2002
DOI: 10.1111/j.1754-7121.2002.tb01074.x
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Obtaining public input for health‐systems decision‐making: Past experiences and future prospects

Abstract: Interest in finding more effective methods for public involvement in decision‐making about health systems is more widespread than ever in Canada since significant aspects of health‐care decision‐making were devolved from provincial governments to regional health authorities. Involving the public can be risky business, however, as the accountability and legitimacy of decisions made by governing authorities are often assessed against the nature and degree of interaction that occurs with the public. Consequently,… Show more

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Cited by 50 publications
(38 citation statements)
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“…But the chequered history of previous efforts to involve citizens in health system decision-making 11 prompts questions about the ability of these new structures, on their own, to overcome the problems that have plagued past processes. Informed by the results of the first of three phases of a three-year comparative study of public involvement in regionalised health systems in Canada, we examine the prospects for success of these new participatory processes and offer recommendations to ensure that these institutional mechanisms build on the best available evidence, which includes the perspectives and attitudes of the citizens who are likely to be encouraged to take part in these initiatives.…”
Section: Introductionmentioning
confidence: 97%
“…But the chequered history of previous efforts to involve citizens in health system decision-making 11 prompts questions about the ability of these new structures, on their own, to overcome the problems that have plagued past processes. Informed by the results of the first of three phases of a three-year comparative study of public involvement in regionalised health systems in Canada, we examine the prospects for success of these new participatory processes and offer recommendations to ensure that these institutional mechanisms build on the best available evidence, which includes the perspectives and attitudes of the citizens who are likely to be encouraged to take part in these initiatives.…”
Section: Introductionmentioning
confidence: 97%
“…Some social values are widely shared, i.e., mutual support, basic justice, and sanctions against harm [22]. Beyond this, the determination of specific and policy-directive public values is notoriously difficult [23], both because of the ambiguity of values language and concepts [9], and difficulty defining and authentically involving publics [24,25]. It is not surprising that policy makers often turn to ethics expertise for help.…”
Section: Discussionmentioning
confidence: 99%
“…In the delivery of health services, participatory ideals became enshrined in Sherry Arnstein's ladder of citizenship participation (in A Ladder of Citizen Participation, 1969) and during the 1970s in the Alma Ata Declaration. However, whereas Arnstein envisaged a participatory culture in which health service users would play a key role in the decision-making process affecting their care, most subsequent attempts to institutionalise participatory ideals in health services in North America, Europe, and Australia defaulted to relatively low levels of citizen participation (Entwistle et al 1998;Johnson and Silburn 2000;Abelson and Forest 2002;Church et al 2002;Morone and Kilbreth 2003;Nathan 2004). Indeed, today many large health service providers feature consumer reference groups and other mechanisms of citizenship involvement, but few of these institutions are 'participatory' when held against Arnstein's ladder.…”
Section: Introductionmentioning
confidence: 98%