Divergences of perspective between people with aphasia and their family caregivers

Abstract

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The self-determined and partner-predicted topic preferences of adults with aphasia

“…• Using the Talking Mats™ framework with both members of dyads is recommended in a clinical setting (Gillespie et al, 2010). The use of Talking • Ideally, the process of selecting relevant topics for inclusion in an AAC system should involve time, thought and input from various informants (Garrett et al, 1989).…”

“…It has been used successfully with people with dementia, intellectual disabilities and aphasia (Murphy et al, 2007;Murphy & Cameron, 2008;Brewster, 2004;Murphy, 2000;Gillespie, et al, 2010). Talking Mats™ was therefore selected as the method in which to assist the participants with aphasia to evaluate the conversational topics in this study.…”

“…Talking Mats™ is a dynamic framework that was developed to enable people with communication difficulties to express their thoughts and views (Murphy, 1998). The interactive and visual format of this framework has been found to be a comfortable and successful method of generating information for adults with aphasia and allows these individuals to inform their families, friends and caregivers of their views in a tangible way (Murphy, 2000;Gillespie, Murphy, & Place, 2010).…”

Beyond ideal speech situations: Adapting to communication asymmetries in health care

“…Beyond using assistive technologies, people with aphasia often receive day-to-day help from an informal carer (usually a family member). Research has revealed a wide range of misunderstandings between informal care givers and receivers in both aphasia and other disabilities (Gillespie et al, 2010). For example, it is common for care receivers to underestimate the effort and distress of the main carer.…”

“…Gillespie and colleagues have examined the dynamics of dialogue in studies of people with aphasia and their main informal carers (Gillespie et al, 2010). Aphasia is a communication difficulty, often caused by stroke or trauma, which affects speaking, understanding, reading and/or writing.…”