Online paediatric chronic pain management: assessing the needs of UK adolescents and parents, using a cross-sectional survey

Hurley-Wallace, Anna; Schoth, Daniel E.; Lilley, Suzanne; Williams, Glyn D.; Liossi, Christina

doi:10.1177/2049463720940341

Cited by 6 publications

(4 citation statements)

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“…There is potential for encouraging peer support through use of online interventions, especially for adolescents, for whom social media is a core part of their daily lives (Ofcom, 2019). Recent research investigating the internet needs of adolescents with chronic pain and their parents has also highlighted social media as a resource that adolescents use to help with pain management (Hurley‐Wallace et al., 2020). The exact pattern of usage of popular social media platforms, such as Instagram, and how it relates to pain management in this population is unknown, although warrants investigation in future research.…”

Section: Discussionmentioning

confidence: 99%

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Online multidisciplinary interventions for paediatric chronic pain: A content analysis

Hurley-Wallace

Nowotny

Schoth

et al. 2021

European Journal of Pain

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Background Many online interventions for paediatric chronic pain have been developed and evaluated. In accordance with the biopsychosocial model, the recommended treatment approach for chronic pain is multidisciplinary. Despite this, multidisciplinary components within existing online interventions have not been examined. The objective of the present review was to summarise and evaluate the content of existing online interventions for paediatric chronic pain by mapping intervention content to evidence‐based guidelines for chronic pain management. Methods Interventions were identified using an updated systematic review. Nine chronic pain management strategies that reflect evidence‐based guidance for multidisciplinary chronic pain management were defined by the authors, examples of which include ‘pain education’, ‘activity pacing’ and ‘physiotherapy’. Identified interventions were then coded against the target strategies. These codes were compiled descriptively to provide an overview of how well each chronic pain management strategy was represented across the dataset, and which interventions represented the most strategies. Results Thirty‐five articles, relating to 13 unique interventions for paediatric chronic pain management were identified; few encompassed a complete multidisciplinary approach. Many CBT‐based interventions included multidisciplinary elements. Across interventions, physiotherapy and non‐pharmacological physical therapies were the least represented chronic pain management strategies. Conclusions The content analysis revealed a lack of online interventions encompassing complete multidisciplinary pain management. It is important that new interventions for paediatric chronic pain management are evidence‐based and reflect current best practice guidelines. Established intervention development approaches should be utilised and include a process evaluation to help identify which intervention components are effective in which contexts. Significance This content analysis of online interventions for paediatric chronic pain highlights the need for multidisciplinary practices in pain management to be translated into online interventions. Improving the availability of pain management resources is essential for many families who cannot attend specialist pain clinics, particularly in the context of the COVID‐19 pandemic. There is potential for new resources, as well as for established resources, to be further developed to deliver a broader range of pain management content.

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Section: Discussionmentioning

confidence: 99%

“…Thirteen tools of 53 were available to patients, with barriers including time and funding. Despite this, a survey of adolescents and parents indicated that new, accessible online pain management interventions would be welcomed (Hurley‐Wallace et al., 2020).…”

Section: Introductionmentioning

confidence: 99%

Online multidisciplinary interventions for paediatric chronic pain: A content analysis

Hurley-Wallace

Nowotny

Schoth

et al. 2021

European Journal of Pain

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“…According to the World Health Organization, young people with chronic pain should be treated as having a serious health issue that requires active management (29) using a multidisciplinary approach (1). A UK study found that multidisciplinary treatment followed by pharmacological interventions were effective strategies in managing young people's (n = 95) pain (30). Similarly, a Swedish study found that 74% of children and young people (n = 69) used analgesics to manage their pain (31).…”

Section: Introductionmentioning

confidence: 99%

Participation in everyday life for young people with chronic pain in Saudi Arabia: “you feel lacking in life and you feel that time is flying by”

Alsaggaf

Coyne

2023

Front. Rehabil. Sci.

