Parental support, internalizing symptoms, perceived health status, and quality of life in adolescents with congenital heart disease: influences and reciprocal effects

Luyckx, Koen; Goossens, Eva; Rassart, Jessica; Apers, Silke; Vanhalst, Janne; Moons, Philip

doi:10.1007/s10865-012-9474-5

Cited by 56 publications

(66 citation statements)

References 32 publications

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“…Third, most studies focused on maternal support, excluding paternal support. However, recent research has demonstrated that paternal support predicted psychological functioning of adolescents with CHD 9 months later (Luyckx et al, 2012a). Consequently, the present studies focused on both maternal and paternal support, in addition to peer support.…”

Section: Introductionmentioning

confidence: 94%

“…The combined presence of maternal and paternal support was found to be important (Luyckx et al, 2012a). Paternal support might become especially important for adolescents with a chronic condition, as fathers tend to encourage independence more than mothers do (Shulman & Seiffge-Krenke, 1997).…”

Section: Social Support Clusters and Comparison With Healthy Peersmentioning

confidence: 99%

“…Hence, parental support may be especially important for adolescents with a chronic condition, as parents need to support adolescents in increasingly taking care of themselves and their illness (Seiffge-Krenke, 2001). Parental support indeed negatively predicted depression and loneliness, and positively predicted quality of life 9 months later in adolescents with CHD (Luyckx et al, 2012a;2012b). In adolescents with T1D, parental support has been found to predict better treatment adherence (La Greca et al, 1995) and less depressive symptoms (Butler et al, 2007).…”

Section: Introductionmentioning

confidence: 99%

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Parental and peer support in adolescents with a chronic condition: a typological approach and developmental implications

et al. 2015

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Research has consistently demonstrated that contextual support is crucial towards the psychological functioning of adolescents with chronic conditions. However, the literature has predominantly focused on parental support instead of adopting an integrated approach to parental and peer support. The present manuscript with two longitudinal studies in adolescents with Type 1 diabetes and congenital heart disease examined the extent to which different clusters of maternal, paternal, and peer support at baseline were related to well- and ill-being over time. In both studies, four clusters emerged: combined support, parental support, peer support, and lack of support. Follow-up longitudinal analyses indicated that especially combined support from parents and peers proved to be of crucial importance towards psychological functioning. The present studies demonstrated the value of a typological approach for assessing social support in adolescents with chronic conditions. In addition to focusing on parental support, future research should assess peer support as well in these adolescents.

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Section: Introductionmentioning

confidence: 94%

Section: Social Support Clusters and Comparison With Healthy Peersmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Parental and peer support in adolescents with a chronic condition: a typological approach and developmental implications

et al. 2015

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“…Health-related functioning problems (e.g., pain) were related to negative changes in QOL, while benefit finding (e.g., potential benefits of illness) and character strengths (e.g., vitality) were associated with positive changes. Researchers in Belgium examined factors linked with changes over time in global perceived QOL for 429 adolescents with congenital heart disease aged 14–18 years, using a linear analogue scale from 0 (‘worst life’) to 100 (‘best life’) [26, 27]. Over an 18-month follow-up, findings showed both depressive symptoms and loneliness were negatively related, and paternal support positively related, to QOL changes [27].…”

Section: Introductionmentioning

confidence: 99%

Three-year trajectories of global perceived quality of life for youth with chronic health conditions

et al. 2016

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PurposeObjectives of this longitudinal study were to examine 3-year trajectories of global perceived quality of life (QOL) for youth with chronic health conditions, as obtained from youth and parent reports, and to identify personal and environmental factors associated with the trajectory groups for each perspective.MethodsYouth with various chronic conditions aged 11–17 years and one of their parents were recruited from eight children’s treatment centers. Latent class growth analysis was used to investigate perceived QOL trajectories (separately for youth and parent perspectives) over a 3-year period (four data collection time points spaced 12 months apart). Multinomial logistic regression was employed to identify factors associated with these trajectories.ResultsA total of 439 youth and one of their parents participated at baseline, and 302 (69 %) of those youth/parent dyads completed all four data collection time points. Two QOL trajectories were identified for the youth analysis: ‘high and stable’ (85.7 %) and ‘moderate/low and stable’ (14.3 %), while three trajectories were found for the parent analysis: ‘high and stable’ (35.7 %), ‘moderate and stable’ (46.6 %), and ‘moderate/low and stable’ (17.7 %). Relative to the ‘high and stable’ groups, youth with more reported pain/other physical symptoms, emotional symptoms, and home/community barriers were more likely to be in the ‘moderate and stable’ or ‘moderate/low and stable’ groups. Also, youth with higher reported self-determination, spirituality, family social support, family functioning, school productivity/engagement, and school belongingness/safety were less likely to be in the ‘moderate and stable’ or ‘moderate/low and stable’ groups, compared to the ‘high and stable’ groups.ConclusionFindings suggest that youth with chronic conditions experience stable global perceived QOL across time, but that some individuals maintain stability at moderate to moderate/low levels which is related to ongoing personal and environmental influences. Potential benefits of universal strategies and programs to safeguard resilience for all youth and targeted interventions to optimize certain youths’ global perceived QOL are indicated.Electronic supplementary materialThe online version of this article (doi:10.1007/s11136-016-1353-z) contains supplementary material, which is available to authorized users.

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“…As to the associations between parental social support and child-reported HRQoL, some studies [16,34] reported positive correlations. In contrast, we found no associations.…”

Section: Discussionmentioning

confidence: 99%

Parental Mental Health Moderates the Efficacy of Exercise Training on Health-Related Quality of Life in Adolescents with Congenital Heart Disease

et al. 2014

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To evaluate the moderating influence of parental variables on changes in health-related quality of life (HRQoL) in adolescents with Tetralogy of Fallot (ToF) or a Fontan circulation after participation in standardized exercise training. A multicenter randomized controlled trail in which 56 patients, aged 10-15, were randomly allocated (stratified by age, gender, and congenital heart disease) to a 12-week period with either: (a) 3 times per week standardized exercise training or (b) care-as-usual (randomization ratio 2:1). Adolescents and their parents filled in online questionnaires at baseline and at 12-week follow-up. In this randomized controlled trail, primary analyses involved influence of parental mental health and parental social support for exercise on changes in the TNO/AZL Child Quality of Life Questionnaire Child Form at follow-up. Secondary analyses concerned comparing levels of parental characteristics with normative data. Compared with controls, adolescents in the exercise group reported a decrease in social functioning when their parents had more anxiety/insomnia or severe depression themselves. Adolescents also reported a decrease in social functioning when their parents showed poorer overall mental health themselves. Parents reported comparable or even better mental health compared with normative data. The effect of a standardized exercise program on HRQoL changes in adolescents with ToF or a Fontan circulation is moderated by parental mental health, more specifically by parental anxiety/insomnia and severe depression. The trial registration number of this article is NTR2731 ( www.trialregister.nl ).

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Parental support, internalizing symptoms, perceived health status, and quality of life in adolescents with congenital heart disease: influences and reciprocal effects

Cited by 56 publications

References 32 publications

Parental and peer support in adolescents with a chronic condition: a typological approach and developmental implications

Parental and peer support in adolescents with a chronic condition: a typological approach and developmental implications

Three-year trajectories of global perceived quality of life for youth with chronic health conditions

Parental Mental Health Moderates the Efficacy of Exercise Training on Health-Related Quality of Life in Adolescents with Congenital Heart Disease

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