Paediatric nursing and research ethics: is there a conflict?

Lowes, Lesley Madeline

doi:10.1111/j.1365-2702.1996.tb00233.x

Cited by 6 publications

(1 citation statement)

References 13 publications

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“…Children may agree to take part merely to please, and/or because they have learnt to respect and obey adults. 36,[85][86][87] Ondrusek et al found that, regardless of age, children's belief that the researcher would be unhappy if they withdrew from the research possibly prevented children from withdrawing from the study. 72 This highlights the importance for researchers to ensure that children are aware that the researcher will not be upset if they withdraw.…”

Section: Children's Voluntary Participation (In Theory)mentioning

confidence: 99%

Engaging with children in research

Lambert

Glacken²

2011

Nurs Ethics

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At the outset of an ethnographic inquiry, we navigated national and international resources to search for theoretical and practical guidance on obtaining parents and children's informed consent/assent. While much theoretical guidance debating ethical issues to children's participation in research was found, a paucity of published papers offering practical guidance on assent processes and/or visual representations of child assent forms and information sheets was discovered. The purpose of this article is to describe our experiences, both theoretically and practically, of negotiating the process of obtaining informed consent and assent with parents and children for a non-therapeutic qualitative research study. We hope this article instigates a platform for others to explicate their experience and contributes to the construction of a coherent body of knowledge which will clearly delineate important elements that must be considered when negotiating children's agreement to participate in research.

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Section: Children's Voluntary Participation (In Theory)mentioning

confidence: 99%