Oral health-related quality of life of children with oral clefts and their families

Abstract

Oral health problems can influence people's Quality of Life (QoL) because of pain, discomfort, limitations, and other esthetics problems, affecting their social life, feeding, daily activities, and the individual's well-being.ObjectiveTo compare oral health-related quality of life (OHRQoL) of children with and without oral clefts and their families.Materials and Methods121 children aged from 2 to 6 years, from both sexes, enrolled in the treatment routine of the Pediatric Dentistry Clinics of a Dental School and a Hospital for Cleft Treatment were divided into two groups: Group 1 - children with cleft lip and palate; Group 2 - children without cleft lip and palate. The OHRQoL was assessed using the validated Portuguese version of the Early Childhood Oral Health Impact Scale (B-ECOHIS). The questionnaire was answered individually, only once, at a private place. Mann-Whitney U test was used to verify differences between groups. Spearman's Rho test was used to associate sex and age with quality of life. The level of significance was set at 5% (p<0.05).ResultsAccording to the parents’ perception on the OHRQoL of children with and without cleft lip and palate, oral health of children with oral clefts (Group 1) had a statistically significant impact on OHRQoL. The correlation of sex with impact on OHRQoL did not show statistically significant differences. On the other hand, the higher the age the higher the impact on QoL.ConclusionsThe group comparison revealed that the cleft lip and palate negatively impacted on OHRQoL of 2 to 6-year-old children and their parents.

Impact of Presurgical Nasoalveolar Molding on the Parental Perceptions of Oral Health-related Quality of Life of Children with Cleft Lip and Palate

“…Oral health-related quality of life of patients with cleft lip and palate has been receiving attention in the recent literature. [13][14][15] In spite of literature showing that over 60% of centers across the world use PNAM, 8 little is known about its impact on the OHRQoL of children with cleft lip and palate. This paper aimed to address the gap in literature.…”

“…This is attributed to the fact that while cleft lip and palate does cause dental anomalies such as missing or malformed teeth, they do not appear to affect oral health or oral function. [13][14][15] There are several scales to measure the OHRQoL of children, and many of them such as the parental perception questionnaire (PPQ) or the early childhood oral health impact scale (ECOHIS) are filled by the parent and have been successfully validated in Arabic. 17,19,20 Our decision to use the COHIP-SF, a relatively new scale, was based on the elaborate nature of the social and emotional impacts studied in the scale.…”

“…11 There have been several attempts to use parental questionnaires to examine the OHRQoL of children with cleft lip and palate, both before and after the surgery. [12][13][14][15] However, there are no data on the impact that PNAM can have on the QHRQoL. There has also been no attempt made to understand the impact of PNAM on the OHRQoL of children with cleft lip and palate.…”

Quality of Life in Adolescents with Cleft Lip and Palate

“…Recent studies show that reports of children on OHRQoL are reliable and valid. Instruments developed to measure the quality of life of children must also assess the impact of these problems on the quality of life of the family, as they are inseparable factors [13][14][15][16].…”

Fatores associados ao cuidado de crianças nascidas com fissuras labiopalatinas: perspectivas de familiares e cuidadores

“…As fendas orofaciais, especificamente fissuras labiais e/ou fissuras palatinas, estão entre as anomalias congênitas mais frequentes, podem estar associadas a uma das muitas síndromes que podem comprometer ainda mais as necessidades e o futuro de uma criança, variam em sua localização e gravidade e compreendem três grupos abrangentes: lábio leporino, labial fendido com fenda palatina e fenda palatina isolada (LEWIS et al, 2017). Os problemas de saúde bucal, onde estão inseridas fissuras labiopalatinas, podem influenciar a qualidade de vida das pessoas devido a dor, desconforto, limitações, risco de broncoaspiração, pneumonias de repetição, infecções de pele e da estrutura da orofaringe, alterações gastroesofágicas e outros problemas de estética e fonoaudiológicos, afetando seu crescimento e desenvolvimento físico, psíquico e social, alimentação, atividades diárias e o bem-estar do indivíduo (RANDO et al, 2018).…”