Optimization of power wheelchair control for patients with severe Duchenne muscular dystrophy

Pellegrini, N.; Guillon, Bruno; Prigent, Hélène; Pellégrini, M; Orlikovski, David; Raphaël, Jean-Claude; Lofaso, Frédéric

doi:10.1016/j.nmd.2004.02.005

Cited by 62 publications

(36 citation statements)

References 7 publications

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“…One study has suggested that use of a joystick to operate a moving device has low cognitive requirements because of the overt cause-and-effect link [21]. Interface adaptations have been made to compensate for physical limitations, including decreased upper-limb strength or range of motion, spasticity, or tremor [22][23]. Haptic or force feedback joysticks have been used in collision-avoidance systems to help users navigate away from obstacles [24][25][26].…”

Section: Introductionmentioning

confidence: 99%

Usability testing of multimodal feedback interface and simulated collision-avoidance power wheelchair for long-term-care home residents with cognitive impairments

Wang¹,

Mihailidis²,

Dutta³

et al. 2011

JRRD

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Abstract-Many older adults in long-term-care homes have complex physical and cognitive impairments and have difficulty propelling manual wheelchairs. Power wheelchair use is restricted owing to safety concerns. Power wheelchairs with collisionavoidance features are being developed to enable safe and independent mobility; however, a paucity of information exists on interface features to help users navigate away from obstacles. We developed a system combining an interface with auditory, visual, and haptic feedback and a simulated collision-avoidance power wheelchair. This device allowed the investigator to stop movement of the power wheelchair when users approached obstacles and to deliver feedback to help them navigate. Five long-termcare home residents with mild or moderate cognitive impairments evaluated device usability, which included effectiveness, efficiency, and user satisfaction. Each resident used the device for six 1 h sessions. Observations, feedback interviews, and outcome questionnaires were completed during and after the sessions. We found the device effective in enabling residents to achieve basic driving tasks and self-identified indoor mobility goals. Furthermore, residents perceived workload to be low and were satisfied with the device. Residents also felt that the feedback was useful to help them navigate away from obstacles.

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Section: Introductionmentioning

confidence: 99%

Usability testing of multimodal feedback interface and simulated collision-avoidance power wheelchair for long-term-care home residents with cognitive impairments

Wang¹,

Mihailidis²,

Dutta³

et al. 2011

JRRD

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show abstract

“…En la fase ambulatoria tardía es necesario el uso de una manual ultraliviana, con asiento y espalda sólido con soportes laterales para mantener el alineamiento espinal, evitar la progresión de escoliosis y adicionalmente, apoyapies en neutro para así evitar deformidades en cuello de pie. Finalmente, en la etapa no ambulatoria temprana, una silla de ruedas manual con asiento y espaldar personalizados y sistema de basculación es una condición previa a la formulación de silla de ruedas eléctrica (118)(119)(120)(121)(122). Si el paciente requiere una silla de ruedas eléctrica antes de indicarla, se deben tomar en consideración varios aspectos: el económico, el familiar, el del paciente (compromiso cognitivo del paciente) y el de la movilización (falta de transporte acondicionado para silla de ruedas, caracterís-ticas del terreno, barreras arquitectónicas, etc)…”

Section: Uso De Silla De Ruedasunclassified

Distrofia muscular de Duchenne. Perspectivas desde la rehabilitación

Chaustre

Chona

2011

Rev. Med.

