Parents’ lived experiences of parental needs for support at a burn centre

Lernevall, Lina Sophie Toft; Moi, Asgjerd Litleré; Gjengedal, Eva; Dreyer, Pia

doi:10.1080/17482631.2020.1855749

Cited by 24 publications

(43 citation statements)

References 44 publications

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“…Constatamos que os pais conhecem a existência do enfermeiro de referência nos cuidados à criança submetida a transplante hepático e que a maioria das vezes foram os próprios enfermeiros que se apresentaram. Lernevall et al (2021) referem que a apresentação pelo próprio profissional, confere nos pais uma sensação de estarem a ser cuidados, reconhecidos como equipa, considerando posteriormente os profissionais como pessoas confiáveis, prestativos, habilidosos, calmos, atenciosos, confiando neles o cuidado do seu filho.…”

Section: Discussão Dos Resultadosunclassified

“…Outras das competências atribuídas são a empatia, a escuta ativa e apoio. A prestabilidade, num estudo sobre as experiências e necessidades dos pais, realizado por Lernevall et al (2021) pode ser descrita até como o simples ficar com a criança enquanto os pais vão almoçar ou proceder aos cuidados de higiene. A autora acrescenta ainda, que os mesmos se sentem tocados, acarinhados, tratados com dignidade.…”

Section: Discussão Dos Resultadosunclassified

“…Como sugestões de melhoria um dos pais identifica a necessidade de maior humanização dos cuidados, especialmente para com a família e maior partilha de informação facilitando a integração dos pais nos cuidados. Lernevall et al (2021) afirmam que os pais descrevem a hospitalização como uma tarefa árdua, sentindo-se isolados. Assim, é importante continuar a garantir a humanização dos cuidados, uma vez que num estudo apresentado por Sener e Karaca (2017), apesar da satisfação das mães com os cuidados físicos prestados pelos enfermeiros, as mesmas retratam falta dos cuidados emocionais, de uma abordagem amigável, aberta à exposição de dúvidas e preocupações.…”

Section: Discussão Dos Resultadosunclassified

“…Esta ideia é retratada igualmente por Lernevall et al (2021), em que não estando preparados para compartilhar os seus sentimentos, nem mesmo com os elementos da família, a conversa com os outros pais do mesmo departamento, ajudou-os imenso. Entender o que está a acontecer e o que poderá esperar posteriormente, torna os pais mais seguros e resilientes.…”

Section: Discussão Dos Resultadosunclassified

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The reference nurse in the care of children undergoing liver transplantation: A qualitative study

Silva¹,

Carvalho²,

Silva³

2022

New Trends in Qualitative Research

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Introduction: The reference nurse model is based on a methodology of organization of comprehensive, individualized and continuous care, centered on the child and the family, and has its similarity with the role of family nurses in primary health care. Its theoretical conception resides in family-centered care and in the care partnership model. Goals: To describe the parents' perception of the role of the reference nurse in hospitalization and care for children submitted to liver transplantation. Methods: Qualitative, exploratory-descriptive study of a phenomenological nature, Level I, with deductive approach, through the application of semi-structured interviews to a non-probabilistic sample of 5 parents, and content analysis was performed. Results: Parents recognize the existence of a reference nurse in care during the hospitalization of their child and highlight technical/scientific and relational competencies in the performance of care, highlighting the experience, involvement with the child and family, knowledge about the child, ability to deal with the child, empathy, support and active listening. They reveal positive experiences with the care provided by the reference nurse and the entire team, showing themselves to be satisfied with the follow-up and presence by the reference nurse. Negative experiences are related to the confrontation with the disease and treatment. As proposals for improvement parents suggest greater humanization, optimize the integration of parents into the unit and care, and creation of networks and support groups. Conclusions: We believe that this study can provide contributions to optimize the use of the reference nurse model in specialized nursing care practice, with repercussions on improving the quality of care and greater parental satisfaction. The qualitative methodology allowed a more in-depth approach, allowing parents to obtain information and understanding of their way of thinking and experiences.

