Oncology navigators’ perceptions of cancer-related financial burden and financial assistance resources

Spencer, Jennifer; Samuel, Cleo A.; Rosenstein, Donald L.; Reeder‐Hayes, Katherine E.; Manning, Michelle; Sellers, Jean B.; Wheeler, Stephanie B.

doi:10.1007/s00520-017-3958-3

Cited by 52 publications

(51 citation statements)

References 27 publications

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“…There is an obvious need for increased financial risk and cost of care conversations between cancer patients and their health care team; ideally, these conversations would promote shared decision‐making and improved cost‐related health literacy among patients . In addition, support services such as financial and insurance counseling, patient navigation, medication assistance programs, social services, and psychosocial oncology resources are needed to help patients manage medical and non‐medical financial issues related to their cancer care . These services and resources are needed within both clinical and community settings, but could also be made available through connected health programs, particularly for isolated rural and Appalachian communities .…”

Section: Discussionmentioning

confidence: 99%

“…A total of 13,360 sampling addresses, stratified by two concentrations of minority populations (high/low), were selected; a total of 3,347 questionnaires were returned with 3,285 deemed eligible for inclusion in the final dataset. The overall response rate was 32.4% . In total, 504 individuals responding to the HINTS survey indicated a history of cancer and served as the secondary analytic sample.…”

Section: Methodsmentioning

confidence: 99%

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Financial distress among cancer survivors in Appalachian Kentucky

et al. 2019

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Background: Rural residence may exacerbate cancer-related financial distress.Limited research has focused on Appalachian cancer survivors' experience with financial distress. Aims:The primary aim of this study was to estimate the prevalence of financial distress among cancer survivors residing in Appalachian Kentucky with a specific focus on the impact of rurality and to elucidate the risk factors impacting financial distress among this population. Methods and Results: Appalachian Kentucky residents were sampled for receipt of a health survey based on county-level rurality. Analyses describe the prevalence and predictors of financial distress among cancer survivors. Subsequent analyses were conducted with Health Information National Trends Survey (HINTS) data to compare local versus national estimates of financial distress. Almost two-thirds of Appalachian survivors reported financial distress compared to one-third of the HINTS sample.Appalachian survivors residing in the most rural counties reported higher distress; this finding was not supported in the national sample. In multivariable analyses, gender, current age, and household income were associated with financial distress among Appalachians; only income was significant among the national sample.Conclusion: Appalachian cancer survivors have higher than national estimates of financial distress; rurality and socioeconomics are drivers of this disparity. K E Y W O R D SAppalachian region, financial distress, neoplasms, rural health, surveys and questionnaires, survivorship

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Financial distress among cancer survivors in Appalachian Kentucky

et al. 2019

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“…Для определения объективных экономических последствий рака и субъективной обеспокоенности пациентов по поводу финансовых потерь и невозможности продолжать лечение вследствие финансовой несостоятельности был предложен термин «финансовая токсичность» [20,45,46], которая сопряжена c серьезными негативными исходами для пациента, включая ухудшение связанного со здоровьем качества жизни [47], повышения бремени симптомов [48], включая повышение риска развития тревоги, депрессии и более высокий уровень беспокойства по поводу рецидива рака у выживших пациентов [49], а также со снижением выживаемости [50].…”

Section: доступность противоопухолевой терапии для пациентов / Antituunclassified

“…По данным различных исследований, финансовую токсичность в СВУД испытывают от 30 до 75% пациентов [40,46,51].…”

Section: доступность противоопухолевой терапии для пациентов / Antituunclassified

Economic challenges of oncological diseases’ pharmacotherapy

2020

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Oncological diseases rank high in the structure of population morbidity and mortality. They entail considerable direct and indirect economic costs. In the past decades, the cost of oncotherapy has increased significantly, which is largely conditioned by high prices of antitumor drugs, which on average increased by ten times in the past ten years. At the same time, many innovative medications have only minor advantages over cheaper old medications because they are registered based on the data on the achievement of the surrogate endpoint – extension of progression-free survival. The high cost of oncotherapy is associated with financial toxicity that affects negatively the patients’ quality of life, their adherence to treatment and consequently survival. To reduce the cost of oncotherapy, it is necessary to conduct pharma-economic analysis, the results of which can serve as the basis to negotiate price-cutting with the manufacturers, as well as to use high-quality generics and biosimilars as effective and safe as their originals, and to monitor effectiveness and safety of all antitumor drugs within the pharmacovigilance framework.

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“…26 Those with limited resources or few financial reserves may experience the most challenges after diagnosis. [27][28][29] Cancer June 1, 2019 Studies documenting the impact of economic burden on cancer survivors have explored provider-driven recommendations [30][31][32] and oncology navigator perceptions 33 for reducing economic burden. Provider-driven recommendations largely focus on addressing elements of the health care system and direct medical costs, [30][31][32] such as payments made for health needs by the patient or insurer.…”

Section: Introductionmentioning

confidence: 99%

Patient recommendations for reducing long‐lasting economic burden after breast cancer

Dean

Moss

Rollinson

et al. 2019

Cancer

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Background In the United States, patients who have breast cancer experience significant economic burden compared with those who have other types of cancers. Cancer‐related economic burden is exacerbated by adverse treatment effects. Strategies to resolve the economic burden caused by breast cancer and its adverse treatment effects have stemmed from the perspectives of health care providers, oncology navigators, and other subject‐matter experts. For the current study, patient‐driven recommendations were elicited to reduce economic burden after 1) breast cancer and 2) breast cancer‐related lymphedema, which is a common, persistent adverse effect of breast cancer. Methods Qualitative interviews were conducted with 40 long‐term breast cancer survivors who were residents of Pennsylvania or New Jersey in 2015 and were enrolled in a 6‐month observational study. Purposive sampling ensured equal representation by age, socioeconomic position, and lymphedema diagnosis. Semistructured interviews addressed economic challenges, supports used, and patient recommendations for reducing financial challenges. Interviews were coded, and representative quotes from the patient recommendations were analyzed and reported to illustrate key findings. Results Of 40 interviewees (mean age, 64 years; mean time since diagnosis, 12 years), 27 offered recommendations to reduce the economic burden caused by cancer and its adverse treatment effects. Nine recommendations emerged across 4 major themes: expanding affordable insurance and insurance‐covered items, especially for lymphedema treatment (among the 60% who reported lymphedema); supportive domestic help; financial assistance from diagnosis through treatment; and employment‐preserving policies. Conclusions The current study yielded 9 actionable, patient‐driven recommendations—changes to insurance, supportive services, financial assistance, and protective policies—to reduce breast cancer‐related economic burden. These recommendations should be tested through policy and programmatic interventions.

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Oncology navigators’ perceptions of cancer-related financial burden and financial assistance resources

Cited by 52 publications

References 27 publications

Financial distress among cancer survivors in Appalachian Kentucky

Financial distress among cancer survivors in Appalachian Kentucky

Economic challenges of oncological diseases’ pharmacotherapy

Patient recommendations for reducing long‐lasting economic burden after breast cancer

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