Older people's experiences of cash-for-care schemes: evidence from the English Individual Budget pilot projects

Abstract

Cash-for-care schemes offering cash payments in place of conventional social services are becoming commonplace in developed welfare states; however, there is little evidence about the impact of such schemes on older people. This paper reports on the impact and outcomes for older people of the recent English Individual Budget (IB) pilot projects (-). It presents quantitative data on outcome measures from structured interviews with  older people who took part in a randomised controlled trial and findings from semi-structured interviews with  older people in receipt of IBs and with IB project leads in each of the  pilot sites. Older people spent their IBs predominantly on personal care, with little resources left for social or leisure activities; and had higher levels of psychological ill-health, lower levels of wellbeing, and worse self-perceived health than older people in receipt of conventional services. The qualitative interviews provide insights into these results. Potential advantages of IBs included increased choice and control, continuity of care worker, and the ability to reward some family carers. However, older people reported anxieties about the responsibility of organising their own support and managing their budget. For older people to benefit fully from cash-for-care schemes they need sufficient resources to purchase more than basic personal care; and access to help and advice in planning and managing their budget.KEY WORDSolder people, personal budgets, individual budgets, cash-for-care, choice and control.Cash-for-care schemes offering cash payments in place of conventional social services to older and disabled people are increasingly commonplace throughout developed welfare states. However, there is little evidence about the impact of such schemes on older people, and less still that gives voice to older people and to their individual experiences of cash-for-care schemes. This paper reports on an evaluation of a recent English cash-forcare scheme, the Individual Budget (IB) pilot projects (the IBSEN study). It highlights the impact and outcomes of IBs for older people through survey data; semi-structured interviews with a sub-sample of older IB users and their proxies; and semi-structured interviews with the IB project lead in each of the  IB pilot sites.Cash-for-care schemes that offer older and disabled people cash payments or access to a specified cash resource, instead of allocations of services in kind, are increasingly common in parts of Europe, Australia, Canada and the United States of America (Da Roit and Le Bihan ; Doty, Mahoney and Simon-Rusinowitz ; European Commission ; Glendinning and Kemp ; Leece and Leece ; Lord and Hutchison ; Timonen, Convery and Cahill ; Ungerson and Yeandle ). In some countries, such schemes are available to older people as part of arrangements for funding long-term care; elsewhere cash payments are only available to younger disabled people as part of moves to support independent living; in other countries cash-for...

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