Overview of psychosocial problems in individuals with stoma: A review of literature

Ayaz‐Alkaya, Sultan

doi:10.1111/iwj.13018

Cited by 144 publications

(171 citation statements)

References 30 publications

(44 reference statements)

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“…Body image is often negatively influenced in patients with cancer by physical changes caused by the disease or treatment, such as after surgery for breast or colorectal cancer (eg, mastectomy, colostomy). 30,31 Specifically for patients with pancreatic and periampullary cancer, body image may be affected by the occurrence of cachexia. 32 The incidence of cachexia in patients with pancreatic cancer is high, cachexia-related complications occur often, and cachexia has been associated with reduced survival.…”

Section: Discussionmentioning

confidence: 99%

Relationship Between Quality of Life and Survival in Patients With Pancreatic and Periampullary Cancer: A Multicenter Cohort Analysis

Mackay¹,

Latenstein²,

Sprangers

et al. 2020

Journal of the National Comprehensive Cancer Network

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Background: A relationship between quality of life (QoL) and survival has been shown for several types of cancer, mostly in clinical trials with highly selected patient groups. The relationship between QoL and survival for patients with pancreatic or periampullary cancer is unclear. Methods: This study analyzed QoL data from a prospective multicenter patient-reported outcome registry in patients with pancreatic or periampullary carcinoma registered in the nationwide Netherlands Cancer Registry (2015–2018). Baseline and delta QoL, between baseline and 3-month follow-up, were assessed with the Happiness, EORTC Quality of Life Questionnaire-Core 30 (QLQ-C30), and QLQ-PAN26 questionnaires. The relationship between QoL and survival was assessed using Cox regression models, and additional prognostic value of separate items was assessed using Nagelkerke R2 (explained variance). Results: For the baseline and delta analyses, 233 and 148 patients were available, respectively. Most were diagnosed with pancreatic adenocarcinoma (n=194; 83.3%) and had stage III disease (n=77; 33.0%), with a median overall survival of 13.6 months. Multivariate analysis using baseline scores indicated several scales to be of prognostic value for the total cohort (ie, happiness today, role functioning, diarrhea, pancreatic pain, and body image; hazard ratios all P<.05) and for patients without resection (ie, overall satisfaction with life, physical and cognitive functioning, QLQ-C30 summary score, fatigue, pain, constipation, diarrhea, and body image; hazard ratios all P<.05). Except for diarrhea, all QoL items accounted for >5% of the additional explained variance and were of added prognostic value. Multivariate analysis using delta QoL revealed that only constipation was of prognostic value for the total cohort, whereas no association with survival was found for subgroups with or without resection. Conclusions: In a multicenter cohort of patients with pancreatic or periampullary carcinoma, QoL scores predicted survival regardless of patient, tumor, and treatment characteristics. QoL scores may thus be used for shared decision-making regarding disease management and treatment choice.

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Section: Discussionmentioning

confidence: 99%

Relationship Between Quality of Life and Survival in Patients With Pancreatic and Periampullary Cancer: A Multicenter Cohort Analysis

Mackay¹,

Latenstein²,

Sprangers

et al. 2020

Journal of the National Comprehensive Cancer Network

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“…Several studies have demonstrated that an ostomy negatively influences a patient's quality of life and lifestyle (Näsvall et al., 2017; Vonk‐Klaassen, de Vocht, den Ouden, Eddes, & Schuurmans, 2016), including as a result of ostomy‐related problems, such as physical and sexual problems, depression, dissatisfaction with appearance and body image, changes in clothing, travel difficulties, and decreased work activities (Ayaz‐Alkaya, 2019; Vonk‐Klaassen et al., 2016).…”

