Overprotection, “speaking for”, and conversational participation: A study of couples with aphasia

Croteau, Claire; Dorze, Guylaine Le

doi:10.1080/02687030500475051

Cited by 60 publications

(32 citation statements)

References 15 publications

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“…The finding that PWA have more negative feelings about communication support than their caregivers is congruent with previous research (Croteau & Le Dorze, 2006). Caregivers' more positive view may lead them to engage in more correcting and speaking for PWA than they would like.…”

Section: Discussion and Emergent Questionssupporting

confidence: 81%

“…The items on which we expected divergence were: 'demanding' (renamed 'self-centred'), 'temperamental' (renamed 'irritable'), and 'mature' (Zraick & Boone, 1991); 'confident' (Brereton & Nolan, 2002); 'independent' (Power, 2008;Robinson et al, 2007); 'overprotective' (Croteau & Le Dorze, 2006); and 'reserved' (renamed 'embarrassed') (Croteau & Le Dorze, 2001). In order to give participants a chance demonstrate agreement and report positive things about each other we also included 'intelligent,' 'kind,' 'industrious' (renamed as the opposite, 'lazy'), 'supportive' and 'interested' but did not expect any divergences (Croteau & Le Dorze, 2001).…”

Section: Methodsmentioning

confidence: 99%

“…'using speech,' 'understanding speech,' 'using gesture' and 'understanding gesture.' We also included the items 'starting a new topic,' 'being spoken for' and 'being corrected' because research has shown these to be problematic (Croteau & Le Dorze, 2006). Each communication item was evaluated by participants using a five-point scale from a 'thumbs up' image (i.e., feels good about it) to a 'thumbs down' image (i.e., feels bad about it).…”

Section: Methodsmentioning

confidence: 99%

“…PWA tend to value identityaffirming relationships and be appreciative of caregivers, but there is also a tendency to feel overprotected (Croteau & Le Dorze, 2006).…”

Section: The Dynamics Of Informal Care In the Context Of Aphasiamentioning

confidence: 99%

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Divergences of perspective between people with aphasia and their family caregivers

2010

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LSE has developed LSE Research Online so that users may access research output of the School. Copyright © and Moral Rights for the papers on this site are retained by the individual authors and/or other copyright owners. Users may download and/or print one copy of any article(s) in LSE Research Online to facilitate their private study or for non-commercial research. You may not engage in further distribution of the material or use it for any profit-making activities or any commercial gain. You may freely distribute the URL (http://eprints.lse.ac.uk) of the LSE Research Online website. This document is the author's submitted version of the journal article, before the peer review process. There may be differences between this version and the published version. You are advised to consult the publisher's version if you wish to cite from it. For more research by LSE authors go to LSE Divergences of Perspective Between People With Aphasia and their Family CaregiversBackground: Studies of the relation between family caregivers and care-receivers have identified large divergences between their perspectives. It has been suggested that these divergences may adversely affect the care relationship. However, there has been little research examining the source of these divergences. Aims:The reported mixed-method study aimed to examine the relationship between people with aphasia and their family caregivers in order to identify the sources of observed divergences of perspective. Methods & Procedures:Twenty people with aphasia and their main family caregivers, living in the UK, completed an adapted version of the Interpersonal Perception Method questionnaire, which yielded both rating data and qualitative data. Participants rated themselves, each other, and how they thought the other would rate them, on issues regarding communication ability and identity. Outcomes & Results:As expected on the basis of existing research, divergences clustered around the provision of communication support and issues of confidence, independence, embarrassment and overprotection. A qualitative analysis of the participants' talk during the rating task suggested that a source of these discrepancies is in the conflicting demands which characterise the care relationship, specifically, caregivers' desire to support independence on the one hand but feeling compelled to be protective on the other hand. In response to these demands, caregivers try to create the impression that the disability has less impact than it has and that they are more in control than they feel they are. Conclusions:We conclude by suggesting that some divergences of perspective may not be adverse overall, but rather, may be a result of caregivers' creative adaptations to seemingly irreconcilable demands.Keywords: Aphasia, UK, family care, role, identity, disagreement, misunderstanding 2 AcknowledgementsThe authors would like to acknowledge the support of a research grant from the Economic and Social Research Council, UK (RES-000-22-2473). 3 Divergences of Perspective Between People ...

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Section: Discussion and Emergent Questionssupporting

confidence: 81%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

“…PWA tend to value identityaffirming relationships and be appreciative of caregivers, but there is also a tendency to feel overprotected (Croteau & Le Dorze, 2006).…”

Section: The Dynamics Of Informal Care In the Context Of Aphasiamentioning

confidence: 99%

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Divergences of perspective between people with aphasia and their family caregivers

2010

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“…Although carers typically recognise the right of people with aphasia to speak, it is often difficult to include them in conversations (Croteau and Le Dorze, 2006). Thus the disability (and communication partner's limited capacity to support communication) results in exclusion (violating the ideal of inclusiveness).…”

Section: (2) Informal Care For People With Aphasiamentioning

confidence: 99%

Beyond ideal speech situations: Adapting to communication asymmetries in health care

et al. 2013

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Inclusive, unconstrained and honest communication is widely advocated as beneficial and ethical. We critically explore this assumption by reflecting upon our research in acute care, informal care and public health. Using Habermas’ ideals of dialogue to conceptualise ideal speech, we concur with observations that health care is often characterised by intractable exclusions and constraints. Rather than advocating implementing the ideals of dialogue, however, we examine how people adapt to these difficult and intransigent contexts. Non-ideal contexts, we find, sometimes call for non-ideal responses. Deception and furthering personal interests, and thus departing from the ideals of dialogue, can be adaptive responses.

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Constraint-Induced Aphasia Therapy

Pulvermüller

Mohr

Taub

2016

Neurobiology of Language

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Overprotection, “speaking for”, and conversational participation: A study of couples with aphasia

Cited by 60 publications

References 15 publications

Divergences of perspective between people with aphasia and their family caregivers

Divergences of perspective between people with aphasia and their family caregivers

Beyond ideal speech situations: Adapting to communication asymmetries in health care

Constraint-Induced Aphasia Therapy

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