Paediatric palliative medicine in the UK: past, present, future: Figure 1

Hain, Richard; Heckford, Emma; McCulloch, Renée

doi:10.1136/archdischild-2011-300432

Cited by 51 publications

(46 citation statements)

References 11 publications

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“…1 Within Australia, the emergence of the specialty can be traced back to the formation of an Australian and New Zealand National Pediatric Palliative Care Reference Group formed in 2005. This multidisciplinary group has brought together services and the two pediatric hospices within Australia to meet regularly and to share resources and innovative ideas for services.…”

Section: Introductionmentioning

confidence: 99%

Components and Principles of a Pediatric Palliative Care Consultation: Results of a Delphi Study

Bradford

Herbert

Mott

et al. 2014

Journal of Palliative Medicine

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Section: Introductionmentioning

confidence: 99%

Components and Principles of a Pediatric Palliative Care Consultation: Results of a Delphi Study

Bradford

Herbert

Mott

et al. 2014

Journal of Palliative Medicine

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“…); (2) improve the child' s quality and enjoyment of life while helping families adapt and function during the illness and through bereavement; (3) facilitate informed decision-making by patients, families, and health care professionals; and (4) assist with ongoing coordination of care among clinicians and across various sites of care. [4][5][6][7] Hospice care is a particular form of palliative care, delivered in the United States by licensed hospice agencies. As mandated by federal regulation, these agencies provide a bundle of services, including nursing, physician, psychosocial, and spiritual services; medications; durable medical equipment; and a range of diagnostic tests and therapeutic interventions.…”

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confidence: 99%

Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations

Jewell¹,

Friebert²,

Carter³

et al. 2013

Pediatrics

373

101

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Pediatric palliative care and pediatric hospice care (PPC-PHC) are often essential aspects of medical care for patients who have life-threatening conditions or need end-of-life care. PPC-PHC aims to relieve suffering, improve quality of life, facilitate informed decision-making, and assist in care coordination between clinicians and across sites of care. Core commitments of PPC-PHC include being patient centered and family engaged; respecting and partnering with patients and families; pursuing care that is high quality, readily accessible, and equitable; providing care across the age spectrum and life span, integrated into the continuum of care; ensuring that all clinicians can provide basic palliative care and consult PPC-PHC specialists in a timely manner; and improving care through research and quality improvement efforts. PPC-PHC guidelines and recommendations include ensuring that all large health care organizations serving children with life-threatening conditions have dedicated interdisciplinary PPC-PHC teams, which should develop collaborative relationships between hospital-and community-based teams; that PPC-PHC be provided as integrated multimodal care and practiced as a cornerstone of patient safety and quality for patients with life-threatening conditions; that PPC-PHC teams should facilitate clear, compassionate, and forthright discussions about medical issues and the goals of care and support families, siblings, and health care staff; that PPC-PHC be part of all pediatric education and training curricula, be an active area of research and quality improvement, and exemplify the highest ethical standards; and that PPC-PHC services be supported by financial and regulatory arrangements to ensure access to high-quality PPC-PHC by all patients with life-threatening and life-shortening diseases. Pediatrics 2013;132:966-972 INTRODUCTIONOver the past two decades, pediatric palliative care has emerged as an established field of medical expertise and practice. [1][2][3] Recognized in 2006 by the American Board of Medical Specialties, hospice and palliative medicine is the field of medical expertise that seeks to improve quality of life and reduce various forms of distress for patients and their families in the face of serious life-threatening or inevitably lifeshortening conditions or when end-of-life care or bereavement services are needed. Pediatric palliative care addresses the needs of infants, children, adolescents, and young adults (subsequently referred to SECTION collectively as "children") with these conditions and the needs of their families, providing treatments that aim to (1) relieve suffering across multiple realms, including the physical (eg, pain or dyspnea), psychological (depression, anxiety, or sense of guilt), social (isolation), practical (home-based services or financial stress), and existential or spiritual (why is this happening?); (2) improve the child' s quality and enjoyment of life while helping families adapt and function during the illness and through bereavement; (3) f...

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“…Each primary health care region has pediatric palliative care consultants and pediatricians with a subspecialty in pediatric palliative care. 15 Lessons can be learned from the United Kingdom system, contextualized, and implemented into the United States primary care system. Admittedly, this approach may not be easily transferrable.…”

Section: Palliative Care In the Primary Care Settingmentioning

confidence: 99%