Parent Coping Support Interventions During Acute Pediatric Hospitalizations: A Meta-Analysis

Doupnik, Stephanie K.; Hill, Douglas L.; Palakshappa, Deepak; Worsley, Diana; Bae, Hagyoul; Shaik, Aleesha; Qiu, Maylene; Marsac, Meghan L.; Feudtner, Chris

doi:10.1542/peds.2016-4171

Cited by 92 publications

(76 citation statements)

References 56 publications

(61 reference statements)

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“…the presence of more children in the same family is associated with high parental stress levels. This may be due to the higher commitment of parents in having to manage more children, when repeated hospitalizations cause more stress [19]. In terms of Birth order, the study has shown that parents of children with chronic illness bear higher stress level compared to other parents, and in particular, a high Birth order in a family with a child with the disease, implies parents with high or suspicious stress, whereas a low Birth order in a family predicts parents with normal stress levels.…”

Section: Discussionmentioning

confidence: 99%

An investigation on parenting stress of children with cystic fibrosis

Continisio

Serra²,

Guillari³

et al. 2020

Ital J Pediatr

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Background: The management of chronic diseases, particularly in children, requires an integrated physical and psychological approach to both sick children and their family. This is the case of Cystic Fibrosis (CF), a complex genetic chronic disease, where, a comprehensive evaluation of the emotional impact and an effective multidimensional approach are indicated. Aim: This study investigates on parenting stress in children and adolescents with CF and its determinants related to parents, children and the disease severity. Methods: The study involved 34.04% adult males and 65.96% adult females (range 21-55 years) and 47 children with CF, 54.35% males and 45.65% females (range 1-17 years). The data were obtained through a Parenting Stress Index -Short Form (PSI-SF) questionnaire. According to the PSI-SF scoring system, three types of stress were detected: a typical stress pattern (normal), a high stress pattern (increased) and a defensive response, which may be considered as a high stress feature in children which requires monitoring and clinical evaluation. Results: This study shows a significant presence of stress in females (60.23%), of subject married (84.62%), unemployed (69.23%) and with education level such as "middle School" (61.54%). Concerning children of parents with high stress, it resulted most frequent children with one sibling (53.85%). Finally, by univariate analysis, it resulted a significant positive correlation between parenting stress and disease degree of children. Instead by multivariate analysis, we found that the variables: Number of siblings and Birth order were a significant positive and negative predictor of parenting stress respectively. Conclusion: An increased stress level was detected in less than one third of parents of subjects with CF. These data may be related to the psychological support which is part of the routine management of CF care team. However, as children's features seem to act as a determinant of stress more than parental ones, the parental-child dysfunction should be the target for further integrated interventions.

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Section: Discussionmentioning

confidence: 99%

An investigation on parenting stress of children with cystic fibrosis

Continisio

Serra²,

Guillari³

et al. 2020

Ital J Pediatr

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“…Finally, a recent meta‐analysis from 12 studies, reported a positive effect of specific interventions (eg, emotion regulation, social and structural supports) on parental anxiety and stress …”

Section: Discussionmentioning

confidence: 99%

“…36,37 Finally, a recent meta-analysis from 12 studies, reported a positive effect of specific interventions (eg, emotion regulation, social and structural supports) on parental anxiety and stress. 38 Finding the appropriate amount of medical information that should be given to parents prior to their child's intervention remains a difficult balance to find. On the one hand, medicolegal issues require the physicians to provide extensive and fair information, which may contribute to increase the anxiety level of the parents in a disproportionate way.…”

Section: Discussionmentioning

confidence: 99%

Parental anxiety before invasive cardiac procedure in children with congenital heart disease: Contributing factors and consequences

Werner

Louali

Fouilloux

et al. 2019

Congenital Heart Disease

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Objective Medical information provided to parents of a child with a congenital heart disease can induce major stress. Visual analog scales have been validated to assess anxiety in the adult population. The aim of this study was to analyze parental anxiety using a visual analog scale and to explore the influencing factors. Design This prospective cross‐sectional study. Setting Tertiary care regional referral center for congenital heart disease of Marseille—La Timone university hospital. Patients Parents of children with a congenital heart disease, as defined by the ACC‐CHD classification, referred for cardiac surgery or interventional cardiac catheterization, were offered to participate. Intervention and outcome measure The parental level of anxiety was assessed using a visual analog scale (0‐10) before intervention and after complete information given by the cardiologist, the surgeon or the anesthetists. Results Seventy‐three children [7 days‐13 years], represented by 49 fathers and 71 mothers, were included in the study. A total of 42 children required cardiac surgery and 31 children underwent interventional cardiac catheterization. The mean score of maternal anxiety was significantly higher than the paternal anxiety (8.2 vs 6.3, P < .01). A high level of maternal anxiety (visual analog scale > 8) was associated with paternal anxiety (P = .02), the child's comorbidity (P = .03), the distance between home and referral center (P = .04), and the level of risk adjustment for congenital heart surgery (P = .01). In multivariate analysis, maternal anxiety was associated with paternal anxiety (OR = 4.9; 95% confidence interval [1.1‐19.2]), and the level of risk adjustment for congenital heart surgery (OR = 11.4; 95% confidence interval [1.2‐116.2]). No significant association was found between parental anxiety and prenatal diagnosis. Conclusion This study highlighted several factors associated with the parental anxiety. Identifying the parents at risk of high stress can be useful to set up psychological support during hospitalization.

