Parents’ Needs Following Identification of Childhood Hearing Loss

Fitzpatrick, Elizabeth; Angus, Douglas E; Durieux‐Smith, Andrée; Graham, Ian D.; Coyle, Doug

doi:10.1044/1059-0889(2008/005)

Cited by 96 publications

(97 citation statements)

References 33 publications

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“…Parent support groups or access to parental input seemed to fulfil several needs, including knowledge sharing, practical information about hearing devices and community resources, prognostic information, and hope. This finding correlates with results reported by Fitzpatrick et al (2008). Lack of the needed family support reported in this study may also be due to services providers'lack of knowledge regarding family-to-family support services.…”

Section: Participants' Needs Regarding Early Intervention Servicessupporting

confidence: 82%

Deaf or hard of hearing children in Saudi Arabia: Status of early intervention services

Alyami

Soer

Swanepoel

et al. 2016

International Journal of Pediatric Otorhinolaryngology

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Abstract:Objective: To determine the status of early intervention services provided to children who are deaf or hard of hearing and their parents/caregivers from birth to five years of age at two main state hospitals in Riyadh, Saudi Arabia, based on their parents' perceptions. Method: A descriptive quantitative research design was used to determine the status of early intervention services for deaf or hard of hearing children in Saudi Arabia based on their parents' perceptions. Semistructured interviews based on a questionnaire were conducted with 60 research participants from two main state hospitals where early detection and intervention services are provided. A purposive sampling technique was employed. Descriptive and inferential statistical analyses were performed on the data collected. Results: The participants' children were diagnosed at a substantially late age, resulting in delayed ages for initial hearing aid fitting and enrollment in early intervention services. A significant relationship was found between the residential area of the participants and timely access to intervention services. The results indicated that participants residing in Riyadh were fitted with hearing aids and enrolled into EI services earlier than those living outside of Riyadh. The delivery of information also emerged as a weakness in the EI system for the majority of participants.

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Section: Participants' Needs Regarding Early Intervention Servicessupporting

confidence: 82%

Deaf or hard of hearing children in Saudi Arabia: Status of early intervention services

Alyami

Soer

Swanepoel

et al. 2016

International Journal of Pediatric Otorhinolaryngology

View full text Add to dashboard Cite

show abstract

“…In previous studies, parents have also expressed some dissatisfaction regarding timely access to pediatric audiology services during the initial identification stage [9]. In a study designed to explore parental reactions to the early stages of audiological assessment and intervention [26] the most frequent suggestion in order to reduce the delay until diagnosis and intervention was that priority appointments be given to families with children with suspected significant hearing loss.…”

Section: Discussionmentioning

confidence: 99%

“…Parents described the disorder as a phenomenon that not only affects the child but changes their lives and affects such family decisions as career, finances and place of residence [9]. The time immediately after the diagnosis is perceived as the most stressful and burdens the parents with the greatest loss of quality of life [4].…”

mentioning

confidence: 99%

Qualitative analysis of parents’ experience with receiving the news of the detection of their child's hearing loss

Gilbey

2010

International Journal of Pediatric Otorhinolaryngology

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“…Pediatric hearing healthcare programs have emphasized the importance of a family centered approach, since family's participation on the early diagnosis and intervention brings better results to children 1 .…”

mentioning

confidence: 99%

Comparação das formas de aplicação papel e caneta e eletrônica do índice de estresse parental versão reduzida (PSI-SF)

2014

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16 (2): [413][414][415][416][417][418][419][420][421] aids and auditory rehabilitation. Pediatric hearing healthcare programs have emphasized the importance of a family centered approach, since family's participation on the early diagnosis and intervention brings better results to children 1 .In general, after a child is diagnosed with hearing impairment, the family goes through a difficult period, having to deal with strong feelings of inadequacy, anger, guilt, vulnerability and confusion 2 . Besides, the need of restructuring their roles and learning new values and skills to deal with a hearing impairment may also be a potential source of stress for the family. Parents of hearing impaired children were more stressed than those of normal hearing children and such stress occurred due to different reasons in different stages of their children's lives 3 . In two different occasions, seven to ten days apart, participants completed the PSI-SF in the formats: paper-pencil/paper-pencil (PP), paper-pencil/electronic (PE), electronic/electronic (EE) and electronic/ paper-pencil (PE). The PSI-SF has 36 statements, divided into three subscales: Parental Distress, Parent-Child Dysfunctional Interaction, and Difficult Child. Pearson's correlations and comparison of the PSI-SF scores within and between groups were obtained. Results: strong positive correlations were found between PSI-SF subscales and total scores in the first and second administration, for all groups. Significant differences were observed between the mean scores for the PP group (subscale "Difficult Child") and EE group (subscale "Difficult Child" and the total score). Such differences in scores, however, did not alter in any means the interpretation of the results. Participants' stress fell into normal values, for all subscales. Conclusion: the electronic format of the PSI-SF questionnaire yields similar results to the standard paper-and-pencil administration of the test. Observed stress levels were considered normal. COMPARISON OF ELECTRONIC AND PAPER AND PENCIL ADMINISTRATION OF THE PARENTING STRESS INDEX -SHORT FORM (PSI-SF)

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Parents’ Needs Following Identification of Childhood Hearing Loss

Abstract: The findings provide insights into the services most valued by families. These findings highlight the importance of eliciting parents' perspectives in designing optimal care models for children and families.

Cited by 96 publications

References 33 publications

Deaf or hard of hearing children in Saudi Arabia: Status of early intervention services

Deaf or hard of hearing children in Saudi Arabia: Status of early intervention services

Qualitative analysis of parents’ experience with receiving the news of the detection of their child's hearing loss

Comparação das formas de aplicação papel e caneta e eletrônica do índice de estresse parental versão reduzida (PSI-SF)

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