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IntroductionChronic pain is a common health problem that can have a significant impact on children and young people's daily life. Although research on pediatric chronic pain has been a priority globally, little is known about young people's experience of chronic pain in Saudi Arabia. Thus, this article reports on young people's experience of chronic pain and the impact on their lives in Saudi Arabia which forms part of a larger study.MethodsMultiple case study design following Yin's (2018) approach was used. Purposeful and theoretical sampling were used to recruit young people aged 12 to 18 who had experienced chronic pain for at least three months, their parents, and their school personnel. The young people and their parents were recruited from a tertiary hospital located on the western side of Saudi Arabia while school personnel were recruited from the schools that young people attended. Data were collected through in-depth semi-structured face-to-face (n = 15) and telephone interviews (n = 25) from 40 participants (10 young people, 10 parents, and 20 school personnel). Interviews were recorded, transcribed verbatim, and translated from Arabic to English. Data were analyzed following two phases: (1) constant comparative analysis; and (2) cross-case analysis based on the work of Charmaz (2014) and Yin (2018) respectively.FindingsYoung people's experiences of chronic pain were categorized into three themes: (1) experiencing chronic pain; (2) impact of pain on quality of life; and (3) everyday strategies to manage chronic pain. All young people reported that their pain was caused by a chronic condition, where the most prevalent pains were musculoskeletal/joint pain, abdominal pain, and headache/migraine. Most young people had encountered challenges with misdiagnosis or delayed diagnosis as to the cause of their chronic pain. They described how their chronic pain interfered with their physical, psychological, and social functioning. They primarily managed their pain with medications and through self-care techniques. The findings also indicated that young people's generally positive attitude to their pain reflected their beliefs in Allah's power and the belief that such suffering should be borne according to their Islamic culture.ConclusionChronic pain is a significant health phenomenon that tends to restrict the participation of young people in everyday life. However young people used a range of strategies to normalize the pain so that they could continue with their everyday activities like their peers.

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“…Further, mixed-methods survey-based research has identified social media platforms, such as Instagram and YouTube, as important resources in chronic pain management for adolescents aged 16-18-years in the UK. 27 However, pain-related internet use among older adolescents with chronic pain has not been explored qualitatively. Such research can provide insights into which resources are already being used and why.…”

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confidence: 99%

Trusting in the online ‘community’: An interview study exploring internet use in young people with chronic pain

Hurley-Wallace

Kirby

Bishop

2021

British Journal of Pain

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Background Chronic pain in young people is prevalent in the UK. Young people are digital natives, yet there has not been any online intervention developed in a UK context to help them manage chronic pain. Key to understanding the context in which young people engage with online interventions is better understanding their internet use for chronic pain management. The overarching aim of this study was to explore young peoples’ experiences of searching for information about chronic pain using the internet. This included experiences of using search engines (e.g. Google), health information websites (e.g. the National Health Service [NHS] website) and social media (e.g. Facebook and Instagram). Methods Semi-structured interviews were conducted with young people aged 16–24-years ( n = 24), online, via Microsoft (MS) Teams. The study was advertised online and via patient partner charities. Interview data was analysed using reflexive thematic analysis. Results Participants presented with a variety of chronic pain conditions, including joint hypermobility syndrome ( n = 6), chronic headache and/or migraine ( n = 4) and fibromyalgia ( n = 3). Four themes were generated: ‘Trustworthy information, or experiences?’, ‘Diagnostic labels in a digital world’, ‘The online chronic pain community’ and ‘A mind and body approach to self-management’. Young people trust advice from others in their online community and having a diagnostic label help them find relevant pain management strategies and support networks online. Conclusions This study is the first qualitative exploration of internet use in UK-based young people with chronic pain. Findings highlight the importance of considering internet use when developing new online interventions for young people with pain and that internet use, particularly social media use, is an important psychosocial consideration in pain management. Young people should be encouraged to verify practical pain management techniques found online with their doctor and be empowered in the safe use of appropriate psychology-based self-management resources.

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Online paediatric chronic pain management: assessing the needs of UK adolescents and parents, using a cross-sectional survey

Cited by 6 publications

References 61 publications

Online multidisciplinary interventions for paediatric chronic pain: A content analysis

Online multidisciplinary interventions for paediatric chronic pain: A content analysis

Participation in everyday life for young people with chronic pain in Saudi Arabia: “you feel lacking in life and you feel that time is flying by”

Trusting in the online ‘community’: An interview study exploring internet use in young people with chronic pain

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