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“…Therefore, it is necessary for the professional to have effective communication and to explain the situation clearly and with a language accessible to the caregiver, since this type of attitude can help to reassure and create a link of trust between the team and the responsible for the child. 3 It was raised in a survey conducted at a state public referral hospital in the municipality of Fortaleza that most caregivers stated that only medical professionals would provide information on the illness and hospitalization of their children. It is known, however, that the nurse has ample condition to pass on this type of information and it has to be imposed and assume this role with the families from the beginning of admission to the hospital.…”

Section: It's Very Good I Even Thought I'd Have a Problem With That mentioning

confidence: 99%

“…2 The importance of health professionals to pay attention not only to the child, but also to his family, is necessary to establish an integral care, since both face the period of hospitalization together. 3 In the face of the experience of the hospitalization of the child, it is necessary to cope with and adapt to the family, since normal expectations of the parents in relation to the child are frustrated when the child needs hospitalization. This period of coping with these events is characterized by frustration and stress that breaks down family stability.…”

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confidence: 99%

Percepção do familiar numa unidade pediátrica acerca do cuidado de enfermagem

Medeiros

Costa

Nobre

et al. 2018

Rev enferm UFPE on line.

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RESUMO Objetivo: conhecer a percepção do familiar acerca do cuidado de enfermagem numa unidade pediátrica. Método: trata-se de estudo qualitativo, descritivo, exploratório, com 21 familiares. Coletaram-se os dados por meio de entrevistas semiestruturadas, analisadas pela técnica de Análise de Conteúdo na modalidade Análise Temática. Resultados: considera-se, pela família, a equipe atenciosa e sempre disposta a dedicar auxílio e informações necessárias. Referiu-se, também, que é cuidadosa no momento de lidar com a família. Citou-se, nas reinternações, principalmente de crianças com doenças crônicas, a criação do vínculo como fator positivo. Relataram-se, também, o carinho e o bom acolhimento como demonstrações dos demais profissionais. Conclusão: entende-se que o enfermeiro se deve fazer presente e fornecer um cuidado humanizado à criança e à sua família, visto que se encontram em um período de fragilidade. Descritores: Criança Hospitalizada; Família; Saúde da Criança; Cuidado de Enfermagem; Enfermagem Pediátrica; Enfermagem.ABSTRACTObjective: to know the family's perception about nursing care in a pediatric unit. Method: This is a qualitative, descriptive, exploratory study with 21 relatives. The data were collected through semi-structured interviews, analyzed by the Content Analysis technique in the Thematic Analysis modality. Results: the family considers the staff attentive and always ready to dedicate the necessary help and information. She also mentioned that she is careful when dealing with the family. It was mentioned, in the readmissions, mainly of children with chronic diseases, the creation of the bond as a positive factor. The affection and the welcome were also reported as demonstrations of other professionals. Conclusion: it is understood that the nurse should be present and provide humanized care to the child and his family, as they are in a period of fragility.Descriptors: Hospitalized Child; Family; Child Health; Nursing Care; Pediatric Nursing; Nursing.RESUMEN Objetivo: conocer la percepción del familiar acerca del cuidado de enfermería en una unidad pediátrica. Método: se trata de un estudio cualitativo, descriptivo, exploratorio, con 21 familiares. Se recogen los datos por medio de entrevistas semiestructuradas, analizadas por la técnica de Análisis de Contenido en la modalidad Análisis Temático. Resultados: se considera, por la familia, el equipo atento y siempre dispuesto a dedicar ayuda e informaciones necesarias. Se refirió, también, que es cuidadosa en el momento de lidiar con la familia. Se ha citado, en las reinternaciones, principalmente de niños con enfermedades crónicas, la creación del vínculo como factor positivo. Se relataron, también, el cariño y la buena acogida como demostraciones de los demás profesionales. Conclusión: se entiende que el enfermero se debe hacer presente y proporcionar un cuidado humanizado al niño y a su familia, ya que se encuentran en un período de fragilidad. Descriptores: Niño hospitalizado; La Familia; Salud del Niño; Atención de Enfermería; Enfermería Pediátrica; Enfermería.

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Parent Coping Support Interventions During Acute Pediatric Hospitalizations: A Meta-Analysis

Abstract: Coping support interventions can alleviate parents' psychological distress during children's hospitalization. More evidence is needed to determine if such interventions benefit children.

Cited by 92 publications

References 56 publications

An investigation on parenting stress of children with cystic fibrosis

An investigation on parenting stress of children with cystic fibrosis

Parental anxiety before invasive cardiac procedure in children with congenital heart disease: Contributing factors and consequences

Percepção do familiar numa unidade pediátrica acerca do cuidado de enfermagem

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