On the relative importance of privacy guidelines for ambient health care

Abstract

We present an empirical study regarding the relative importance of complying with privacy related guidelines in the context of a Health Monitoring System. Participants were confronted with text scenarios describing privacy related aspects of a health monitoring service for daily use at home. Participants assessed the relative importance to them of simplified variants of the OECD (Organization of Economic Cooperation and Development) guidelines for the protection of personal data. The guidelines that relate to Insight and Openness were most valued. The guidelines relating to Modification and Data Quality were valued least by most participants in this context. Methodological challenges were encountered on the way, which reveal the complexity of conducting empirical investigations of privacy aspects of human-computer interaction.

Designing privacy-aware internet of things applications

“…Cavoukian and Jonas [42] have extended these principles by proposing seven more specific guidelines to build PbD systems to manage big data, namely, (1) full attribution, (2) data tethering, (3) analytics on anonymized data, (4) tamper-resistant audit logs, (5) false negative favouring methods, (6) self-correcting false positives and (7) information transfer accounting. The ISO Descriptions of Evaluation the approach Garde-Perik [39] This work explores the relative importance of complying with privacy related guidelines in the context of a Health Monitoring System. A total of 50 participants were given a text scenario describing a health care system.…”

“…Descriptions of Evaluation the approach Garde-Perik [39] This work explores the relative importance of complying with privacy related guidelines in the context of a Health Monitoring System. A total of 50 participants were given a text scenario describing a health care system.…”

Ethics of the health-related internet of things: a narrative review

“…Chan et al 2009;Demiris 2009;Jea et al 2008;Mitseva et al 2008;Mittelstadt et al 2011;Tentori et al 2006;Tiwari et al 2010;Garde-Perik et al 2006;van Hoof et al 2007). At its narrowest, informational privacy can be equated with hiding personally identifiable data from unauthorised parties (Garcia-Morchon et al 2011;Ahamed et al 2007), and can be quantifiable (Srinivasan et al 2008).…”

Pervasive Healthcare

“…medical sciences and human-computer interaction) and adapted for pervasive health systems. Examples of this include evaluation of perceived privacy and security in pervasive health systems [46], evaluation of user acceptance and technology adoption [47], and multidisciplinary clinical evaluation methods [48] among others. An open question remains whether those adaptations would continue to be valid for the coming generations of pervasive health systems or if the notion of health management itself will be fundamentally altered by the new pervasive technologies implying a complete re-thinking of healthcare provisioning and the evaluation of its effectiveness.…”