O Diagnóstico Das Crianças Com Doença Falciforme: Desafios E Perspectivas De Enfrentamento

Ataide, Cíntia Aparecida; Ricas, Janete

doi:10.17564/2316-3798.2016v4n2p19-28

Cited by 2 publications

(3 citation statements)

References 3 publications

(3 reference statements)

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“…The literature points out that the caregiver task is mostly performed by a female figure, who alone must lead the family, promote care and also provide sustenance for her children, sometimes counting on the help of family members, as grandmothers, to share the care and when they cannot get this family help, all the sustenance of the house and the care provided depend on them, therefore, all the interviews were the mothers of the hospitalized children. (ATAÍDE, 2016).…”

Section: The Reception Of the Sick Child's Newsmentioning

confidence: 99%

“…Focusing on the family nucleus of patients with SCD, they are usually singleparent families, led by the female figure, and who, when they receive the diagnosis of a new member with SCA, especially a child, go through an exhausting process of reorganization and adaptation to the family. new reality and routine (ATAÍDE & RICAS, 2016;GESTEIRA, 2016).…”

Section: Introductionmentioning

confidence: 99%

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The perception of parents of children and adolescents with sickle cell disease in relation to treatment

Rêgo¹,

Barroso²,

Esteves³

et al. 2022

JHS

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Sickle cell disease (SCD) is a genetic disorder of autosomal and recessive origin, being prevalent in people of African origin and with low education, impairs the quality of life of its patients, as it causes limitations in occupational activities in a physical and emotional way, causing reclusion and nonacceptance of treatment, especially among children and adolescents. Goal: To describe the perception of parents/guardians of children and adolescents living with sickle cell disease. Methodology: Descriptive and exploratory qualitative approach research, with children and adolescents aged 6 to 18 years, who undergo treatment at the HEMOAM Foundation from December 2021 to June 2022, with data collection through semi-structured interviews and content analysis. Results: It was possible to identify, through the scientific evidence published in the databases on the subject, that the role of caregiver of the child with sickle cell anemia demands great responsibility, and it bears a great psychosocial weight, but the proximity to support networks, with family members, churches, organizations and also the health team, proved to be positive for coping with the disease, its complications and aggravation. Discussion: It is found in the perception of parents of children and adolescents living with sickle cell disease, their knowledge about their children's health condition, care routines in relation to treatments, as well as their concerns and anxieties arising after diagnosis of sickle cell disease, enabling a better understanding of how health professionals approach this population, resulting in positive repercussions in the scientific environment through educational actions. Conclusion: The mother is the integral caregiver of the child and adolescent in their treatment trajectory, resulting in critical mental exhaustion for performing so many activities with little or no help from outsiders.

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Section: The Reception Of the Sick Child's Newsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The perception of parents of children and adolescents with sickle cell disease in relation to treatment

Rêgo¹,

Barroso²,

Esteves³

et al. 2022

JHS

View full text Add to dashboard Cite

show abstract

“…Para os pais das crianças e dos adolescentes deste estudo a descoberta da patologia, o desconhecimento deles acerca desta e a forma com que profissionais de saúde passaram as informações trouxe sofrimento e medo da morte de seus filhos, como foi o caso da mãe de Bela, que ao receber o diagnóstico teve o prognóstico que sua filha iria sobreviver até os seismeses porque a doença não tinha cura,conforme informação recebidado profissional de saúde que lhe entregou os resultados do teste do pezinho. Estudo de Ataíde e Ricas (19) aponta que o sofrimento psíquico perante a patologia está relacionado a diversas mudanças e inseguranças provocadas pelo diagnóstico, entre elas a dificuldade de compreender a doença pelo desconhecimento e pela falta de informação precisa.…”

Section: Identificação Hospitalização Serviços De Urgência E Emergênciaunclassified

<b>Caracterização de crianças e adolescentes com anemia falciforme e os serviços de saúde que utilizam/ Characterization of children and adolescents with sickle cell anemia and the health services they use<b>

Borges¹,

Gabatz²,

Milbrath³

et al. 2018

Cienc. Cuid. Saúde

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Este estudo objetivou caracterizar as crianças e adolescentes com Anemia Falciforme e conhecer os serviços de saúde utilizados por eles. Trata-se de um estudo descritivo de abordagem qualitativa, realizado em um município situado no sul do Brasil, tendo como participantes sete responsáveis de crianças e adolescentes com Anemia Falciforme.A coleta das informações ocorreu no primeiro semestre de 2017, por meio de um questionário preenchido pelos responsáveis.Após a coleta as informações, foram analisadas através da análise de conteúdo convencional.Respeitaram-se todos os preceitos éticos estabelecidos pela resolução nº. 466/12. Os resultados indicam que as complicações mais frequentes da Anemia Falciforme foram as crises vaso-oclusivas, bem como os quadros infecciosos. Além disso, os participantes já passaram por diversos serviços de saúde para a continuação do cuidado a sua saúde, contudo nem todos acessaram a atenção básica. Diante do exposto, conclui-se que é necessário fortalecer o atendimento em rede articulando os diversos níveis de complexidade de atenção e enfatizando a atenção básica como porta de entrada.

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O Diagnóstico Das Crianças Com Doença Falciforme: Desafios E Perspectivas De Enfrentamento

Cited by 2 publications

References 3 publications

The perception of parents of children and adolescents with sickle cell disease in relation to treatment

The perception of parents of children and adolescents with sickle cell disease in relation to treatment

<b>Caracterização de crianças e adolescentes com anemia falciforme e os serviços de saúde que utilizam/ Characterization of children and adolescents with sickle cell anemia and the health services they use<b>

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