Parallel Journeys of Patients with Cancer and Depression: Challenges and Opportunities for Technology-Enabled Collaborative Care

Suh, Jina; Williams, Selvi B; Fann, Jesse R.; Fogarty, James; Bauer, Amy M.; Hsieh, Gary

doi:10.1145/3392843

Cited by 25 publications

(22 citation statements)

References 127 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Psychiatric professionals expressed that they had thorough knowledge of the patient, the patient's preferences, and what was considered normal/abnormal for the patient, and the professionals were responsible for noticing the patients' physical symptoms 18,23 . They found themselves to play an important part in the parallel care journeys 20,21 . Therefore, it created a barrier when psychiatric professionals did not perform physical examinations during consultations, thus risking missing physical diseases 23 and HCPs themselves found it difficult to assess physical symptoms in patients with mental disorders 22 .…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Barriers in cancer trajectories of patients with pre‐existing severe mental disorders—A systematic review

et al. 2023

View full text Add to dashboard Cite

Background: Patients with pre-existing severe mental disorders are significantly less likely to receive guideline-recommended cancer treatment and seems to have a significantly lower rate of cancer survival compared to patients with cancer without mental disorders. Aim:To perform a systematic review on barriers at patient-, provider-and systemlevels in cancer trajectories of patients with pre-existing severe mental disorders.Method: A systematic review was performed following the PRISMA guidelines (PROSPERO ID: CRD42022316020).Results: Nine eligible studies were identified. Barriers at patient-level included lack of self-care and ability to recognize physical symptoms and signs. Provider-level barriers included stigma from health care professionals on mental disorders, whereas system-level barriers included fragmented health care and consequences of this. Conclusion:This systematic review found that barriers at patient-, provider-and system-levels exist in cancer trajectories for patients with severe mental disorders,This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.

show abstract

Section: Resultsmentioning

confidence: 99%

“…This was emphasized by Suh et al. reporting an overbooked schedule of the psychosocial care team at the cancer center and lack of available appointment slots with both behavioral and psychiatric care providers 21 . Yamada et al.…”

Section: Resultsmentioning

confidence: 99%

Barriers in cancer trajectories of patients with pre‐existing severe mental disorders—A systematic review

et al. 2023

View full text Add to dashboard Cite

show abstract

“…Extensive research has also been conducted within HCI on the particular role of technology in patients' everyday experiences, and their journey while living with a cancer. These contributions can be classified into several themes and application areas, for example, a) the design of personalized and data-centric health information management systems for patients and healthcare workers [23,24,25], b) technologies enabling the continued clinical education of caregivers [26] and fostering communication between oncologists and their patients [27], c) facilitating behavior change amongst cancer patients [28], and d) interactive tools assisting cancer patients to seamlessly navigate the overwhelming amount of medical, financial, emotional, and mental-health challenges [29,30].…”

Section: Human-centric Research In Cancer Carementioning

confidence: 99%

On Improving Physicians’ Trust in AI: Qualitative Inquiry with Imaging Experts in the Oncological Domain

Verma

Schaer

Reichenbach

et al. 2021

Preprint

View full text Add to dashboard Cite

BackgroundAlthough the role of image-based AI in cancer research has been substantial, its impact on the clinical side has been limited so far. Physicians’ trust in AI, and its wider acceptability, has been significantly lower owing to its “black-box” nature, which raises liability questions concerning its use in the clinical context. MethodsTo comprehend the barriers in AI’s adoption, and to inform the future discourses in the human-centric and ethical design of AI, we designed and conducted semi-structured interviews with 7 imaging experts in the oncological domain. ResultsData saturation was achieved despite the small sample size, gathering concordant emerging needs and recommendations. Our findings demonstrate the divergent nature and focus of clinical and research practices, with differing AI needs. AI is afforded a peripheral, and yet a crucial role of a “decision help”, which can enable oncologists and related imaging specialists (i.e. radiologists, radiation-oncologists and nuclear medicine physicians) to push the boundaries of biological reasoning in treating cancers. Furthermore, our interviewees emphasized the need to embody ethics and liability in designing AI systems, and the development of educational opportunities for AI and cancer experts to enable an integrative vision of image-based AI. To this end, specific design guidelines are provided to inform both the Human-Centered Design and AI researchers in order to meaningfully address the contextually-sensitive concerns and challenges around the adoption of intelligent interactive technologies in cancer care. ConclusionsThe existing impact of AI in the clinical practices is limited as compared to the clinical research. In the future, AI is afforded a peripheral role of a ‘decision helper’ which might enable doctors to better understand the peculiarities and subtleties of cancers, and support them in developing novel treatment methods. Finally, in order to develop physicians’ trust in AI and its wider acceptability in clinical oncology, designers would have to address the ethical and liability concerns in relation to the use of AI systems.

