 650 participants, mainly mothers. We analysed and synthesized the primary studies into the following lines-of-argument synthesis representing a novel conceptual understanding of the phenomenon: Parents experience the Internet as “A cyber partner for child caring” being a 24/7 available “go-to” among other confined sources. Parents find ways of “patching together” trustworthy information in solicitude for their child’s health while navigating between trust and anxiety. They relate online and share their experiences and secrets without being rejected. Clinicians and parents may benefit from “partnering” with this resource.

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Section: Introductionmentioning

confidence: 89%

A meta-Ethnography on Parents’ Experiences of the Internet As a Source of Health Information

Strand,

Westergren

2024

Global Qualitative Nursing Research

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Living with and managing seizures among parents of children diagnosed with Phelan-McDermid syndrome: a qualitative study using in-depth interviews

García-Bravo,

Martínez-Piédrola,

García-Bravo

et al. 2023

Eur J Pediatr

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Health Literacy and Parenting Stress Among Iranian Parents of Children with Attention Deficit Hyperactivity Disorder: A Cross-Sectional Study

Shafighi,

Mousavizadeh,

Koshki

et al. 2024

Middle East J Rehabil Health Stud

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Background: Attention Deficit Hyperactivity Disorder (ADHD) is a chronic neurodevelopmental disorder that, in addition to its impact on children, may lead their parents to experience various psychological disorders, particularly Parenting Stress (PS). The prevalence and severity of PS may be correlated with various factors, particularly parents' level of Health Literacy (HL). Objectives: Given the scarcity of studies in the field of children with ADHD and their controversial results, alongside the significance of ADHD-related PS among their parents, the aim of the current study was to determine the levels of PS, HL, and the PS-HL correlation among parents of children with ADHD. Methods: In this cross-sectional and descriptive-correlational study, a total of 70 parents of children with ADHD participated based on inclusion criteria and convenience sampling. Their PS and HL were investigated using the "Socio-Demographic Information Questionnaire (SDIQ)," "Parenting Stress Index, Fourth Edition (PSI-4)," and "Test of Functional Health Literacy in Adults (TOFHLA)." The gathered data were analyzed using SPSS version 26. Results: The disparity in the sociodemographic characteristics of the participants was considerable. The PS among parents of children with ADHD ranged from “moderate to high” (x̄ = 287.51 ± 107.68, P < 0.05), and their HL ranged from “borderline to sufficient” (x̄ = 73.76 ± 14.02, P < 0.05). Additionally, there was a significant (P = 0.02) but not very strong inverse correlation (- 0.268) between PS and HL among these parents. The correlations obtained between "demographic characteristics with PS and HL" were varied. Conclusions: Based on the results, Iranian parents of children with ADHD demonstrated a “relatively sufficient” level of HL and a “considerable” level of PS. There was a significant, yet not very strong inverse correlation observed between PS and HL among the participants. However, it is important to acknowledge that the obtained frequency, severity, and correlation of these variables were influenced by various demographic inequalities among the participants.

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Developing and maintaining health literacy: A continuous emotional, cognitive, and social process for parents of children with epilepsy—A qualitative study

Cited by 3 publications

References 48 publications

A meta-Ethnography on Parents’ Experiences of the Internet As a Source of Health Information

A meta-Ethnography on Parents’ Experiences of the Internet As a Source of Health Information

Living with and managing seizures among parents of children diagnosed with Phelan-McDermid syndrome: a qualitative study using in-depth interviews

Health Literacy and Parenting Stress Among Iranian Parents of Children with Attention Deficit Hyperactivity Disorder: A Cross-Sectional Study

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