Components and Principles of a Pediatric Palliative Care Consultation: Results of a Delphi Study

Bradford, Natalie; Herbert, Anthony; Mott, Christine; Armfield, Nigel R; Young, Jeanine; Smith, Anthony C

doi:10.1089/jpm.2014.0121

Cited by 39 publications

(54 citation statements)

References 22 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…the identification of relevant elements and priorities for best practice 32, 38,40,45,57,61,64 ; the development of a conceptual framework 34,38,39,45,53,56,60,64 ; the drafting of statements or guidelines 34,36,41,42,44,45,[49][50][51][52][53]57,[60][61][62][63] ; and information packages provided before the start of the first round in order to standardise the knowledge base of panellists.…”

mentioning

confidence: 99%

Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

et al. 2017

View full text Add to dashboard Cite

Substantial variation was found concerning the quality of the study conduct and the transparency of reporting of Delphi studies used for the development of best practice guidance in palliative care. Since credibility of the resulting recommendations depends on the rigorous use of the Delphi technique, there is a need for consistency and quality both in the conduct and reporting of studies. To allow a critical appraisal of the methodology and the resulting guidance, a reporting standard for Conducting and REporting of DElphi Studies (CREDES) is proposed.

show abstract

mentioning

confidence: 99%

Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

et al. 2017

View full text Add to dashboard Cite

show abstract

“…Conditions seen in paediatric palliative care are much more heterogeneous than in adult palliative care (Lenton, Stallard, Lewis, & Mastroyannopoulou, ). In this context, it is more difficult to replicate studies, although attempts to delineate important components of paediatric palliative care consultations earlier in the disease trajectory have been made using a Delphi methodology (Bradford et al., ).…”

Section: A Holistic Child‐ and Family‐centred Approach To Care—benefmentioning

confidence: 99%

Paediatric palliative care and intellectual disability—A unique context

Duc

Herbert

Heussler

2017

Research Intellect Disabil

View full text Add to dashboard Cite

show abstract

“…Debe realizarse con base en un plan de metas establecido en conjunto con el paciente (si su edad lo permite), la familia y el equipo médico encargado, tanto para fines curativos como paliativos [14].…”

Section: Integración Del Cppunclassified

Cuidado paliativo pediátrico

Chavarro

Figueroa²,

Garcia

2017

Pediatr

View full text Add to dashboard Cite

El cuidado paliativo pediátrico (CPP) es una subespecialidad emergente de la pediatría que, desde sus inicios en la década de los 90, busca mejorar la calidad de vida de pacientes que padecen enfermedades que ponen en riesgo su vida, incluyendo, por supuesto, enfermedades terminales, pero no solo estas, puesto que la atención interdisciplinaria que ofrece el CPP también beneficia a pacientes con patologías para las cuales hay tratamientos posibles con fines curativos, pero cuya probabilidad de falla es muy alta. Su principal objetivo es brindar confort a los pacientes pediátricos, así como asistencia espiritual y física mediante el alivio farmacológico y no farmacológico de síntomas, el apoyo social y el acompañamiento a sus familias. Su inclusión en el manejo integral del niño no implica la exclusión de medidas terapéuticas con objetivo curativo, por el contrario, en la mayoría de los casos puede haber un trabajo conjunto entre el equipo tratante y el equipo paliativo. Muchos grupos alrededor del mundo se han dedicado a la investigación y el desarrollo de este campo, pero, a pesar de ello, en algunos lugares del mundo hay un significativo desconocimiento de la literatura actual sobre el tema, lo cual genera una serie de barreras que, junto con los prejuicios y mitos existentes en la sociedad en general, limitan el acceso al CPP.

show abstract

Components and Principles of a Pediatric Palliative Care Consultation: Results of a Delphi Study

Abstract: We have provided the first published framework from expert consensus that defines the components and principles of an early pediatric palliative care consultation. This framework will provide guidance for clinical practice as well as being useful for education and research in this area.

Cited by 39 publications

References 22 publications

Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

Paediatric palliative care and intellectual disability—A unique context

Cuidado paliativo pediátrico

Contact Info

Product

Resources

About