show abstract

“…Рекомендованим методом ідентифікації пацієнтів є регулярний скринінг депресивних симптомів протягом усього шляху подолання раку за допомогою перевірених інструментів, оскільки депресія може виникнути в онкохворих пацієнтів на будь-якому етапі хвороби, і це пов'язано ще й з тим, що онкологи не мають змоги оцінювати психологічний стан пацієнта [5].…”

Section: исследование психоэмоционального состояния пациентов которые получают паллиативную помощь в амбулаторных условиях лг матвиец лф unclassified

Research of Psycho-emotional State of Patients, Who Receive Palliative Care in Ambulant Conditions

Matviyets

Матюха

Bratsyun

2021

FMEP

View full text Add to dashboard Cite

Anxieties, depression, fear, depressive disorders are symptoms, which may be the part of physiological feeling with incurable disease, especially when the diagnosis is informed. Sometimes, the assumption of difficult news, related to worsening of health and even risk to life can lead to fatal consequences. For family physicians and other professionals, who are involved in palliative care, it is important to be able to diagnose the worsening of patients’ psycho-emotional state in time, in order to provide professional psychological support. In this article, the results of research of level of difficulty of depressive disorders in palliative patients depending on different demographic and social data are presented, which can be modified with changing attitudes towards these patients (when ensuring correct communication and managing of the palliative patient by the family physician). The research has shown that socio-demographic indicators significantly affect the forming of state of depression in palliative patients, and require appropriate communication between the family physician and the patient, and the organization of additional measures for managing these patients. Special attention should be given to some results of research when providing palliative care, in particular: depression of different level of difficulty, based on the PHQ-9 scale was found in 81 % of palliative patients; it was set that 90 % of people, aged of 75–90 years had depression of different level of difficulty; it was determined that all patients with high income had depression, among them 16.7 % of light and 58.3 % of moderate level of difficulty, that can be considered as a neurotic reaction of incurable disease. Depression was found in all unmarried patients, among them 35 % of light and 35 % of moderate level of difficulty, and 30 % of patients with high level as well, that significantly predominate over the number of married people (4.1 %) and widows 14 %), that may indicate character traits, which complicate the adaptation of behavioral reactions on stress factors , including to the disease. Depression was found in all unmarried patients, among them 35 % of light and 35 % of moderate level of difficulty, and 30 % of patients with high level as well, that significantly predominate over the number of married people (4.1 %) and widows 14 %), that may indicate character traits, which complicate the adaptation of behavioral reactions on stress factors, including to the disease. Such patients need additional psychological support for reducing their suffering, in particular for preventing of mental genesis pains. According to the indicators of various socio-demographic parameters, the portrait of the most vulnerable palliative patients was determined: they are women of age group 75–89 years, living in the city, by civil state – single (additional depressive factor can be assumed – long-term loneliness), by social status – pensioners with Higher Education and high income, based on a scale of PHQ-9 >20 points, that corresponds to the diagnosis: depressive syndome of heavy level.

show abstract

Parallel Journeys of Patients with Cancer and Depression: Challenges and Opportunities for Technology-Enabled Collaborative Care

Cited by 25 publications

References 127 publications

Barriers in cancer trajectories of patients with pre‐existing severe mental disorders—A systematic review

Barriers in cancer trajectories of patients with pre‐existing severe mental disorders—A systematic review

On Improving Physicians’ Trust in AI: Qualitative Inquiry with Imaging Experts in the Oncological Domain

Research of Psycho-emotional State of Patients, Who Receive Palliative Care in Ambulant Conditions

Contact Info

Product

Resources

About