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Duchenne Muscular Dystrophy (DMD) is a type of severe neuromuscular disease that occurs during childhood. It affects approximately 1 in 3500 to 6000 live male births; it is associated with the recessive X chromosome, and it manifest itself in a slightest way as Becker Muscular Dystrophy, due to a mutation in the dystrophin gene located in Xp21. This is a disabling disease that inevitably occurs until a progressive deterioration of the muscles leads to the patient´s death, usually from cardiorespiratory complications. From the point of view of rehabilitation, a series of management strategies have been developed in multidisciplinary groups ranging from gym work with stretch therapists to wheelchair prescriptions, and the development of noninvasive mechanical ventilation which, while they do not modify the genetic basis of the disease, do significantly improve the patient's independence as well as the care given by family and caregivers, and provide a better quality of life. Key words: Duchenne muscular dystrophy, dystrophin, rehabilitation ResumenLa Distrofia Muscular de Duchenne (DMD) es una enfermedad hereditaria de tipo neuromuscular progresiva, que se presenta durante la infancia; afecta aproximadamente 1 de cada 3500 a 6000 niños varones nacidos vivos. El gen DMD que codifica para la distrofina, una proteína estructural del músculo, se localiza en el brazo corto del cromosoma X en la región p21, puede sufrir diferentes mutaciones ocasionando la pérdida parcial o total de la proteína lo que origina la DMD y otras enfermedades relacionadas como la Distrofia Muscular de Becker, que es una distrofia de forma más leve. Esta es una enfermedad discapacitante que se caracteriza por un deterioro progresivo de los músculos, y en las etapas avanzadas de la enfermedad se presentan generalmente complicaciones cardiorespiratorias que son las causas principales que ocasionan la muerte al paciente. Desde el punto de vista de la rehabilitación, cuyo objetivo es retrasar la progresión de la enfermedad, se han venido desarrollado una serie de estrategias de tratamiento y manejo que involucran grupos multidisciplinarios; éstas van desde trabajo en gimnasio con terapeutas para estiramientos hasta prescripción de sillas de ruedas y formulación de ventilación mecánica no invasiva, que si bien se sabe no modifican las bases genéticas de la enfermedad, sí mejoran de forma importante la independencia del paciente, facilitan los cuidados por parte de la familia y los cuidadores y permiten una mejor calidad de vida.Palabras clave: distrofia muscular de Duchenne, distrofina, rehabilitación

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“…The difficulty in driving electrical power wheelchairs was attributed to dexterity and strength impairments [4]. Pellegrini et al reported that 47 out of 84 wheelchair users with restricted driving abilities because of Duchenne muscular dystrophy (DMD) had worse upper-limb performance than those with DMD whose driving abilities were not restricted, especially in key pinch strength [6]. However, the authors further reported that 18 restricted drivers with DMD and progressive muscle weakness gradually lost their ability to drive with a CJ but regained unrestricted driving when using alternative control systems.…”

Section: Introductionmentioning

confidence: 99%

Bimanual gliding control for indoor power wheelchair driving

Lin

Kuo²,

Ng³

et al. 2013

JRRD

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Abstract-Power wheelchairs are essential for many individuals with mobility impairment. The objective of this study was to investigate the effectiveness of bimanual gliding (BG) and conventional joystick (CJ) control in an indoor environment, with application to (1) wheelchair driving performance (i.e., practice time, completion time, and driving deviation) and (2) muscle activity of the upper limbs. This study included 22 participants (11 experienced manual wheelchair users and 11 novice manual wheelchair users). Experienced wheelchair users who used the BG strategy needed less time to practice and complete the task. Muscle activity of the upper limbs was focused on the triceps brachii, with relatively less use of the wrist muscles while applying the BG strategy. In novice wheelchair users, wrist muscles were less involved when using the BG control compared with the CJ control. The findings imply that it is feasible to modify manual wheelchairs using BG and motors, which can serve as an alternative option for wheelchair users.

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Optimization of power wheelchair control for patients with severe Duchenne muscular dystrophy

Cited by 62 publications

References 7 publications

Usability testing of multimodal feedback interface and simulated collision-avoidance power wheelchair for long-term-care home residents with cognitive impairments

Usability testing of multimodal feedback interface and simulated collision-avoidance power wheelchair for long-term-care home residents with cognitive impairments

Distrofia muscular de Duchenne. Perspectivas desde la rehabilitación

Bimanual gliding control for indoor power wheelchair driving

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