Objective: To know the experience of the family in the care of the child with Autism Spectrum Disorder (ASD) and to discuss possibilities of health care. Method: Descriptive research with qualitative approach, carried out with 15 families of children with ASD, living in two municipalities in the interior of the state of São Paulo, from October 2016 to March 2017. The Symbolic Interactionism was used as theoretical reference, and Narrative Analysis, as method. Results: Families perceive signs of autism, however, believe that there are not suspicious behaviors, but the child's personalities. When diagnosis is defined, family acceptance is painful and sad. The mother shows to be the main caretaker, while the father remains in the background. A significant change of direction of the family towards the care/attention/stimulation of the autistic child is observed. Conclusion: Unveiling family experience in the care of children with ASD amplifies strategies for reinforcement and adaptation.
OBJECTIVE The aims of this study were (I) to evaluate gall-bladder form and contents, (ii) to assess the prevalence of gallstones in acromegalic patients before octreotide treatment end the Incidence of gallstone formation in patients with acromegaly during long-term (6-90 months, mean 44 months) octreotide treatment, and (ill) to test the efficacy of ursodeoxycholic ecld In preventing and treating octreotide-induced cholelithiasls. DESIGN Forty-nine patients (23 men and 26 women, aged 19-81 years) were studied by repeated gall-bladder ultrasonography performed at baseline and then every 6 months during octreotide therapy. All ultrasound scans were evaluated by the same radiologist. Statistical analy-$18 was performed using the Chi-squared and regression analysis tests. RESULTS Asymptomatic stones were recorded in 13/49 patients (26.5%) prior to octreotide treatment (the prevalence of cholellthlasls in the Italian population IS 9.5% In men and 18.9% In women). During octreotide therapy gallStOnes developed in 10/36 patients (27.7%). No signlfl-can1 correfations with sex, age, body mass Index. duration Of the disease, daily dose and duration of octreotlde therapy, altered gall-bladder form, family history of gallbladder stones, basal plasma values of cholesterol and triglycerides were found between the patients (10136) who developed stones during octreotide treatment and the ones who did not (26136). Fourteen patients (10 with newly developed stones and four with cholelithiasis diagnosed prior to octreotide) were put on ursodeoxychoiic acid at the dally dose of 10 mgkg. Gallstones completely diwP peared in 6/14 patients (42.8%; five patients with newly developed stones and one with stones prior to octreotide Cormpondena: Dr Marcella Montini. Division Of Endocrinology. Ospedali Rsuniti Largo Barom, 1-24100-Bergamo. Italy. therapy) after a mean of 30.8 months of ursodeoxycholic acid treatment. In addition, seven patients were treated with ursodeoxychoiic acid at the preventive dose of 450 mg, administered as a once-a-day oral preparation in the evening. However, stones developed In one of these seven patients who was thereafter cured (gallstones completely disappeared) by the therapeutic dose of ursodeoxycholic acid of 10 mglkglday after 23 months of treatment. CONCLUSIONS This study indicates that (I) acromegaly by itself is correlated with a hlgh prevalence of gallbladder stones, (11) the long-term treatment with octreotlde increases the incidence of cholelithiasis, and (iii) ursodeoxychollc acid Is useful In the treatment of gallstones In acromegalic patients but its prophylactic effect In patients on octreotide treatment requires further assessment.
Resumo OBJETIVO Conhecer a composição e o funcionamento do apoio social utilizado pela família da criança adoecida por pneumonia. MÉTODO Pesquisa qualitativa, realizada com quatorze famílias de crianças menores de cinco anos internadas por pneumonia, provenientes de regiões de maior vulnerabilidade social de um município do interior paulista, no período de novembro de 2015 a maio de 2016. Utilizou-se como referencial teórico o Modelo Calgary de Avaliação Familiar, e a Análise de Conteúdo Temática de Bardin como método. RESULTADOS A família nuclear e a extensa constituem o apoio social utilizado; a rede de apoio acessada engloba a Atenção Primária de Saúde, Unidades de Pronto Atendimento e hospitais, observando falha na referência e contra-referência intersetoriais. CONSIDERAÇÕES FINAIS A reorganização familiar mostrou-se relevante e efetiva em períodos de crise; as famílias buscam no nível secundário de atenção à saúde a resolutividade para o adoecimento de seu filho.
Objectives: to know the meaning attributed by family members to the health safety of pediatric patients, with attention to the possibilities of their collaboration. Methods: this qualitative study was conducted with eighteen family members of children hospitalized in a pediatric unit, from January to July 2018. Symbolic Interactionism was used as a theoretical framework, and Inductive Content Analysis as method. Results: child hospitalization poses risks to possible incidents and adverse events. Participants and professionals are responsible for patient safety. Thus, their actions focus on error prevention. Therefore, they seek information and observe in a vigil way professional care in classic aspects of safety. They conceive essential and favoring safety the approach centered on children and family members. Final Considerations: family members recognized the chances of errors and care damage, identified themselves as support in minimizing damage and were in partnership with the professional, increasing chances of effecting safety.
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