Parental perception of child vulnerability in childhood cancer survivors

Hogan, Mary-Jane Staba; Ross, Wilhelmenia L.; Balsamo, Lyn; Mitchell, Hannah-Rose; Kadan‐Lottick, Nina S.

doi:10.1002/pbc.27364

Cited by 8 publications

(5 citation statements)

References 41 publications

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“…This indicates the magnitude of the impact that having a child with cancer has on parenting behavior. Furthermore, it could mean that parents continue to perceive their children as vulnerable even years after the completion of cancer therapy and being independent in their current health status or with their past cancer history (Hogan et al, 2018). By contrast, CCSs feel overprotected by their parents and wish to be free from various restrictions (Miyagishima et al, 2023).…”

Section: Discussionmentioning

confidence: 99%

The parental involvement process regarding childhood cancer survivors becoming independent: Focus on balancing health management and social lives from adolescence to adulthood

Miyagishima,

Ichie,

Sakaguchi

et al. 2023

Japan Journal Nursing Sci

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AimThis study aimed to elucidate the parental involvement process regarding childhood cancer survivors' (CCSs') independence while balancing their health management and social lives from adolescence to adulthood to obtain suggestions for long‐term support for CCSs and their parents.MethodsSemi‐structured interviews were conducted with 19 parents of Japanese CCSs aged 16–25 years. The data were then qualitatively analyzed using the modified grounded theory approach.ResultsThree “categories” and 20 “concepts” were generated. The connections among these categories and concepts revealed the parental involvement process regarding CCSs' independence while balancing their health management and social lives. The first phase in this process is to “support careful behaviors,” mainly during CCSs' treatment in the outpatient clinic or shortly after discharge. As CCSs recover after cancer treatment, parents “watch over, but feel conflicted,” with “conflicts between protecting their sons/daughters and giving them independence.” Then, parents reach a phase in which they “acknowledge and entrust,” which includes “acknowledgment of development and efforts” of their sons/daughters, and develop an “attitude to entrust medical checkups to their sons/daughters, along with their preparation.” The influencing factors of the three phases include “ongoing anxieties about the late effects of therapy and recurrence” and an “expectation for their sons/daughters to acquire abilities for living independently.”ConclusionsThese findings suggest that nurses need to accept parents' feelings and thoughts regarding conflicts with CCSs, recognition of CCSs' development, and values. These processes may help nurses and health‐care professionals support parents from a comprehensive perspective.

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Section: Discussionmentioning

confidence: 99%

The parental involvement process regarding childhood cancer survivors becoming independent: Focus on balancing health management and social lives from adolescence to adulthood

Miyagishima,

Ichie,

Sakaguchi

et al. 2023

Japan Journal Nursing Sci

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“…Au contraire, la relation parent-enfant dans ce contexte est fréquemment évaluée comme positive et soutenante par les patients [11,36]. Plus que la surprotection, ce sont la détresse de l'enfant et du parent, ainsi que la vulnérabilité de l'enfant perçue par les parents, qui sont déterminantes dans l'adoption de comportements surprotecteurs par le parent [26,29,31].…”

Section: Discussionunclassified

“…ex., 26]. Dans les familles ayant un enfant avec un diagnostic de cancer, la perception de cette vulnérabilité semble également se maintenir bien au-delà de la guérison de l'enfant [3,31].…”

Section: La Surprotection D'enfants Atteints De Cancer : Adaptative O...unclassified

La surprotection parentale dans le contexte du cancer pédiatrique : état de la question

2022

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Cet article, bien que non exhaustif, présente un état actuel des connaissances empiriques et théoriques sur la surprotection parentale dans des familles où l’enfant est atteint d’un cancer. Nous abordons les caractéristiques de cette surprotection ainsi que la question de sa fonction adaptative et ses effets potentiellement délétères sur l’enfant dans ce contexte spécifique. Cette revue identifie également certains facteurs familiaux et sociétaux qui peuvent promouvoir la surprotection chez les mères et les pères, soulignant l’importance du contexte familial et sociétal dans l’étude des pratiques parentales en oncologie pédiatrique.

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“…The recognized role of parental protection assumed by these families is also noteworthy, as their child is perceived as vulnerable, even years after the completion of cancer therapy. It is known that families of survivors of the disease continue to search for information (46) . Communication with families of children with cancer should provide for more than simply providing information, and it is relevant to have the aim of promoting support in line with values and needs (47) , which determines personalized communication (47) .…”

Section: Discussionmentioning

confidence: 99%

Online information related to childhood cancer and COVID-19 pandemic: a thematic analysis

et al. 2021

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Objective: To analyze online information available on the internet about COVID-19 and childhood cancer and discuss its reach potential with regard to supporting family functioning. Method: Documentary research supported by thematic analysis and the concept of family functioning and support. A total of 27 publications available on the websites of reference institutions in pediatric oncology, from March 1 to May 31, 2020, were analyzed. Results: Two themes guided the presentation of results with emphasis on language and sustainability assumptions to content, and to conveyed meanings and intentionality. The publications prospect families/people with basic knowledge about COVID-19 and have little information specific to the relationship with childhood cancer. Final considerations: Threatening circumstances require informational support. This study revealed incipient of specificity and a prescriptive tone in the online information available in early times of the pandemic, questioning the scope of support for family functioning.

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Parental perception of child vulnerability in childhood cancer survivors

Cited by 8 publications

References 41 publications

The parental involvement process regarding childhood cancer survivors becoming independent: Focus on balancing health management and social lives from adolescence to adulthood

The parental involvement process regarding childhood cancer survivors becoming independent: Focus on balancing health management and social lives from adolescence to adulthood

La surprotection parentale dans le contexte du cancer pédiatrique : état de la question

Online information related to childhood cancer and COVID-19 pandemic: a thematic analysis

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