Paradox of Hope in Patients Receiving Palliative Care: A Concept Analysis

Tanis, Sandra J.; DiNapoli, Pamela P.

doi:10.20467/1091-5710.12.1.50

Cited by 28 publications

(13 citation statements)

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“…A diferença destes resultados é representada por um tamanho médio. No contexto de cuidados em fim-de-vida, o conceito de esperança parece assumir--se paradoxalmente (Tanis & DiNapoli, 2008) e fomentá-la, tal como preconizado na filosofia dos cuidados paliativos (WHO, 2002), constitui-se uma tarefa altamente complexa e desafiante para os profissionais de saúde (Olsman, Leget, OnwuteakaPhilipsen, & Willems, 2014;Tanis & DiNapoli, 2008). Deve haver, antes de mais, um reajustamento de expetativas, transformando um objetivo final e irrealista -a esperança da cura -em esperanças alternativas (Twycross, 2003).…”

Section: Discussão Dos Resultadosunclassified

Cuidados paliativos oncológicos em contexto de internamento e domiciliário: Necessidades, morbilidade psicológica e luto antecipatório nos familiares do doente terminal e impacto na qualidade de vida familiar

Areia

Major

Gaspar³

et al. 2017

Psychologica

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A navegação consulta e descarregamento dos títulos inseridos nas Bibliotecas Digitais UC Digitalis, UC Pombalina e UC Impactum, pressupõem a aceitação plena e sem reservas dos Termos e Condições de Uso destas Bibliotecas Digitais, disponíveis em https://digitalis.uc.pt/pt-pt/termos.Conforme exposto nos referidos Termos e Condições de Uso, o descarregamento de títulos de acesso restrito requer uma licença válida de autorização devendo o utilizador aceder ao(s) documento(s) a partir de um endereço de IP da instituição detentora da supramencionada licença.Ao utilizador é apenas permitido o descarregamento para uso pessoal, pelo que o emprego do(s) título(s) descarregado(s) para outro fim, designadamente comercial, carece de autorização do respetivo autor ou editor da obra. Na medida em que todas as obras da UC Digitalis se encontram protegidas pelo Código do Direito de Autor e Direitos Conexos e demais legislação aplicável, toda a cópia, parcial ou total, deste documento, nos casos em que é legalmente admitida, deverá conter ou fazer-se acompanhar por este aviso. Palliative oncology in hospice and home care: Needs, psychological morbidity and anticipatory grief on patient's relatives and impact on family quality of life Cuidados paliativos oncológicos em contexto de internamento AbstractTerminal cancer has a profound impact on family and its' elements. Therefore, palliative care foresees a family support. However, there are not many studies that aim to determine the family needs within palliative care. The present study aims to determine family needs, psychological morbidity and anticipatory grief of terminal patients' relatives, distinguishing two care contexts (hospice and home care), and examine the influence of unmet needs, anticipatory grief, psychological morbidity and care setting on the perceived family quality of life. For such, an exploratory study was conducted with a sample of 40 terminal cancer patients' relatives in palliative care. It was found that psychosocial needs are lesser satisfied in 1 Bolseira de Doutoramento FCT: SFRH/BD/86178/2012,

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Section: Discussão Dos Resultadosunclassified

Cuidados paliativos oncológicos em contexto de internamento e domiciliário: Necessidades, morbilidade psicológica e luto antecipatório nos familiares do doente terminal e impacto na qualidade de vida familiar

Areia

Major

Gaspar³

et al. 2017

Psychologica

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“…Both patients and their significant others in this study were clear that the nurse's existential presence was an essential contribution to the state of hope. According to Tanis & DiNapoli (2008), listening to the patient and being present not only showed respect for the patient's decisions, but it also encouraged a new vision of hope by refocusing the patient's goals and expectations. Recognizing the uniqueness and intrinsic worth of each individual results in a celebration of life in the present.…”

Section: Discussionmentioning

confidence: 99%

Hope in Relation to Nursing Interventions for HIV-Infected Patients and Their Significant Others

Klotz¹

2010

Journal of the Association of Nurses in AIDS Care

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This qualitative descriptive study explored what nurses can do to decrease hopelessness and enable hope in HIV-infected patients and their significant others. Using a sample of 10 HIV-infected patient and/or significant other dyads recruited from a support group, interview questions focused on specific nursing interventions that were helpful/not helpful in supporting hope. Clusters of common themes were identified in the areas of the nurse's existential presence, appreciation of personhood, professionalism, celebration of life, and consequences. Elements describing the essence of each category were presented to explain meaning in terms of nursing practice and education. The conclusions of this study reinforce the fact that patients consider enabling hope an essential component of nursing. Further study is needed to explore the effects of hope on long-term survivorship and quality of life for patients and their significant others as well as specific nursing interventions to enable hope for this population.

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“…The nature of a 'good death' has not received much philosophical attention but see Wrigley (2018). 9 This problem was explicitly addressed as a philosophical conceptual concern in a bioethical context by Garrard and Wrigley (2009) and also identified in professionally orientated publications by Tanis andDiNapoli (2008), Cohen (2013), and Eaves et al (2016). It has recently returned as an issue in feminist bioethics in Merrick (2016).…”

Section: Hope and Dyingmentioning

confidence: 99%

Hope, Dying and Solidarity

Wrigley

2019

Ethic Theory Moral Prac

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Hope takes on a particularly important role in end of life situations. Sustaining hope can have considerable benefits for the quality of life and any prospect of a good death for the dying. However, it has proved difficult to adequately account for hope when dying, particularly in some of the more extreme end of life situations. Standard secular accounts of hope struggle to establish how the fostering of hope may be possible in such situations. This leads to a practical ethical dilemma for those caring for the dying, the 'paradox of hope', whereby one can either help maintain the welfare of the dying by generating a misleading 'false hope' or maintain truthfulness and concede that hope is not possible. These two problems combine to leave individuals the prospect of dying in terrible circumstances facing only despair. To address this, I argue that we should look beyond standard intentional or dispositional accounts of hope in such cases and treat hope as a cluster concept. Rather than appeal to a unitary conception, what we precisely mean by 'hope' may therefore vary depending on the context of use. I outline an account of hope based on Marcel's account of 'absolute' hope but offering an alternative, secular foundation based on solidarity that can explain how hope when dying in extreme circumstances is possible. Hence, where the more familiar accounts break-down in these circumstances, 'hope talk' may still be possible if it is seen as relying on this conception of hope.

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Paradox of Hope in Patients Receiving Palliative Care: A Concept Analysis

Cited by 28 publications

References 0 publications

Cuidados paliativos oncológicos em contexto de internamento e domiciliário: Necessidades, morbilidade psicológica e luto antecipatório nos familiares do doente terminal e impacto na qualidade de vida familiar

Cuidados paliativos oncológicos em contexto de internamento e domiciliário: Necessidades, morbilidade psicológica e luto antecipatório nos familiares do doente terminal e impacto na qualidade de vida familiar

Hope in Relation to Nursing Interventions for HIV-Infected Patients and Their Significant Others

Hope, Dying and Solidarity

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