Palliative Care and Population Management

Williams, Lori

doi:10.1016/j.cnc.2021.11.009

Cited by 3 publications

(6 citation statements)

References 18 publications

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“…Connection, empathy, and compassion invite professionals to put themselves in the place of another and see the world from another's perspective, searching thus to understand -in the singularity of each family and their history -their desires, values, and their sacred, which reinforce the children's well-being and their quality of life as a common goal between professional and family. This evidence corroborates evidence from other studies (14)(15)(16)(17)(18)(19)(20) on the experiences of professionals and families with children under PC.…”

Section: Discussionsupporting

confidence: 91%

Searching for human connection to transcend symbolisms in pediatric palliative care

Moreira-Dias

Franco

et al. 2023

Rev. Bras. Enferm.

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Objectives: to present a theoretical model for the interactional context of health professionals and families of children and adolescents under palliative care. Methods: qualitative study based on the theoretical frameworks of Grounded Theory and Symbolic Interactionism. Ten palliative care professionals took part in this study through semi-structured interviews employing snowball technique from 2020 to 2021. Results: the comparative data analysis resulted in the theoretical model “Searching for human connection to transcend symbolisms in pediatric palliative care”. It reveals symbolic elements that substantiate the construction of a collaborative context integrating two phenomena: “Overcoming boundaries and intertwining paths” and “Embracing suffering to weave meaningful experiences”. Symbolisms in palliative care guide the behavior of families and professionals, which makes them the key factor to be managed. Final Considerations: symbolisms and suffering continually integrate the interactional experience of professionals. Empathy and compassion are fundamental elements to enable their connection with families.

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Section: Discussionsupporting

confidence: 91%

Searching for human connection to transcend symbolisms in pediatric palliative care

Moreira-Dias

Franco

et al. 2023

Rev. Bras. Enferm.

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“…Conexão, empatia e compaixão provocam o profissional a assumir o lugar do outro e ver o mundo sob a perspectiva dele, buscando, dessa forma, compreender, na singularidade de cada família e da sua história, os seus desejos, valores e o seu sagrado, que afirmam o bem-estar da criança e sua qualidade de vida como uma meta comum entre profissional e família. Essas evidências corroboram as evidências de outros estudos (14)(15)(16)(17)(18)(19)(20) sobre experiências de profissionais e famílias de crianças em CPP.…”

Section: Discussionunclassified

“…Cuidar da família de crianças em condições ameaçadoras de vida, portanto, elegíveis para os CP, é um dever ético, pautado na crença de que as crianças existem no contexto da família. Além disso, as famílias têm o direito de cuidar em virtude do sofrimento e da vulnerabilidade de seus filhos, sendo fundamental que os profissionais assumam o dever de ouvir as famílias com compaixão, melhorando a comunicação, potencializando o empoderamento dos pais e a tomada de decisão compartilhada (16)(17)(18)(19) . Tais evidências aproximam-se dos pressupostos do Cuidado Centrado na Família (CCF), filosofia de cuidado que possui estreita relação com os princípios do CPP.…”

Section: Discussionunclassified

Buscando por conexão humana para transcender simbolismos dos cuidados paliativos em pediatria

Moreira-Dias

Franco

et al. 2023

Rev. Bras. Enferm.

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RESUMO Objetivos: apresentar um modelo teórico sobre o contexto interacional entre profissionais de saúde e famílias de crianças e adolescentes em cuidados paliativos. Métodos: estudo qualitativo sob os referenciais da Teoria Fundamentada nos Dados e Interacionismo Simbólico. Participaram dez profissionais atuantes em cuidado paliativo, por meio de entrevista semiestruturada, a partir da técnica “bola de neve”, entre os anos 2020 e 2021. Resultados: a análise comparativa dos dados resultou no modelo teórico ‘Buscando por conexão humana para transcender simbolismos do cuidado paliativo pediátrico’. Evidencia elementos simbólicos que sustentam a construção do contexto colaborativo integrando dois fenômenos: ‘Rompendo fronteiras e entrelaçando caminhos’ e ‘Acolhendo o sofrimento para tecer experiências de vida significativas’. Simbolismos dos cuidados paliativos orientam comportamentos das famílias e profissionais, constituindo-se no principal interveniente a ser manejado. Considerações Finais: simbolismos e sofrimento integram continuamente a experiência interacional do profissional. Empatia e compaixão são elementos fundamentais para sua conexão com as famílias.

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“…Physical, psychosocial, and spiritual domain of care should be considered for setting up the goals. [11][12][13] Prevention and relief from physical symptoms: Pain and other symptoms should be assessed and managed promptly. Unrelieved pain and other symptoms may deter the quality of life of the patient.…”

Section: Role Of Nurses In Palliative Care Of Childrenmentioning

confidence: 99%

“…Physical, psychosocial, and spiritual domain of care should be considered for setting up the goals. 11 12 13…”

Section: Role Of Nurses In Palliative Care Of Childrenmentioning

confidence: 99%

Nursing Perspective of Providing Palliative Care to the Children—A Narrative Review

Agrawal

Sarin

Garg

2023

Journal of Health and Allied Sciences NU

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Introduction Palliative care of children (PCC) is a philosophical and a structured approach to providing tailored care to children with life-threatening diseases. Understanding the role of nurses and empowering them to take up the role of palliative care nurse are imperative to strengthen these services and make the palliative care services more accessible to the patients. Method The literature search was done in two database, PubMed and Scopus, using keyword and Medical Subject Headings (MeSH) terms such as children, palliative care, end of life, hospice, bereavement, and nursing. Records were screened by authors and relevant articles were included in the review. Discussion PCC should start with the diagnosis of the illness continue through all the phases of illness. Bereavement support to the family is also a part of palliative care. Nurses are in a key position to play important role in the PCC team. Nurses play various roles such as direct care provider, communicator, patient advocate, respite nurse, and counselor. Conclusion PCC is aimed to improve the quality of life of the child and family. It is crucial to achieving universal health coverage. Role of nurse is vital in providing PCC.

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Palliative Care and Population Management

Cited by 3 publications

References 18 publications

Searching for human connection to transcend symbolisms in pediatric palliative care

Searching for human connection to transcend symbolisms in pediatric palliative care

Buscando por conexão humana para transcender simbolismos dos cuidados paliativos em pediatria

Nursing Perspective of Providing Palliative Care to the Children—A Narrative Review

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