Negotiation of parental roles within family‐centred care: a review of the research

Abstract

For family-centred care to be a reality nurses need to negotiate and communicate with children and their families effectively. Parents need to be able to negotiate with health staff what this participation will involve and to negotiate new roles for themselves in sharing care of their sick child. Parents should be involved in the decision-making process. However, research suggests that a lack of effective communication, professional expectations and issues of power and control often inhibit open and mutual negotiation between families and nurses.

Exploring perspectives on restraint during medical procedures in paediatric care: a qualitative interview study with nurses and physicians

“…However, it can be difficult for parents to prepare themselves for eventualities such as multiple restraint episodes during a procedure if this is not explicitly addressed (Svendsen et al, 2016). Lack of communication and negotiation between healthcare providers and parents can result in a lack of parental involvement when restraint is used unexpectedly (Corlett & Twycross, 2006). Our results support the notion that healthcare providers need to communicate more openly with parents (Hallström & Runeson, 2001; Hallström et al, 2002), and we suggest that education related to restraint should be included in the preparation of parents.…”

Roles of nurses and parents caring for hospitalised children

“…However, a recurrent finding in the authors' literature review (Paliadelis et al 2005, Lam et al 2006, Coyne 2015 and other research (Corlett andTwycross 2006, Fisher andBroome 2011) is that parents report a lack of information from nurses.…”

Constructing the ‘ideal’ family for family‐centred practice: challenges for delivery

“…A number of western developed countries have experienced philosophical and policy shifts away from medical to more social models of disability in recent years that have required disability services, and the allied health and other professionals employed within them, to reflect on how they can best respond to the needs and wants of families caring for children and young people with a disability (Corlett & Twycross, 2006;Dokken & Ahmann, 2006;Moore & Larkin, 2005;Oliver 1996;Saggers et al, 2002;Shakespeare & Watson 2002;Wade et al, 2007;Wiart, 2002. The extent to which the philosophy of the social model of disability has been implemented at the disability service provision level in these countries varies and is subject to ongoing debate.…”