Section: Introductionmentioning

confidence: 99%

Describing self‐care and its associated variables in ostomy patients

Giordano

Nicolotti

Corvese

et al. 2020

Journal of Advanced Nursing

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Aims: To describe self-care in ostomy patients, to identify socio-demographic and clinical variables associated with self-care and to identify the association between self-care self-efficacy and self-care over and above the variables associated with self-care. Design: Longitudinal and multicentre study. Data were collected between February 2017-May 2018. Methods: In this study, 523 ostomy patients were enrolled at baseline (T0) and 362 were followed-up after 6 months (T1). The Ostomy Self-Care Index was used to measure self-care maintenance, monitoring, management, and self-efficacy. Correlations between self-care dimensions and patient socio-demographic and clinical characteristics were performed with Pearson's or Spearman's correlations. Three separate two-step hierarchical regression analyses were performed to identify variables associated with self-care maintenance, monitoring, and management. Results: Participants' mean age was 69 years (SD 12.4); 63.9% were male and most had enterostomies (38.8% colostomies, 29.3% ileostomies) and permanent ostomies (72.5%). Patients had adequate self-care maintenance and monitoring at T0 and T1, while they had lower self-care management and self-efficacy at baseline. Significant variables associated with better self-care maintenance and self-care monitoring were female gender, more information received during hospitalization and better autonomy in stoma management, while a better level of education was an additional variable associated with self-care monitoring. Self-care self-efficacy produced a significant increase in the explained variance of self-care maintenance and self-care monitoring. None of the selected variables were significantly associated with selfcare management. Conclusion: Middle-high levels of self-care maintenance, monitoring, management, and self-efficacy were found. The variables associated with ostomy self-care and the role of self-care self-efficacy identified in this study can help in developing tailored nursing interventions. | 2983 GIORDANO et Al.

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“…This has a negative impact on their self-esteem and HRQoL [11]. Regardless of the time passed since the stoma formation, obstacles to QoL fall in one of the three categories: ostomy-related concerns and impact on life, limitations in physical and social activities, and negative impact on physical and mental health [12]. The time passed since the surgery also has a major impact on the QoL of persons with ostomy [13].…”

Section: Introductionmentioning

confidence: 99%

City of Hope Quality of Life-Ostomy Questionnaire Validity and Reliability Assessment on a Croatian Sample

Konjevoda

Zelić

Samarin³

et al. 2020

IJERPH

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The aim of this study was to validate City of Hope Quality of Life-Ostomy Questionnaire (CoH-QoL-OQ) for assessing the quality of life (QoL) of ostomy patients in the Republic of Croatia. The CoH-QoL-OQ is widely used, but has not been translated or validated so it can be used in the Republic of Croatia. This cross-sectional study encompassed 302 surgery patients with colostomy, ileostomy, or urostomy (182 (60.3%) male and 120 (39.7%) female), whose average age is 59 (M = 59.3, SD = 15.8). The CoH-QoL-OQ was translated into Croatian language using accepted guidelines for translation. Patients were recruited in a telephone conversation, followed by mail containing the CoH-QoL–OQ delivered to the home addresses of the patients who agreed to participate. The collected data were analyzed to verify psychometric properties of the questionnaire on the Croatian sample. All subscales showed high level of internal consistency (Cronbach α = 0.73–0.89). The test-retest reliability indicated a very satisfactory temporal stability (r = 0.99). The Confirmatory Factor Analysis (CFA), showed that the originally established model was not adequate for the data (χ2 = 4237.88, p < 0.01, CFI = 0.540, NNFI = 0.481, RMSEA = 0.113). However, after modification that excluded problematic items, the data showed a better fit with the theoretical model (except for the LR chi-square test that remained statistically significant: χ2 = 1144.28, p < 0.01, CFI = 0.869, NNFI = 0.855 RMSEA = 0.077). We conclude that the CoH-QoL-OQ is a valid, reliable, and reducible instrument for measuring the health-related quality of life (HRQoL) among Croatian patients with ostomy in clinical research and clinical practice.

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Overview of psychosocial problems in individuals with stoma: A review of literature

Cited by 144 publications

References 30 publications

Relationship Between Quality of Life and Survival in Patients With Pancreatic and Periampullary Cancer: A Multicenter Cohort Analysis

Relationship Between Quality of Life and Survival in Patients With Pancreatic and Periampullary Cancer: A Multicenter Cohort Analysis

Describing self‐care and its associated variables in ostomy patients

City of Hope Quality of Life-Ostomy Questionnaire Validity and Reliability Assessment on a Croatian Sample

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