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Section: Discussão Dos Resultadosunclassified

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The reference nurse in the care of children undergoing liver transplantation: A qualitative study

Silva¹,

Carvalho²,

Silva³

2022

New Trends in Qualitative Research

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“…These feelings should not be overlooked or downplayed by care providers. For example, Lernevall et al (2021) explored how to support parents experiencing guilt when their child was admitted to a burn center. They showed that parent guilt was significantly decreased when healthcare providers shared words of encouragement, normalized the parents' experience (i.e.…”

Section: Pediatric Chronic Illness Triggers Mom Guiltmentioning

confidence: 99%

Exploring the Stories of Parents’ Experiences with Infant Hearing-Loss Screening and Diagnosis in the United States

Barker¹

2022

Preprint

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Objectives. For the past 20 years, birthing hospitals in the United States have required newborns to undergo a hearing loss screening prior to leaving the hospital. Since the initial newborn hearing screening mandates, there has been much outcome research documenting the successes and barriers of the program. However, little research has worked to identify and understand the parents’ experiences during this process. We propose that elucidating the parents’ experiences with newborn hearing loss screening and diagnosis is a first step toward understanding their varied experiences and has the potential to ultimately improve hearing healthcare for both children and their families. Thus, to better understand parents’ subjective experience, we asked the following research question: what are parents’ experiences with the early hearing loss screening and diagnosis of their infants in the United States? Design. The current study used a prospective, cross-sectional qualitative design utilizing semi-structured narrative interviews. Specifically, we used snowball sampling and recruited 13 hearing parents with a child with hearing loss born in the United States and diagnosed with hearing loss no later than 14 months of age between the years of 2016 to 2020. We used thematic analysis to uncover common themes across parent experiences. Saturation was reached at Interview #4, thus no further sampling was needed.Findings. Two major themes emerged from the data: (1) hearing healthcare experiences and (2) parents’ early experiences with their child’s HL. Subthemes were also uncovered. Three emergent subthemes related to healthcare experiences included: (1) downplayed newborn hearing screening referrals, (2) clinician-centered care, and (3) medical expenses and health coverage. The three subthemes of the second theme were: (1) parent-to-parent support, (2) “mom guilt”, and (3) a new reality.Conclusion. The present study’s subjective accounts from parents about their infants’ early hearing detection experiences revealed several different subthemes that emerged from the same, mandated newborn experience in US families across the country. Themes uncovered in these narratives support the need for a family-centered approach to the hearing screening and hearing loss diagnosis process in the United States. Action steps such as encouraging clinicians to create opportunities for parent-to-parent support for hearing parents affected by newborn hearing loss could move the field of pediatric hearing health care closer toward a family-centered approach. Specifically, such steps could address families’ concerns and expectations surrounding newborn hearing screening and hearing loss while simultaneously working toward the Joint Commission on Infant Hearing’s goals of the earliest hearing loss detection, diagnosis, and intervention for these infants.

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Challenges of nurses and family members of burn patients: Integrative review

et al. 2023

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Aims To identify the challenges facing burn care nurses and burn patients' family members and to explore the relationship between the above challenges. Design Whittemore and Knafl's integrative review. Methods Databases used for this review included Cochrane Library, Web of Science, PubMed and Embase. The original research published from January 2010 to November 2021 was selected. Studies reporting the challenges of family members or nurses of burn patients identified through extensive database search were considered for inclusion. The Mixed‐Method Appraisal‐Tool was applied for the evaluation of the quality of the literature. The analysis approach used was content analysis. Results Of the 2746 identified studies, 17 studies were included. Key findings related to the challenges facing nurses and family members of burn patients were extracted. The themes relating to burn care nurses included ethical and religious issues, clinical issues, work–life imbalance and limited support. The themes relating to family members included family's different views on prognosis and treatment, work–life imbalance, psychological issues and lack of multifaceted support. The challenges for the formal and informal caregivers are similar and there is existence of some shared concerns. If the above challenges are not resolved, support for the burn patients may be adversely affected. Corresponding measures should be taken to overcome such challenges.

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Parents’ lived experiences of parental needs for support at a burn centre

Cited by 24 publications

References 44 publications

The reference nurse in the care of children undergoing liver transplantation: A qualitative study

The reference nurse in the care of children undergoing liver transplantation: A qualitative study

Exploring the Stories of Parents’ Experiences with Infant Hearing-Loss Screening and Diagnosis in the United States

Challenges of nurses and family members of burn patients: Integrative review

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