Online Social Support and Psychological Well-Being of Caregivers of Children with Autism Spectrum Disorder

Napitupulu, Lisfarika; Kurniawan, Yohan

doi:10.12973/eu-jer.12.2.927

Cited by 3 publications

(2 citation statements)

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“…Caregivers with good psychological well-being, which reflects a healthy mental condition, are vital to care for children with ASD. Unfortunately, previous research has found that many caregivers have low psychological well-being (Alsa et al, 2021;Desiningrum et al, 2019;Napitupulu & Kurniawan, 2023;Sonido et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

“…These psychological disturbances arise as consequences of the long-term care for children with ASD. Furthermore, other studies have found that several variables influence caregivers' psychological well-being For example, online social support (Napitupulu & Kurniawan, 2023); psychological capital including optimism, self-efficacy, hope, and resilience (Sarwar et al, 2022); personality traits; and mindfulness (Green et al, 2021) have all been identified as factors affecting such well-being.…”

Section: Introductionmentioning

confidence: 99%

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Understanding the influence of personality traits on psychological well-being: A study of caregivers of children with autism spectrum disorder

Napitupulu,

Razak,

Kurniawan

et al. 2023

Psikohumaniora J. Penelit. Psikol.

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Caregivers of children with autism spectrum disorder experience psychological pressure, which can affect their psychological well-being. This study aims to identify the personality traits which influence such well-being. A quantitative method was employed, involving 213 Indonesian participants who were caregivers of children with autism attending special schools or enrolled at specialized therapy centers, selected through purposive sampling. The personality traits were measured using the IPIP-BFM-25 scale, while psychological well-being was assessed using the Psychological Well-Being Scale. The data were analyzed using the PLS-SEM method with SMART PLS 3.0 software, employing the disjoint two-stage estimation approach. The results show that the traits of extroversion (β = 0.222, t = 2.249, p = .021); conscientiousness (β = 0.258, t = 2.782, p = .003); and emotional stability (β = 0.302, t = 4.371, p = .000) positively affected the caregivers’ psychological well-being. However, those of agreeableness and intellect did not have a significant impact. It is hoped that the study findings will contribute to the efforts to enhance the mental health of caregivers of children with autism.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Understanding the influence of personality traits on psychological well-being: A study of caregivers of children with autism spectrum disorder

Napitupulu,

Razak,

Kurniawan

et al. 2023

Psikohumaniora J. Penelit. Psikol.

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“Glimmers of hope and good things”: Positive aspects of caregiving to autistic adolescents and young adults

Montoya,

Ishler,

Obeid

et al. 2024

Autism

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Studies commonly measure the challenges of caring for autistic adolescents and young adults, but scarcely explore the positive aspects of the caregiving experience. This study employed an equal-status concurrent mixed methods approach to quantitatively assess predictors of positive aspects of caregiving and qualitatively examine 174 caregivers’ perceived rewards, or positive aspects, of caring for autistic adolescents and young adults (ages 16–30 years). Results from multiple regression analyses suggest that youth’s helping behavior most strongly predicted positive aspects of caregiving, and youth receiving more services and caregivers’ greater report of social support and use of religious, acceptance, and instrumental support coping also significantly predicted greater reported positive aspects of caregiving. Findings from a phenomenologically informed thematic analysis suggest that caregivers find reward in witnessing youths’ progress and joyous qualities, in the caregiver–youth relationship, and in caregivers’ own growth. Mixed methods findings highlight that positive aspects of caregiving likely extend caregivers’ self-development and may be relationship-specific. Study findings offer a strengths-based framework that highlights the positive aspects of caring for autistic adolescents and young adults. We contribute to the research in defining factors related to positive aspects of caregiving, which may inform future work and contribute to caregiver well-being. Lay abstract We wanted to explore the positive, or rewarding, experiences of caregivers who were caring for older adolescents or young autistic adults. We surveyed 174 caregivers, asking questions about how they dealt with stressors, the support they had from people in their lives, and the different behaviors of the autistic youth they care for. Using an existing measure, as well as an open-ended question, we asked caregivers about the most rewarding aspects of caring for their youth. When examining survey responses, we found that caregivers who reported receiving more help and support from their autistic youth also reported more positive aspects related to caregiving. In response to our study’s open-ended question, caregivers talked about the reward of seeing their youth grow and progress (e.g. learning new skills, reaching new milestones), described positive aspects of the relationship with their youth (e.g. sharing a special bond), and reflected on their own learning and personal growth as caregivers and people. Our findings highlight the positive, or rewarding, aspects of caregiving for autistic adolescents and young adults. This work will inform future work studying positive aspects of caring for autistic individuals and how this may impact caregivers’ psychological well-being.

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Ein Kind mit Behinderung in der Familie: ein positiver Ansatz

Tzina,

Kessler-Kakoulidis,

Dimoula

et al. 2024

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Im Fokus dieser Studie steht die Untersuchung der Selbstemotionen von Eltern mit einem Kind mit Behinderung und die Auswirkungen desselben auf die Familie. Konkret untersuchte die Studie im Rahmen der Familie das Ausmaß an Glück, Hoffnung und positiven Emotionen der Eltern und prüfte die Faktoren, die das tägliche Leben der Familienmitglieder beeinflussen und zur Annahme einer positiven Einstellung beitragen können. Des Weiteren wurde erforscht, ob diese Gefühle durch demografische Faktoren beeinflusst werden. Ziel dieser Forschung ist es, durch die Beteiligung der Eltern von Kindern mit unterschiedlichen Behinderungen eine positive Einstellung der Behinderung gegenüber hervorzuheben. Die Messung der oben genannten Variablen erfolgte mit einem quantitativen, methodischen Ansatz unter Verwendung von Selbstberichtsfragebögen, die von den Eltern ausgefüllt wurden. Die Stichprobe wurde durch Zufallsstichproben ausgewählt und umfasst 284 Eltern aus verschiedenen Regionen Griechenlands. Statistische Analysen zeigten einen signifikanten Zusammenhang zwischen den Selbstemotionen der Eltern und den Auswirkungen von Kindern mit und ohne Behinderungen auf die Familie. Die Ergebnisse werden im Kontext der vorhandenen Literatur diskutiert.

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Online Social Support and Psychological Well-Being of Caregivers of Children with Autism Spectrum Disorder

Cited by 3 publications

References 48 publications

Understanding the influence of personality traits on psychological well-being: A study of caregivers of children with autism spectrum disorder

Understanding the influence of personality traits on psychological well-being: A study of caregivers of children with autism spectrum disorder

“Glimmers of hope and good things”: Positive aspects of caregiving to autistic adolescents and young adults

Ein Kind mit Behinderung in der Familie: ein positiver Ansatz

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