Qualitative analysis of parents’ experience with receiving the news of the detection of their child's hearing loss

Hearing from parents: The impact of receiving the diagnosis of Williams syndrome in their child

“…The focus of their dissatisfaction most often centers on the style and interpersonal skills of the provider and/or the content and quality of the information being provided [Barnett, 2002;Skotko, 2005;Skotko et al, 2009b;Gilbey, 2010]. Patients are, however, able to articulate preferences related to receiving potentially negative information.…”

‘Su guagua no escucha nada’: Ecuadorian families confronting the deafness of a child

“…Perhaps unsurprisingly, these parents were often critical of the way they had been treated. Studies elsewhere have suggested that the way in which unwelcome news is delivered affects how parents cope with it, and that lack of empathy adds to parents' stress (for example, Beazley and Moore 1995;Gilbey 2010;Huiracocha, Almeida, and Huiracocha 2013). These parents criticised their doctors' insensitivity, lack of experience or inability (or unwillingness) to understand what the diagnosis would mean in the light of a particular family's circumstances:…”

“To Be a Phenomenal Doctor You Have To Be the Whole Package”: Physicians' Interpersonal Behaviors during Difficult Conversations in Pediatrics

“…Prior qualitative studies, although not specifically focused on the interpersonal domain, had identified some of these behaviors (or the lack of such behaviors) as important in the delivery of bad news in pediatrics. [4][5][6][7][8][9] The majority of our subjects identified empathy as critical, and many had experiences with physicians displaying a lack of empathy. Of note, unlike other behaviors (like going beyond the call of duty, whose presence was deemed desirable but whose absence was never mentioned), when an absence of empathy was mentioned, it caused an intense dislike and distrust of the physician in most cases.…”

“…A few studies have assessed parental responses to difficult news in the context of specific clinical diagnoses and identified some physician interpersonal behaviors (e.g., showing empathy, allowing parents to talk) that parents believed contributed to a good communication process. [4][5][6][7][8][9][10][11] Additional research is therefore needed to identify the full range of interpersonal behaviors deemed important by parents. We designed the current study to assess in detail parental perceptions of a physician's interpersonal behaviors when delivering bad news regarding their child.…”