2020
DOI: 10.11124/jbisrir-d-19-00434
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Overview of registries for anaphylaxis: a scoping review protocol

Abstract: Objective: This review will describe the scope and operational features of global registries for anaphylaxis and assess their contribution to improving knowledge and care of anaphylaxis by measuring their research output. Introduction: The incidence of anaphylaxis is increasing around the world. Structured reporting systems, such as patient registries, are needed to better understand the burden of anaphylaxis and protect the growing number of allergic p… Show more

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Cited by 3 publications
(2 citation statements)
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“…Overseas, several national anaphylaxis registries collect food and drug allergy data similar to those collected in Victoria. They differ markedly in design (live registries, fatal anaphylaxis registries) and purpose (research, clinical feedback, surveillance), 6 but do not collect data on all ADRs, a critical deficit. The New Zealand ADR registry is more comprehensive: the Centre for Adverse Reactions Monitoring has one of the highest pharmacovigilance reporting rates in the world, 7 and health professionals and the public can report ADRs to the centre for verification.…”
mentioning
confidence: 99%
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“…Overseas, several national anaphylaxis registries collect food and drug allergy data similar to those collected in Victoria. They differ markedly in design (live registries, fatal anaphylaxis registries) and purpose (research, clinical feedback, surveillance), 6 but do not collect data on all ADRs, a critical deficit. The New Zealand ADR registry is more comprehensive: the Centre for Adverse Reactions Monitoring has one of the highest pharmacovigilance reporting rates in the world, 7 and health professionals and the public can report ADRs to the centre for verification.…”
mentioning
confidence: 99%
“…Patients should be encouraged to discuss ADRs with their health care practitioners. Data quality is generally a challenge with patient records; overseas registries have mitigated the problem with verification processes 6 …”
mentioning
confidence: 99%