“Nothing About Me, Without Me”: Participatory Action Research with Self‐Help/Mutual Aid Organizations for Psychiatric Consumer/Survivors

Nelson, Geoffrey; Ochocka, Joanna; Griffin, Kara; Lord, J. R.

doi:10.1023/a:1022298129812

Cited by 203 publications

(175 citation statements)

References 42 publications

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“…9 CBPR has often been utilised in research with vulnerable or marginalised populations and is increasingly employed in research with Indigenous communities. 1,[9][10][11][12][13][14][15][16][17] The principles and characteristics of CBPR are considered to have the potential to address the failings, and 'colonisingeffects', of previous research on Indigenous peoples. 8 Further, by involving affected communities in the analysis and interpretation of data, CBPR has the potential to avoid the misrepresentation of 'Indigenous societies, culture and persons by non-Indigenous academics and professionals'.…”

mentioning

confidence: 99%

The Indigenous Resiliency Project: a worked example of community-based participatory research

Mooney-Somers¹,

Maher²

2009

NSW Public Health Bull.

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mentioning

confidence: 99%

The Indigenous Resiliency Project: a worked example of community-based participatory research

Mooney-Somers¹,

Maher²

2009

NSW Public Health Bull.

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“…Of particular relevance to the self-help ethos (Riessman, 1982) are approaches premised on collaboration (AA, 1991;McCrady & Miller, 1993)-this includes PAR (Nelson, Ochocka, Griffin, & Lord, 1998;Ochocka, Janzen, & Nelson, 2002).…”

Section: The Way Forwardmentioning

confidence: 99%

“…These include empowerment, supportive relationships, social change, and continual learning (Nelson et al, 1998;Nelson et al, 2004).…”

Section: The Way Forwardmentioning

confidence: 99%

Researching community‐based support networks: what policymakers should know

Dadich

2009

Journal Community Psychology

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Self‐help support groups (SHSGs) have a valuable role in civic society. However, it is difficult to measure their value through sole use of the positivist approaches that interest policymakers. This is because SHSGs are consumer‐driven and voluntary. Thus, they cannot be regulated by research agendas or prescribed like treatment. Although social policy has an important role in the use and availability of SHSGs, the author argues that social policy research in this field needs to demonstrate paradigmatic plurality, finding balance between positivism and participatory practices. This involves engaging with group participants to identify indicators that measure group activities and impacts; appropriate research methods; and suitable timeframes. Only through paradigmatic plurality will social policy fulfill its role in enhancing community well‐being. © 2009 Wiley Periodicals, Inc.

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“…En 2002, une enquête américaine estimait à 7,467 le nombre d'OCSM dirigés par des usagers ou par leurs familles aux États-Unis, contre 4,546 organisations du réseau institutionnel (Goldstrom et al, 2006, 92 3. Les principales spécificités culturelles des OCSM rapportées sont les suivantes : interventions novatrices, adaptées aux besoins individuels ; approche globale qui favorise l'appropriation du pouvoir ; rapports égalitaires entre usager et intervenant ; contestation du monopole exercée par la perspective biomédicale (White et al, 1991 ;Nelson et al, 1998 ;Lecomte et al, 2000 ;Rodriguez et al, 2006 …”

Section: Notesunclassified

Les organismes communautaires en santé mentale au Québec : rôle et dynamique partenariale

Grenier

Fleury

2009

smq

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Cette étude présente un portrait global des 371 organismes communautaires en santé mentale (OCSM) subventionnés par l’État québécois durant l’année 2003-2004, et fait état de leur dynamique partenariale avec les réseaux communautaire, institutionnel et intersectoriel. Les auteurs abordent la diversité des OCSM à partir des dimensions suivantes : période de fondation de l’organisme, type et étendue du territoire couvert, type et nombre de services offerts, profil financier, regroupements et associations, tables de concertation et relations partenariales. L’étendue du territoire, l’importance du budget et la participation à une table de concertation locale et à des comités de travail apparaissent être des conditions qui favorisent la formalisation des relations organisationnelles.This study presents a global picture of the 371 government funded community-based mental health organizations (OCSM) and provides a description of the partnerships developed with community, institutional and inter-sector networks. The authors examine the diversity of the mental health community organizations based on the following characteristics: date of foundation, type and extent of territory, type and number of services offered, financial statement; participation in associations, participation in steering committees and models of partnership. The surface area of the territory, the size of the budget as well as involvement in steering committees appear to be enabling factors favouring the development of relations between organizations.Este estudio presenta una semblanza global de los 371 organismos comunitarios de salud mental (OCSM) subvencionados por el Estado quebequense durante el año 2003-2004, y pone en evidencia su dinámica de asociación con las redes comunitaria, institucional e intersectorial. Los autores abordan la diversidad de los OCSM a partir de los aspectos siguientes: período de fundación del organismo, tipo y extensión del territorio cubierto, tipo y cantidad de servicios ofrecidos, perfil financiero, reagrupamientos y asociaciones, mesas de concertación y relaciones de asociación. La extensión del territorio, la importancia del presupuesto y la participación en una mesa de concertación local y en comités de trabajo parecen condiciones que favorecen la formalización de las relaciones organizacionales.Este estudo apresenta um perfil global dos 371 organismos comunitários em saúde mental (OCSM) subvencionados pelo Estado quebequense durante o ano 2003-2004, e relata sua dinâmica de parceria com as redes comunitária, institucional e intersetorial. Os autores abordam a diversidade dos OCSM a partir das seguintes dimensões: período de fundação do organismo, tipo e abrangência do território coberto, tipo e quantidade de serviços prestados, perfil financeiro, agrupamento e associações, comitês consultivos e relações de parceria. A abrangência do território, a importância do orçamento e a participação em um comitê consultivo local e em comitês de trabalho demonstram ser condições que favorecem a formalização das relações organi...

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“Nothing About Me, Without Me”: Participatory Action Research with Self‐Help/Mutual Aid Organizations for Psychiatric Consumer/Survivors

Cited by 203 publications

References 42 publications

The Indigenous Resiliency Project: a worked example of community-based participatory research

The Indigenous Resiliency Project: a worked example of community-based participatory research

Researching community‐based support networks: what policymakers should know

Les organismes communautaires en santé mentale au Québec : rôle et dynamique partenariale

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