Paediatric traumatic brain injury: A review of siblings’ outcome

Sambuco, Melissa; Brookes, Naomi; Lah, Sunčica

doi:10.1080/02699050701822022

Cited by 30 publications

(16 citation statements)

References 44 publications

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“…Siblings may be affected emotionally and behaviorally when a brother or sister sustains a brain injury (Sambuco, Brookes, & Lah, 2008) and may experience nightmares and anxiety, which in turn may impact on behavior and sleep. This makes siblings an appropriate control group, which allows for some of the psychosocial impact of TBI within the family.…”

Section: Discussionmentioning

confidence: 99%

Pediatric Sleep Difficulties after Moderate–Severe Traumatic Brain Injury

Sumpter

Dorris

Kelly

et al. 2013

J Int Neuropsychol Soc

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The objective of this study is to systematically investigate sleep following moderate-severe pediatric traumatic brain injury (TBI). School-aged children with moderate-severe TBI identified via hospital records were invited to participate, along with a school-age sibling. Subjective reports and objective actigraphy correlates of sleep were recorded: Children's Sleep Habits Questionnaire (CSHQ), Sleep Self-Report questionnaire (SSR), and 5-night actigraphy. TBI participants There was no evidence of circadian rhythm disorders, and daytime napping was not prevalent. Moderate-severe pediatric TBI was associated with sleep inefficiency in the form of sleep onset and maintenance problems. This preliminary study indicates that clinicians should be aware of sleep difficulties following pediatric TBI, and their potential associations with cognitive and behavioral problems in a group already at educational and psychosocial risk. (JINS, 2013, 19, 1-6)

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Section: Discussionmentioning

confidence: 99%

Pediatric Sleep Difficulties after Moderate–Severe Traumatic Brain Injury

Sumpter

Dorris

Kelly

et al. 2013

J Int Neuropsychol Soc

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“…Promising, but not yet validated [Conoley and Sheridan, 1996;Waaland, 1998;Ylvisaker and Feeney 1998;Laroi, 2003;Swift et al, 2003;Wade et al, 2003;Leith et al, 2004;Stancin et al, 2004;Wade et al, 2004Wade et al, , 2006aGan et al, 2006;Wade, 2006;Sambuco et al, 2008] Adjusting the child's environment…”

Section: Family Realignmentmentioning

confidence: 98%

“…When siblings of children with moderate and severe BI were compared to siblings of children with orthopedic injuries, researchers found that siblings of children with BI with subsequent behavioral difficulties were at risk for more negative sibling relationships and display of behavior problems [Swift et al, 2003]. Sambuco et al [2008] reviewed the literature on sibling outcomes following TBI sustained by a brother or sister. Their review extends the findings by Swift et al [2003], in that they concluded siblings of children with TBI were at risk for residual psychological distress, especially if the child with the injury displayed behavioral difficulties.…”

Section: Family Realignmentmentioning

confidence: 98%

A review of family intervention guidelines for pediatric acquired brain injuries

Cole

Paulos

Cole

et al. 2009

Dev Disabil Res Revs

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Pediatric acquired brain injury (BI) not only affects the child with the injury, but also greatly impacts their family. Studies suggest there are higher rates of caregiver and sibling psychological distress after a child in the family has sustained a BI. Also, family functioning after BI impacts the child's recovery. In reviewing the literature, we identified seven theoretical clinical guidelines for working with families of children and adolescents with BI. These clinical guidelines are as follows: (1) select developmentally appropriate interventions, (2) match the intervention to the family, (3) provide advocacy, (4) provide injury education, (5) focus on family realignment, (6) appropriately adjust the child's environment, and (7) provide skills training to the family and child. The existing research on family interventions for BI is reviewed within the context of these theoretical guidelines, and the empirical support for each guideline is subsequently evaluated using specific criteria for empirically supported treatments. Unfortunately, very few randomized controlled studies exist, and continued research is needed to classify all clinical guidelines as "efficacious." In addition, continued research will aid in informing professionals of specific approaches to utilize when working with a family of a child with BI. Currently, clinicians and researchers can turn to the existing clinical guidelines to help address the numerous barriers posed by implementing and studying family interventions for pediatric BI.

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“…Interactions among family members change rapidly and, often, for the worse; and new responsibilities are thrust upon the child or adolescent, who may be overwhelmed by feelings of guilt, anger or helplessness [2,6]. Our research project aims to develop and deliver educational material to youths faced with TBI of a family member.…”

Section: Traumatic Brain Injurymentioning

confidence: 99%

3D Simulated Interactive Drama for Teenagers Coping with a Traumatic Brain Injury in a Parent

Habonneau

Richle

Szilas

et al. 2012

Interactive Storytelling

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Abstract. This paper describes the current state of a pedagogical immersive 3D story TBI-SIM and the changes that have been made to it. The system is a narrative simulation in a fully immersive 3D world in which the user controls a character that can interact with non-player characters (NPCs). The users achieve goals and make decisions that have an impact on the course of the story.Keywords: Interactive Drama, Interactive Narrative, Pedagogical Interactive Drama, Pedagogical Narrative Simulations, Educational Games, IDtension, Traumatic Brain Injury. Context Traumatic brain injuryChildren and adolescents undergo a dramatic change in their family life if one of their parents has a traumatic brain injury (TBI). Interactions among family members change rapidly and, often, for the worse; and new responsibilities are thrust upon the child or adolescent, who may be overwhelmed by feelings of guilt, anger or helplessness [2,6]. Our research project aims to develop and deliver educational material to youths faced with TBI of a family member. Based on testimonials we obtained through focus groups and interviews with families, we developed scenarios of everyday situations in an imaginary family in which members have to cope with the father's TBI. Techno-pedagogical environmentThe IDtension interactive drama engine has been used to implement the scenarios [9]. They are then displayed on the Unity game engine [12]. By playing a virtual character involved in short pedagogical stories (with a few goals to achieve), users experience different kinds of behavior. The experience of both usual and unusual situations in a safe simulation environment can be a good basis for further exchange in a real or a virtual focus group, or for therapeutic sessions with a psychologist. The 3D simulation that we developed provides an immersive interactive environment that readily engage users [3,4]. Engagement is reinforced by the narrative nature of the user experience, which focuses on relevant and striking situations, instead of simulating scientifically social relationships within a family. IDtension [9] is the underlying drama engine used to generate narrative actions, which does not rely on any branching or conditional branching mechanism, but generates appropriate actions on the fly, based on narrative rules and algorithms (see [9] for a full description of the engine). As a result, the engine enables a large number of choices, which differentiates the current demonstration from most pedagogical narrative simulations (e.g. Heart Sense [7], Carmen's Bright Ideas [5], FearNot [1] or Scenejo [8]). This larger number of choice aims at providing a greater engagement to the user.The system described in this paper is an improvement over an earlier demonstrated version [10]. Changes covered in this paper are about the scenario, the text-to-speech integration and the end-user interface.

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Paediatric traumatic brain injury: A review of siblings’ outcome

Abstract: Theoretically driven, prospective, longitudinal research into sibling outcome following child TBI is a priority.

Cited by 30 publications

References 44 publications

Pediatric Sleep Difficulties after Moderate–Severe Traumatic Brain Injury

Pediatric Sleep Difficulties after Moderate–Severe Traumatic Brain Injury

A review of family intervention guidelines for pediatric acquired brain injuries

3D Simulated Interactive Drama for Teenagers Coping with a Traumatic Brain Injury in a Parent

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